Discussions By Condition: I cannot get a diagnosis.

Please Hellllllllllllllllllllllllllllp me!!!!!!!!!

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • August 11, 2008
  • 02:25 AM

I am a 44 y/o female. For the past 8 years I have developed demyelinating neuropathy of my extremities (arms and legs), double vision, vertigo, nystagmus, hammer toes, cramps (extremities), trigeminal neuralgia, muscle pain and tenderness. MRI, MRV, MRA of my brain showed 2 congenital arteriovenous malformations. A battery of blood tests were done and there were no evidence of any collagen disease. My platelets were 900,000. bone marrow biopsy was performed and ended with a Dx of essential thrombocytosis. Sed rate is always between 40 and 45. There is moderate to severe muscle atrophy of legs, hands and arms. Its getting harder for me to walk and do my ADL'S. I was diagnosed fibromyalgia, essential thrombocytosis and a R/O of Charcot-Marie-Toot Disease. I think that a wrong diagnosis was given. I need to know what is causing all these symptoms.

Reply Flag this Discussion

2 Replies:

  • Hi, hope you're better...I assume you are getting treatment for all this. It sounds like you may have an autoimmune reaction to some previous infection.But, you might consider that you may have some kind of allergy, say to foods. Particularly, meats, since your symptoms are demyelination..are you being exposed to some outside source (i.e., foood) of myelin that is keeping your body inflamed against itself?Also, if you are allergic to any antibiotics, remember that most animals that are raised for food are given antibiotics, and when you eat them, you are may be eating antibiotics that you are allergic to.Well, this is a start...maybe it helps. Marionstar
    marionstar 228 Replies
    • August 12, 2008
    • 11:41 PM
    • 0
    Flag this Response
  • Hi, hope you're better...I assume you are getting treatment for all this. It sounds like you may have an autoimmune reaction to some previous infection.But, you might consider that you may have some kind of allergy, say to foods. Particularly, meats, since your symptoms are demyelination..are you being exposed to some outside source (i.e., foood) of myelin that is keeping your body inflamed against itself?Also, if you are allergic to any antibiotics, remember that most animals that are raised for food are given antibiotics, and when you eat them, you are may be eating antibiotics that you are allergic to.Well, this is a start...maybe it helps. Marionstar
    marionstar 228 Replies
    • August 13, 2008
    • 01:34 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.