Discussions By Condition: I cannot get a diagnosis.

please help:)

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • March 7, 2008
  • 01:55 AM

I'm 23 years old and have had medical problems for the last 3.5 years.

About 3.5 years ago i gained 40lbs in 3 months and this was just the beginning.
I have chronic pressure headaches (back portion of head), dry eyes, fatigue, joint pain, increased pulse, abdominal pain/bloating, continued weight gain now in total of 80 lbs, lack of consentration, muscle aches, super sensitivity when i run into things, light headed, memmory problems (currently in school and have never struggled with school but with medical stuff i'm having a difficult time)

I have a history of endometriosis
and since being sick I now have interstitial cystits, acid reflux, and was previously on synthroid for thyroid issues but was removed due to it not changing anything, and have had my gallbladder removed.
I've had testing for many endocrine issues at the mayo clinic including cushings, thyroid, PSOS, and several others.
Any suggestions are welcome

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3 Replies:

  • What kind of thyroid problems do you have? Do you have autoimmune thyroiditis, either Hashimoto's of Grave's?If so, you may have a rare complication of these called Hashimoto's Encephalopathy, diagnosed by elevated thyroid antibodies. It can cause headaches, fatigue, memory problems, concentration problems, lightheadedness, plus other symptoms- but not everyone has the same symptoms. I'm not sure if it would explain everything you are complaining about- such as the abdominal pain, weight gain, or reflux, but perhaps these are thyroid issues (and not brain inflammation- which is what the encephalopathy is).Another thing that may be worth looking into is celiac disease, which often goes hand in hand with thyroid disease.I hope you find a doctor who can figure out what you have.Best Wishes.
    Anonymous 42789 Replies Flag this Response
  • I'm 23 years old and have had medical problems for the last 3.5 years. About 3.5 years ago i gained 40lbs in 3 months and this was just the beginning.I have chronic pressure headaches (back portion of head), dry eyes, fatigue, joint pain, increased pulse, abdominal pain/bloating, continued weight gain now in total of 80 lbs, lack of concentration, muscle aches, super sensitivity when i run into things, light headed, memory problems (currently in school and have never struggled with school but with medical stuff i'm having a difficult time)All symptoms of thyroid disease. Be careful too, because dry eyes is a symptom of Thyroid Eye Disease which can cause serious complications. I have a history of endometriosisand since being sick I now have interstitial cystits, acid reflux, and was previously on synthroid for thyroid issues but was removed due to it not changing anything, and have had my gallbladder removed.I've had testing for many endocrine issues at the mayo clinic including cushings, thyroid, PSOS, and several others.Any suggestions are welcomeAgain, another symptom of thyroid disease. Acid reflux is common with thyroid disease.You said you were on Synthroid and it was stopped because "it was not changing anything." That's a big red flag for me. Makes me wonder if the doctor had you on a high enough dose for it to help you. Ideally, your TSH should be between 0.1 to 1.0 for you to feel good. And that sometimes takes a year to get someone of the correct dose. And then the person has to be on the medication for 6 months to 1 year a feel better.Someone who is euthroid or not being treated for hypothyroidism should have a TSH between 0.5 and 2.0. Anything over 3.0 is suspect for hypothyroidism.You can find more about thyroid disease at the following website:http://www.freewebs.com/thyroidThere's a link there to a great support forum.
    Anonymous 42789 Replies Flag this Response
  • What sort of testing did you have for Cushing's? I had Cushing's and it took years to find out what was wrong. You cannot prove (or disprove) Cushing's with one test, so if that's all you had please consider seeing another doctor who specializes in Cushing's. As for the thyroid issue, I've also found that many doctors don't know which tests to run nor how to interpret them if the results are unusual. Hypothyroidism can be either primary (meaning the thyroid isn't doing it's job) or secondary (meaning the pituitary isn't signaling the thyroid to do it's job). If you have secondary hypothyroidism, the results will be a lot different. Check out this site, it has a lot of good information on both Cushing's and thyroid problems:www.goodhormonehealth.comHope this helps!
    mertoo 6 Replies Flag this Response
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