Discussions By Condition: I cannot get a diagnosis.

Please help!

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: SarahB73
  • February 26, 2008
  • 01:41 AM

Hi my name is Sarah and I'm 34 years old. For a long time now I have felt realy lethargic and it's getting me down! Having been to the Doctors heaps of times for blood tests and each time they give me a different story.........'You're anemic and low in B12', then next time it's......'Do you suffer from Hemochromotosis as you're iron level is really high??' I don't know wheather I'm coming or going!!:( I suffer from really heavy periods and arthritic type pains down my legs before and after. So anyway I've just put it down to that and hope to have a hysterectomy soon as I don't want any more children. But part of me thinks something else is the problem and what if I have the surgery done and I still don't feel any better? I have had to quit my job because I am so exhausted all the time and my husband is frustrated with me because really we need the extra income. I just feel so helpless.......please, is there anyone out there that can help shed some light on what may be wrong with me?:)

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  • Doctors often don't have a lot of time to fish through your medical records and figure things out. I found this out the hard way, when I THOUGHT my doctors had been keeping track of all my thyroid symptoms over the years buried in my chart...Actually, they never dug through my chart and put my thyroid symptoms together...And I'm guessing they aren't digging through your file and trying to figure out what's wrong with you, either. After all, shouldn't you be the one asking THEM if you have hemochromatosis??? (if you do, by the way, it needs to be treated ASAP, as the iron will deposit in your liver and can lead to cirrhosis). Hemochromatosis can cause arthritis like pain in up to 50% of patients, plus other symptoms.So, here's what I'd do:1. Obtain copies of ALL your records2. Make a list of all specialists seen and when, and what their conclusions were- be as concise as possible3. Make a list of all labs done- with the dates they were done and the results- including the normal ranges4. Make a list of all studies, biopsies, etc done with the results5. Take these brief notes to one doctor who is willing to figure this all out. It sounds like you might have B12 deficiency, and if it's from pernicious anemia, you may be at risk of other autoimmune diseases.If they suspect you have hemochromotosis, you NEED to know this, as it can lead to liver cirrhosis that is irreversible. Please do not trust that your doctors are keeping track of all your labs and everything. They don't have time to do this, and you're the one who will ultimately pay the price.Sorry you don't have answers yet.I will keep you in my thoughts
    Anonymous 42789 Replies
    • February 26, 2008
    • 06:17 AM
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  • Whatever you do, do not get a hysterectomy. Click on "symptoms": http://www.canlyme.com/ When to Suspect Lyme: http://www.angelfire.com/biz/romarkaraoke/whento.htm Lymenet: http://flash.lymenet.org/ubb/ultimatebb.php Post that you need to find a Lyme Literate Medical Doctor and a reliable lab. You will need to be tested for Lyme and all coinfections. Consider microwave sickness, too: Do you have Microwave/EMR Sickness? http://f1.grp.yahoofs.com/v1/MLqvR8GaZldTPvsXLf1-4gU0LwqA1kYRuSE-VAw9XhO62B0j6NAn2yQVmBOGEPMVURb8vJp8xVS8z1HsPHE-w4wlPRYN6b3JvQ/Do%20You%20Have%20Microwave%20Sickness.pdf Electrical Sensitivity & Hypersensitivity: http://www.ei-resource.org/illness-information/related-conditions/electrical-sensitivity-&-hypersensitivity/ Bioinitiative Report: http://www.bioinitiative.org/report/index.htm Hi Blaze,Thanks for the advice. Although I seem to have a lot of the same symptoms as Lymes Disease, I live in Australia and have never heard of this tick. Are you sure it's not just an American thing?
    SarahB73 2 Replies
    • February 26, 2008
    • 10:01 PM
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  • Possibly you have a blood disorder. See a hematologist.
    aquila 1263 Replies
    • February 27, 2008
    • 03:37 PM
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  • Have you ever had your thyroid levels checked? TSH, T3 & T4? I am hypothyroid and have almost all the same symptoms....
    Anonymous 42789 Replies
    • February 27, 2008
    • 04:45 PM
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  • Possibly you have a blood disorder. See a hematologist. Thankyou, that was my next port of call.:) I'm sure he/she will get to the bottom of it all hey! xx
    SarahB73 2 Replies
    • February 28, 2008
    • 03:44 AM
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