Discussions By Condition: I cannot get a diagnosis.

Please help, 1 year of symptoms no diag!

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: Anonymous
  • May 10, 2009
  • 01:50 PM

Symptoms:
Began as dull ache in perenium that would come and go. As time progressed the area began to tingle and I would get shooting pains in the groin area (between prostate and lower back area) once a week or so. Then i began to feel tingling in my left foot and left hamstring. Now the tingling has gone into both feet (and I have lower back pain and some lower abdominal pressure-not sure if its related). The symtoms have lasted for the past year.

I do lift weights 4 times per week and have occasional mountain biking outings. I am a 24 year old male.

I have been tested for the following:
General Medicine- STD testing, general bloodwork, MRI on lumbar, thoracic, and cervical spine, ultrasound on testicles, took 3 weeks of antibiotics.

Urologist - prostate exam (not fun), prostate specific bloodwork

Orthopedic - everything fine with reactions - referred to physical therapy and neurologist

Physical Therapy - some stretches would flush out the tingling for a few minutes only to return soon after.

Neurologist - ran emg of lower extremity, nerve specific bloodwork, tested for multiple sclerosis

Why have none of these people recommended an ultrasound of my perenium where the pain is most? My neurologist said that CT wouldn't show much more than ultrasound and would give me unneeded radiation exposure.

All of these tests came back with nothing wrong!!! It is very frustrating not to know what is wrong with me as I am afraid that it is something serious (cancer or disease). Would cancer hints come out in bloodwork?

I did some research and here are my initial thoughts on what it might be. Bacterial infection and I didn't take antibiotics long enough, Sciatica, pinched nerve, or maybe a tumor causing nerve pressure. I am just really freaked out and would appreciate any advice.

Thanks for any responses and for reading.

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14 Replies:

  • Pehaps you are causing some type of nerve damage when you lift weights. Important to lift properly. Could also be a small tumor? Tingling means nerves being affectedBest of luck
    Anonymous 42789 Replies Flag this Response
  • You were not taught how to lift weights properly and you are causing damage to nerves in spine. These travel outward to the rest of the body including limbsstop lifting weights before you cause permanent damage
    Anonymous 42789 Replies Flag this Response
  • Take a break from the exercise for a week or two and see what happens. I'm no doc. I'll tell you this, every person who ever told me they have frequent headaches appeared to respond to my putting pressure on a nerve in the back of their neck. I didn't heal them, I just asked them if the same pain they were feeling intensified when I dug my thumb into different areas on the occipitals. They said that it intesifies the pain they already had and in the same places. After trigger point therapy some years back I became curious and it seems to me that most headaches are due to neck stress.Obviously your not having headaches but maybe you have something pinched in your back? If a doc thought it was due to back problems he'd tell you to stop exercising and take IBU and drink water and see if it helps.You know you, and I know it can be frustrating for others to be presumptuous, but maybe it would help?Hope it works out, G-d Bless
    Anonymous 42789 Replies Flag this Response
  • Being that you are so young, and it changes with movement.. I would look into your thoughts of Sciatica, pinched nerve ideas...that's what it sounds like to me:)
    Anonymous 42789 Replies Flag this Response
  • I am sorry your going through this. Ask your physician but it seems like an infection would show up in bloodwork. I can tell you from experience that general bloodwork may not show cancer. Will your pcp listen if you ask for an ultrasound? Maybe you can try a pain management physician. Not to give you meds and send you on your way but they are also spine docs and may be able to narrow the field for you.
    Kawendie 12 Replies Flag this Response
  • wow this is a really great forum, thanks for all of the responses and support. The pain is tolerable and comes and goes but I just want to find the source. I bought a trigger point therapy book and will try some of the recommendations along with stretching. I'm going to an OD general physician again Tuesday to see what my options are to detect any cancer or ultrasound my perenium. How would they test for cancer? I would appreciate any other thoughts or ideas. I just don't get how a pinched nerve can cause such a dull ache in the perenium/prostate area. Can that correlate? I tried stopping the gym for 2 months and it persisted. I have a pretty good knowledge of proper technique in lifting but am guilty of not stretching properly. I do not disagree that this could have caused whatever is happening. Thanks again!!!
    Anonymous 42789 Replies Flag this Response
  • Also, can any of these symptoms be a result of something that would cause sterility?
    Anonymous 42789 Replies Flag this Response
  • Okay, the symptoms described would be less associated with an onological process of some type and remember that discomfort or pain is typically the final stage or last symptom in cancer. Other symptoms become salient far earlier. I'm not as concerned about the weight-lifting as the mountain bike because injury to the perineum can result from using certain types of seats that result in blunt impact to the area mentioned. Although this is typical, symptoms that have persisted for a year would be exceptional so unless you're continuing to ride the bike regularly, then it's less likely to be the cause. Depending upon the type of weight-lifting, ie strength training using squats etc., then cord compression could be a factor. An MRI or myelogram if necessary, would general rule out any abnormalities. Since an MRI was performed, it is less likely to be the problem. Realize that CT scans are not magical and many people insist on obtaining such studies in the belief that whatever cannot be found by any other means will be revealed through a CT scan. This isn't the case and imaging is performed to confirm what other testing indicates, rather than merely looking around in the hopes of locating a cause for symptoms. At this point, in the face of tests that all are conclusively negative, you might seek a referral to a pain clinic to have the discomfort assessed and treated to determine if relief can be sought. If the neuropathy in the lower limbs continues, then obtain a repeat EMG to discern whether any change has occurred with regard to the original test. Best regards, J Cottle, MD
    JCottleMD 580 Replies Flag this Response
  • It definitely sounds like nerve compression. The tingling in the hands, fingers, things like that are often caused by nerve compression. What causes the compression can be a lot of different things. I suggest going to the doctor and getting X-Rays, maybe see if there are any subluxations (mis-alignments) that could cause it (thats the problem I frequently have), or could also be disc problems, and other things.
    Plastikfear 64 Replies Flag this Response
  • Thank you for your response. I do perform squats and do leg exercises on a regular basis. I am just curious as to why no mri or imaging has been done to the perenium area considering that is where the majority of the tingling twitching and dull aching sensation that is there. I will talk to the doctor about it on Tuesday and give you an update.Thanks again!
    Anonymous 42789 Replies Flag this Response
  • My gf has probs with her perenium too.. mostly itching, dunno about tingling, but hopefully we'll get to hear what the doc has to say about yours...
    Plastikfear 64 Replies Flag this Response
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  • Blood and urine tests on just about everything performed by my doctor. Only thing that came back was elevated protein levels (2nd time this result came back in a month). I do take whey protein before and after I work out though.Could elevated protein which could possibly be a kidney problem potentially relate to tingling and numbness in my perenium and feet? I also have some lower back pain which would correlate with something wrong with my kidneys. I just got laid off and my insurance ran out this past Friday so I'm kind of out of luck w/ benefits. :-(Any ideas?Thanks everyone
    Anonymous 42789 Replies Flag this Response
  • I am just curious as to why no mri or imaging has been done to the perenium area considering that is where the majority of the tingling twitching and dull aching sensation that is there.You stated in your first post that a lumbar MRI had been performed.....that would show abnormalities (as close as they can get anyway) in the area of your perineum. They can't isolate that area.....well, maybe they could with an ultrasound, but I don't see any benefits of doing so. There is not much in the actual area of your perineum that can cause the radiating pain and tingling you mention-- it would be more spinal related. Or, your piriformis muscle deep to your glutes can compress the sciatic nerve, also causing radiating numbness and tingling in your legs-- this would not show in an MRI.Could elevated protein which could possibly be a kidney problem potentially relate to tingling and numbness in my perenium and feet? I also have some lower back pain which would correlate with something wrong with my kidneys. Your diet, even a high-protein diet, won't cause elevated protein in your blood or urine. Only malnutrition would elevate blood protein levels and it doesn't seem like that would be a factor for you. Elevated protein levels in your urine sample could be indicative of kidney disease.....but it sounds like you got a full blood-work panel that would have ruled out kidney issues. Yes, kidney trouble can cause low back pain......but I've never heard of that radiating down the legs or going to the groin area. I don't think that's the problem.Elevated protein in blood is indicative of chronic infection or inflammation. Or, more rarely, some types of bone marrow disease. Since you have just lost your job (and insurance) check out the Cobra programs available to sustain your insurance. You really do not want to allow it to lapse, especially since this issue will now be considered a preexisting condition. Best of luck to you. I think your problem is hypertrophy of your piriformis muscle. Check into it. You also need to get those protein levels down or at least find the cause of the elevation. Also, with your history of mountain biking.....compression injury to the perineum itself is a possibility.
    Harmonium 322 Replies Flag this Response
  • There hasn't been activity on this thread in over a year and I was wondering if you or your doctors ever got to the bottom of your symptoms? I share a lot of your symptoms and doctors are stumped. Many clear tests (blood, urine, MRI, etc) but symptoms persist.If you see this and don't mind sharing what's happened since your last post, I'd appreciate any insight you may have gained over the last year.Symptoms:Began as dull ache in perenium that would come and go. As time progressed the area began to tingle and I would get shooting pains in the groin area (between prostate and lower back area) once a week or so. Then i began to feel tingling in my left foot and left hamstring. Now the tingling has gone into both feet (and I have lower back pain and some lower abdominal pressure-not sure if its related). The symtoms have lasted for the past year. I do lift weights 4 times per week and have occasional mountain biking outings. I am a 24 year old male. I have been tested for the following:General Medicine- STD testing, general bloodwork, MRI on lumbar, thoracic, and cervical spine, ultrasound on testicles, took 3 weeks of antibiotics. Urologist - prostate exam (not fun), prostate specific bloodwork Orthopedic - everything fine with reactions - referred to physical therapy and neurologist Physical Therapy - some stretches would flush out the tingling for a few minutes only to return soon after. Neurologist - ran emg of lower extremity, nerve specific bloodwork, tested for multiple sclerosis Why have none of these people recommended an ultrasound of my perenium where the pain is most? My neurologist said that CT wouldn't show much more than ultrasound and would give me unneeded radiation exposure. All of these tests came back with nothing wrong!!! It is very frustrating not to know what is wrong with me as I am afraid that it is something serious (cancer or disease). Would cancer hints come out in bloodwork? I did some research and here are my initial thoughts on what it might be. Bacterial infection and I didn't take antibiotics long enough, Sciatica, pinched nerve, or maybe a tumor causing nerve pressure. I am just really freaked out and would appreciate any advice. Thanks for any responses and for reading.
    pennaguy1974 1 Replies
    • August 26, 2010
    • 02:11 AM
    • 0
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