Discussions By Condition: I cannot get a diagnosis.

ping-pong size lymph nodes in groin

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • September 14, 2009
  • 00:51 AM

Since the end of April 2009, I have had various pain and symptoms. Seems like it all began with a visit to the dentist where they poked my gums for periodontal disease because 5 days later I was in the hospital for cellulitis.
Altho, it did not seem like cellulitis to me. While my right neck and chest area were swollen - it was not very red. Swelling was marked and prominent I was put on an IV anti-biotic. That did help at that time. The blood culture did not grow any cellulitis or other infections.
I did notice tho, my left chest was beginning to swell and that I had lymph nodes the size of shooter marbles in my groin area. These symptoms have not gone away - in fact in the past 10 days the swelling in chest is worse and travels down the arm. I can feel my shirt getting tighter. And the lymph nodes are now the size of ping-pong balls. They are smooth, cannot be moved but do not hurt.
I did have one other lymph node that enlarged and stayed hard, fixed but no pain. That one was behind my right jaw bone at the back of the ear. In July it was removed and found to be normal lymph tissue; attached to it was a cyst that was found to have no abnormal tissues/cells. The cyst was a surprise as it could not be felt but took up much of the hollow space on my cheek area. An ENT doc did this surgery but he did not offer any assistance in what may be going on in other parts of my body and said to go back to my general doc with my questions.
A CBC of my blood shows me to be in perfect health. My only un-average reading is a low potassium level.
I have had a CT Scan of my lower abdomen and pelvis about 2 months ago. This showed multiple lymph nodes but just a little larger than average and nothing the CT-Scan DR would deem un-ordinary.
I have noticed I will have swelling in my trunk that would prevent my pants from fitting (too tight) and then at other times those pants will just fall off of me (I can't keep them up) - all in the same day. And it fluctuates back and forth.
I also have pain in my hands/fingers first thing in the morning - prob swelling. the joints don't hurt but the skin does. I also feel 'something' in my nasal cavity on the left side - not a lump but more what feels like a burr or 'star' under the skin, inside the nose.
I have been to four docs - none can tell me anything. The one told me to go back to the orig doc as there is no reason for a 2nd opinion and there is prob nothing wrong with me.
The last doc I saw says it is not unusual to have lymph nodes that just get big and enlarge over time - that it is nothing to worry about.
I don't know what else to think or do. I know I have stabbing, burning pain in my chest area and that it is swollen. I also have occasional what feels like bone pain right in the front of the hip bones on both sides. This new doc told me it is muscle pain I am mis-interpreting as bones typically do not hurt.
I know this was long. Thanks for reading and any insight will be helpful.

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  • Since the end of April 2009, I have had various pain and symptoms. Seems like it all began with a visit to the dentist where they poked my gums for periodontal disease because 5 days later I was in the hospital for cellulitis.Altho, it did not seem like cellulitis to me. While my right neck and chest area were swollen - it was not very red. Swelling was marked and prominent I was put on an IV anti-biotic. That did help at that time. The blood culture did not grow any cellulitis or other infections.I did notice tho, my left chest was beginning to swell and that I had lymph nodes the size of shooter marbles in my groin area. These symptoms have not gone away - in fact in the past 10 days the swelling in chest is worse and travels down the arm. I can feel my shirt getting tighter. And the lymph nodes are now the size of ping-pong balls. They are smooth, cannot be moved but do not hurt.I did have one other lymph node that enlarged and stayed hard, fixed but no pain. That one was behind my right jaw bone at the back of the ear. In July it was removed and found to be normal lymph tissue; attached to it was a cyst that was found to have no abnormal tissues/cells. The cyst was a surprise as it could not be felt but took up much of the hollow space on my cheek area. An ENT doc did this surgery but he did not offer any assistance in what may be going on in other parts of my body and said to go back to my general doc with my questions.A CBC of my blood shows me to be in perfect health. My only un-average reading is a low potassium level. I have had a CT Scan of my lower abdomen and pelvis about 2 months ago. This showed multiple lymph nodes but just a little larger than average and nothing the CT-Scan DR would deem un-ordinary.I have noticed I will have swelling in my trunk that would prevent my pants from fitting (too tight) and then at other times those pants will just fall off of me (I can't keep them up) - all in the same day. And it fluctuates back and forth. I also have pain in my hands/fingers first thing in the morning - prob swelling. the joints don't hurt but the skin does. I also feel 'something' in my nasal cavity on the left side - not a lump but more what feels like a burr or 'star' under the skin, inside the nose.I have been to four docs - none can tell me anything. The one told me to go back to the orig doc as there is no reason for a 2nd opinion and there is prob nothing wrong with me.The last doc I saw says it is not unusual to have lymph nodes that just get big and enlarge over time - that it is nothing to worry about.I don't know what else to think or do. I know I have stabbing, burning pain in my chest area and that it is swollen. I also have occasional what feels like bone pain right in the front of the hip bones on both sides. This new doc told me it is muscle pain I am mis-interpreting as bones typically do not hurt.I know this was long. Thanks for reading and any insight will be helpful.Please be very careful with this. My 27 year old daughter had a swollen lymph node in her groin area. It was as big or maybe slightly bigger than a ping-pong ball. Her family doctor was treating her for an infected lymph node. She was being treated with antibiotics. They tried several different antibiotics with no results.After app. 5 months, the family doctor referred her to a surgeon for biopsy of this node. It tested positive for cancer. She had Non-Hodgkins lymphoma. She is taking treatments for it now and we are told that the outlook is good. I just wanted to tell you our story. A retired doctor friend of mine told me that any thing to do with a lymph node should be treated aggressively!I don't want to scare you, but I just wanted to tell you to be very careful with it because of what happened to us.
    Anonymous 42789 Replies
    • September 18, 2009
    • 10:47 PM
    • 0
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  • Thank you for the information. I hope you daughter does well. I am thankful she has docs who listen and who were attentive enough to care to look further.Actually, I have thought about Non-Hodgkins lymphoma and more recent even an Adrenal problem - something has to be the culprit for the way I feel. The doctors here seem to think my blood work is normal and I am just reporting pain that really doesn't exist. This is almost more maddening than the pain and the worrying - almost like I have to defend myself that I really am not crazy.Can I ask, had your daughter's bloodwork been normal prior to the biopsy? What made her doctor say lets get you to a doc who will biopsy the node? Was she having other symptoms than the swollen node?? Thanks for your time and concern.
    Anonymous 42789 Replies
    • September 19, 2009
    • 02:17 AM
    • 0
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