I experience mild bone pain/tenderness in my skull followed by a softening of the bone. This creates flat areas/indentions and has gradually created deformity.
I had an MRI scan done and the Doctor told me it came out normal, much to my surprise. Doctors have told me maybe it's an ' anatomical deviation'. This is not so as it has continued to progress. I went to a neurologist and he prescribed me mucsle relaxers for the pain. That was no help at all and I was not directed anywhere to go to get help, like a bone disease specialist,etc. I went to a bone clinic to request a bone scan, they said a neurologist would have to refer me to get a cranial bone scan, as they did not do that there. I feel like I am not being taken seriously and I have long been at a loss as to what to do. This is something real I am still experiencing and the problem is not going away on it's own. This has caused me much distress.
I need help,advice,direction. Please help!
Thank you very much.