Discussions By Condition: I cannot get a diagnosis.

Please help!

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: kchand3
  • January 22, 2008
  • 04:59 PM

Hello -

I am a 37 yr old female. Used to be very healthy - not so sure anymore.

To start - I dislocated my right hip when I was 6 yrs old. Did the whole body cast for 8 weeks, etc. Unfortunately my hip didn't heal right, and I was told at 18, that I should have it replaced due to severe Legg Calve Perthes.

Had the first THA in April 2006 - I loved it! I was almost pain free - for those of you who have lived a long time with terrible pain, you can only imagine how wonderful it was. 7 months after the surgery, I broke out in hives from head to toe. The next morning I woke up looking like The Nutty Professor or Stay Puff. I swelled up like a balloon (only on my face.) Went to the Dr.- was given Prednisone and sent home. The symptoms became more frequent, rashes every day, swelling on the right side of my body, numbness/tingling in legs and feet, metallic taste in my mouth- it became very scary. I had what seemed like every test done imaginable from allergies to arthritis to cancers. Nothing. I then found out about this metal test, and went to the surgeon. Found that I was very allergic to nickel and cobalt. Needed to have surgery again!

Had the second surgery in May of 2007 - had hives 6 weeks later, then nothing. I thought it was really over... :D

About 1 month ago, I broke out in hives, and have every day since, haven't swelled as bad as in the beginning, athough I am slightly swollen all the time (only on the right side.) The numbness and tingling have started up again, is now constant. About 3 weeks ago, I began having very bad dizzy spells daily, and just recently, nausea and minor aches and pains all over.

Any ideas? I have an appt with an internal med doc next month. I am getting pretty nervous again. Any thoughts would be greatly appreciated!

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7 Replies:

  • did you have an X-ray after the sugery?Maybe they left a tool inside of you cause that would explain the metal taste that you are getting
    rachel125 112 Replies
    • January 22, 2008
    • 05:08 PM
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  • Yes, and nothing. I don't have the metallic taste with this round of symptoms though. These seem almost autoimmune, or maybe neuro?
    kchand3 3 Replies
    • January 22, 2008
    • 05:20 PM
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  • what did they use to put you under for your surgery?and what kind of pain management did you take?
    rachel125 112 Replies
    • January 22, 2008
    • 07:38 PM
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  • The first surgery, I had a spinal block, and whatever they used to put me under (not sure) then dilottid (sp?) and percocet. They sent me home with percocet and flexoral. The second surgery, I just had percocet/flexoral. I should have said this the first time , but I am at work (sneaking.) I had a prelim DX of MS because of the other symptoms, so they wouldn't do the spinal block. My MRI/MRAs showed spots on the left side of brain (from the first neuro - had a 2nd opinion - that neuro doc didn't seem worried. I have a history of a lot of headaches, and was told that the spots could be from that.) I'm not real sure that it could be anything from the surgeries other than the fact that they seem to have made my immune system a mess. This whole thing has been so bizarre. I don't have a lot of faith in Drs. at this moment, I have been given the run around so much. The surgeon literally told me that there is no way that I could be allergic to the implant until the tests proved him wrong. I am sorry if this is all confusing. I appreciate your thoughts.
    kchand3 3 Replies
    • January 22, 2008
    • 08:30 PM
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  • Did you have blood transfusions and cadaveric bone use during the surgery? You should be tested for the opportunistic diseases and transferrable STD's. Also, was your implant titanium?
    rad-skw 1605 Replies
    • January 23, 2008
    • 11:34 AM
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  • No transfusions or cadaveric bone was used. Yes! My implant is titanium - although the testing showed no allergy to this. They put in a ceramic head, and a polyethelene liner- but the original stem is still in. I called the manufacture and had them fax me a print out of all the materials used in the implant. No cobalt or nickel. Thanks again
    kchand3 3 Replies
    • January 23, 2008
    • 02:17 PM
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  • yes- Try NAET naet.comthis is very effective to clear metal allergies. It is acupressure but it works permanently- it is a form of Oriental Medicine developed in California.Besides using NAET to retrain your body not to react to metal and stop allergies, I think that changing life style really helps.Best,Fruit.
    Eatafruit78 960 Replies
    • January 23, 2008
    • 09:21 PM
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