Discussions By Condition: I cannot get a diagnosis.

Please help....

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • March 22, 2007
  • 10:09 PM

I have been having chronic pain for a long time, I have many things already diagnosed, but I am never well. I have a heart condition called PPCM, it was a pregnancy induced CHF, my EF 6yrs later is 45%. I also had a stroke at the time and see a nuerologist evry 6 months for that and headaches. I have a blood clotting disorder called Antiphosidlipid syndrome. I hemorraged and had a hysterectomy at age 35, then one yr later Ihad an ooopherectomy becuase they thought I had cancer..and praising God it wasn't cancer. I also have AVN of my right hip. All of these were diagnosed when I wasn't even aware of them. My hsband thinks I have lupus, and I did test postive for the antibody, but previous lupus panals have been negative or borderline.

any ideas..I know i sound like I'm making it up, but I am at a loss, all my doctors are trying, but I think I just need to get them all on board together...

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