Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: shannonwooten
  • November 29, 2007
  • 10:02 AM

How likely is it for Pheochromocytoma to be passed on genetically? My Mother passed of Pheo when I was 2- she had had it for 4 years which mean she was pregnant with me while she had Pheo.

I don't want to be a worry wart- but I am curious about a few things.
-How likely is it that she passed Pheo to me through genetics?
-Should I do genetic testing to look for those genes?
-Is there lymph nodes in the very back of your neck near your spine (near the hair line?)

I discovered a lump in my neck that has been there for a few months. It is in the very back of my neck- pretty much on the right side of my spinal chord, near my hair line. The doc took an xray (havent got the results yet) and said something about lymph nodes for a breif second.

Out of the Pheo symptoms... I can relate to the ones with stars beside it...

Weight loss or gain (Lil weight loss)
Diabetes-like symptoms
Angina Chest Pain
**Clammy skin Cold skin
Feeling of impending doom
**Rapid pulse
Rapid breathing
Breathing difficulty
Vision disturbance
Impaired vision
Orthostatic hypotension
Abdominal pain
Flank pain
Paresthesia (tingling, prickling, numbness or burning sensations)

Lately I have been having headaches for the last month, and sweaty hands/feet. Also, the lump in my neck has been hurting more... like I have a really stiff neck.
Do I have anything to worry about??


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3 Replies:

  • Pheochromocytoma is a rare problem, but I do think you have symptoms of something hormonal. Your symptoms could be from hyperthyroidism. Here are the symtpoms (you may not have them all): Excessive sweating Heat intolerance Nervousness; agitation; anxietyNight sweatsIncreased bowel movements TremorRapid heart rateWeight loss Poor concentration FatigueIrregular and scant menstrual flow You need to have these tests... TSHFree T4Free T3Anti-TPOAnti-TG Remember you can be hyper even if your tests come back in the high/low normal range. Kiera
    Anonymous 42,789 Replies
    • November 29, 2007
    • 04:25 PM
    • 0
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  • Here's some info:http://www.endocrineweb.com/pheo.html Seems like you should see an endocrinologist.
    Monsterlove 2,921 Replies
    • November 29, 2007
    • 06:07 PM
    • 0
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  • Pheochromocytoma can be caused by the same gene disorders that also cause glomus tumours and paraganglioma. The most common gene disorder is SDHD, but the disease doesn't inherite from mother to sun or daughter. Other related gene disorders can be inherited from both father and mother. Likely? No, very rare.Genetic test? Not at the moment, first get a proper diagnosis.Lymph nodes in the back of the neck... Not likely related to pheochromocytoma but not impossible.successMaggy
    Anonymous 42,789 Replies
    • January 22, 2008
    • 04:46 PM
    • 0
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