Discussions By Condition: I cannot get a diagnosis.

please help

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: kristynroger
  • October 6, 2007
  • 00:15 AM

i'm 24 year old female and for the last few months i have been experincing sever abdomial pain and vomiting the doctors have run test on my gallbladder and small intestines and they have all come back normal now i'm haveing hard and white stools any suggestions on what i might have or any suggestions at all would be helpful i just recently was reading about biliary duct cancer do you think that could truly be a possibilty ??
thank you
-- Signed , so tired of being sick -

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  • um white hard stools is NOT normal. Havent they tested it??? the stools?? I mean youd think they would have... if not.. bring some poop to them and tell them to test it cause thats not normal.
    PixieMischief 16 Replies
    • October 6, 2007
    • 06:04 AM
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  • Lack of bile in the poop makes it white, so you might have a common bile duct obstruction. Probably a stone. But just to make sure, get a CT of the abdomen/pelvis. Also, does the poop have a lot of fat in it? (you can see an oily sheen on the toilet water), this also might signify malabsorption issues. They need to look at your pancreas and the best way is with a CT. They used to do ERCP's in that area, but I think they can do better imaging now and it is not invasive. They should do a stool test for fat and check out the bile duct area to see if something is pressing on the duct. Have they done lab work for pancreatitis? serum amylase and lipase.
    rad-skw 1605 Replies
    • October 6, 2007
    • 11:45 AM
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  • Also have them check out your liver. Do you have jaundice? (yellow whites of the eyes and skin?)
    rad-skw 1605 Replies
    • October 6, 2007
    • 11:52 AM
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  • i do have elevated liver enzymes , and i have had ct's and hida scans and ultrasounds. and also i forgot to mention that i do have GERD , sometimes i just think the doctors think i'm crazy , but i'm not i really am sick i have nooooooo energy at all i sleep atleast 10- 12 hours a day i've had to quit work because i'm nauses and vomiting atleast 3-5 times a week so anymore suggestions would be great and any list of test that you think might be helpful would be greatly apperciated thank you P.S i've also lost my appettite and have lost about 20 pounds in about 3-4 weeks
    kristynroger 1 Replies
    • October 7, 2007
    • 01:39 AM
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  • Just some suggestions:Sounds like something is affecting your liver... because the liver enzymes are elevated (which can indicate there might be liver damage going on); anorexia/wt. loss, vomiting, extreme proglonged disabling fatigue. The white stools can indeed be a very serious sign*, bring a sample to a dr if you must. Severe abdominal pain should not be ignored; especially when you have so many other symptoms. Other areas of concern are the pancreas and the gallbladder.BTW having are you having any fevers?* You are sick.... the problems you are having are real and the drs must be listening somewhat or they would not have done all the tests they have already done; but if they can't find the answer and they know you are still getting sicker you need to go to another dr not affiliated with them and ask the dr to find out why you are not getting well and nobody can find out why you are so sick.At least your doctors have done some testing. I had a lot of tests before I was diagnosed for a gall bladder problem. One test was done twice; the second test on a newer better machine at a better facility. My surgeon sent me to get a nuclear scan of my liver, pancreas and gallbladder twice. The second test got me the answer I needed. Suggetsion: Find a dr good a diagnosing liver ailments in your community; he/she can rule out or in on the many different things like gall bladder disease, mono, hepatitis, pancreatitis that can be causing your liver symptoms. Another Suggestion : Get to a doctor or teaching hospital as soon as possible who will listen to you and do not delay. If your drs aren't listening find another and get a second neutral opinion; try your local teaching hospital perhaps (though my teaching hospital missed the diagnosis for me and I had to go to a surgeon to get the test to find my diagnosis). My dr. gave me the referral to a surgeon for a consult because he knew I was very sick despite the a lot of expensive tests not showing much; he had me do a second scan with the CK injection.Mono (EBV) and some other viruses (hepatitis) can cause those problems; including yellowing of skin/eyes (jaundice).*keep in mind gallbladder problems can affect the liver; ie. stones blocking the duct. A nuclear scan with cholestykinin could show if bile is getting into the intestine or not from the gallbladder.I eventually had to consult a surgeon when I had similar symptoms yrs ago, who ran the nuclear scan test on my liver/ pancreas, and gall bladder for me. When cholestykinin was injected to make my gall bladder contract it showed very little bile was getting into my intestine. Never saw or found a stone; the whole time I was sick and getting sicker. Would have suffered longer had I not gotten the special test; I even could have died had I not gotten the test.Some drs I have found will not listen well to female patients with chronic health problems. :( That is why you must push them to figure out what is wrong with you; show the dr(s) your list of symptoms in your first post.* GO to another dr for another consult; find one affiliated with your dr and insist he/she listen to you if you must.IMO I would also not tell them you have been reading about billary duct cancer (even though it is understandable that you want to seek out your answer because the drs aren't seeming to because the drs may indeed think you are crazy and stop listening to you and forget the main symptoms you are having.) Sadly there are some drs won't listen to patients as well if they tell them they are reading about things like "billary cancer".Since you are now out of work; if you live in the US you may have aid available in your state. Go to the state DSHS office if you need aid fianacially to get in and see a dr who can work up your illness some more. Please don't wait; the liver is an important organ and when it is sick it can really screw up your whole system in turn. You can get very sick in a hurry when things go wrong with it. To be honest; your symptoms sound like you are pretty ill. *Stay away from alcohol if you don't already abstain-- it is bad for the liver and you don't need it in your condition. *BTW The white stools (how many and how long has that been happening?)can also be from the barium if you passed it right after that CT and they used barium for the test. But if you keep passing them after enough time has gone by for the barium to leave the system; you need to have the stool checked. I just had a ct and passed some small white stools right after the test for about 1-2 days; most of the barium I upchucked in the parking lot ;).
    Anonymous 42789 Replies
    • October 8, 2007
    • 10:29 PM
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  • I had a problem with gall bladder sludge, the precursor to stones. It's all the ingredients to make a stone, but it hasn't solidified yet. It just gunks up all the ducts and makes you feel like you have galls stones.. Also, when you get a gall bladder ultra sound, make sure they try doing it with you on your stomach and get up under your ribs, they finally found my gall stones this way..The pathology report showed my GB was full of sludge and tiny stones. The Drs should have been aware of sludge and it's problems and that it doens't show up on any of these fabulous tests, but instead made me feel like a crazy hypochondriac for a year and 1/2 while I suffered with GB attack after GB attack, boy that was lousy!
    Anonymous 42789 Replies
    • October 9, 2007
    • 03:22 AM
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  • Yes gall bladder sludginess can do it, or sometimes the gall bladder just stops working (like with folks who have had uncontrolled blood sugar due to diabetes, the elevated blood sugars can really affect the nerves in your GI tract especially when you have elevated bloodsugar for a long time). Strictures, scarring of the duct like from stones or infections can also cause the bile to not flow freely. Or stones up in the billiary tract itself . Rarely, cancer can affect the gall bladder or its ducts.The nuclear scan of the gall bladder and liver with the CK (cholestykinin hormone injected during the scan can show if the bile is getting into the intestine or not) and how much bile is getting into your intestine. They also scan the pancreas at the same time I believe, mine was anyways. Interesting about the Ultrasound on while you lay on your stomach... I never got scanned that way and wish they had now. ;) My gall bladder problems were years ago though so maybe the tech did not know then. Maybe had my first Usound was done and they did scan me from the back I would not have went so long suffering while trying to get a diagnosis.I had a problem with gall bladder sludge, the precursor to stones. It's all the ingredients to make a stone, but it hasn't solidified yet. It just gunks up all the ducts and makes you feel like you have galls stones.. Also, when you get a gall bladder ultra sound, make sure they try doing it with you on your stomach and get up under your ribs, they finally found my gall stones this way..The pathology report showed my GB was full of sludge and tiny stones. The Drs should have been aware of sludge and it's problems and that it doens't show up on any of these fabulous tests, but instead made me feel like a crazy hypochondriac for a year and 1/2 while I suffered with GB attack after GB attack, boy that was lousy!
    Anonymous 42789 Replies
    • October 11, 2007
    • 06:08 PM
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  • You sound like you went through the same ***l I did... I wonder how many others of us go through a long period of suffering before we get our diagnosis for gall bladder disease all because there were no obvious stones.I am thankful for that scan that finally diagnosed my gall bladder problem; I only wish I had the scan much earlier.Gall bladder attacks and billiary colic can be painful and debilitating; the lucky folks are the ones who get a quick diagnosis and get surgery before other complications set in.The Drs should have been aware of sludge and it's problems and that it doens't show up on any of these fabulous tests, but instead made me feel like a crazy hypochondriac for a year and 1/2 while I suffered with GB attack after GB attack, boy that was lousy!
    Anonymous 42789 Replies
    • October 11, 2007
    • 06:15 PM
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  • Have them check you for pancreatitis.
    rad-skw 1605 Replies
    • October 13, 2007
    • 10:47 AM
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