Discussions By Condition: I cannot get a diagnosis.

petit mal seizure like, brought on by visual cue, or thought.

Posted In: I cannot get a diagnosis. 19 Replies
  • Posted By: mimewar
  • July 21, 2010
  • 01:09 AM

I was told, years ago, this is either petit mal epilepsy, or hypoglycemia by a doctor. I want to May Clinic about this, but couldn't produce an "episode" while hooked up to the machines. The more research I do though, neither of these sound like what happens to me. I'll do my best to describe it.

Usually a visual cue, certain objects ( always the same things, even in different places) will cause an episode. I feel, what feels like to me to be, a surge in blood pressure, difficulty in speech and thought, pressure in my head, foggy headedness( is the best way to describe it). The epidode itself lasts 5-15 seconds, but afterward I am wiped out. I mean BEAT. Groggy, tired, difficult to breathe, little desire to breathe ( the breathing symptoms feel like a general pain releiver like morphine) I can feel myself space out, and I can talk during, and maintain function, but it's difficult.
What the heck is this!? I noticed when I was taking Omega fish oil pills, the frequency decreased dramatically. The fact that they are generally brought on by visual cues makes me think psychological, but fish oil pills seemed to help makes me wonder.
Hypoglycemia, Petit Mal seizures, PNES, you tell me.
Shane

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19 Replies:

  • i have a couple of ideas.. but need to know of what the visual clues which set this off are? This wouldnt be hypoglycemia if just triggered by visual cues..
    taniaaust1 2267 Replies Flag this Response
  • The visual clues are always the same things, like I said, but can be in different places, and sometimes random things will set them off.here goes.The occasional fire hydrant will set one off, the yellow plastic coverings that go over the steel cables that keep telephone cables up, fire alarm levers( the red ones you pull to set off an alarm if there is a fire) some of the red EXIT signs that seem to be EVERYWHERE nowadays. Those are the ones that come to mind. I'm in the U.S., I hope those make sense.I can feel these coming on, but unless I am quick enough to change my thoughts, I can't stop themThank you for the reply!Shane
    mimewar 11 Replies Flag this Response
  • One more thing. It never involves flashing lights, I can play video games, stare at strobe lights, police cars, TV, no problem. The other list I sent, well those thigns can set me off on the wrong day.Shane
    mimewar 11 Replies Flag this Response
  • I can feel these coming on, but unless I am quick enough to change my thoughts, I can't stop them Certainly a psychological issue (I'd asked about the cues in case it was something like "air freshener's" in such a case it would of been likely to be a reaction to a chemical response). I still have something else rather than just psychological in mind so need to know more about you. How are you socially? Do you ever have trouble socially? making friends? being close to people? etc. Do you tend to take people literally? Have trouble getting jokes? Is there anything other than this issue which may not be quite normal?
    taniaaust1 2267 Replies Flag this Response
  • I hate it when doctors ask me this lol. But in the interest of getting to the truth, here goes. I am a sociopath, I understand fondness, but not love. I only feel regret or remorse if consequences are involved. I know right from wrong, I'mm just not properly motivated to distinguish. I do what's right more because I'm affraid I'll be punished. I have always been the "weird one" I act goofy, I suffer from ADHD, alcalculia(math disability). I'm the "funny guy", but some jokes, if too elaborate, take me a minute to digest. I take people very literally. too literally if you ask anyone I know. Socially I am awkward, but manage to fit in by mimic. I didn't have trouble making friends, but I never keep friends long. I tend to have friends out of boredom, not companionship. as far as being close to people, physically it makes my skin crawl when strangers touch me. Emotionally, I can only get so close. I don't fully understand love, so there is only so far I can go.Any of this help?
    mimewar 11 Replies Flag this Response
  • Also, I have been told I am clinically depressed, though this is not constant, and much better than it was when I was a teen. I am 32 now, these "episodes" started when i was 12. I remember the first one vividly. I was at a common street corner, and looking at the crosswalk button. I had this surge, and then felt dizzy, and had to sit down. I nearly blacked out. I have had some that severe, but most make my head hot, dizzy, foggy, then extremely tired.ThanksShane
    mimewar 11 Replies Flag this Response
  • I hate it when doctors ask me this lol. But in the interest of getting to the truth, here goes. I am a sociopath, I understand fondness, but not love. I only feel regret or remorse if consequences are involved. I know right from wrong, I'mm just not properly motivated to distinguish. I do what's right more because I'm affraid I'll be punished. I have always been the "weird one" I act goofy, I suffer from ADHD, alcalculia(math disability). I'm the "funny guy", but some jokes, if too elaborate, take me a minute to digest. I take people very literally. too literally if you ask anyone I know. Socially I am awkward, but manage to fit in by mimic. I didn't have trouble making friends, but I never keep friends long. I tend to have friends out of boredom, not companionship. as far as being close to people, physically it makes my skin crawl when strangers touch me. Emotionally, I can only get so close. I don't fully understand love, so there is only so far I can go.Any of this help? Yes that is a big help and i believe I understand what is going on with you.. its what i actually thought. You have Asperger's syndrome
    taniaaust1 2267 Replies Flag this Response
  • I wondered if you had Asperger's syndrome from your original post. People with Asperger's often can react strangely to strange things. Your reaction .. is a common one for many with Asperger's when it comes to faces, but ones with Asperger's can react and react quite dramatically to the oddest things and afterwards they are left feeling completely drained. I think some with Asperger's take fish oil (i cant now thou remember why). It isnt uncommon for one with Asperger's to actually think that one is a sociopath. (I've recently been offically diagnosed with Asperger's myself at the age of 39 yrs, thou Ive had issues all my life but none of the many doctors, psychologists or psychriastrists picked up on it. I had to go to specialists in Autism/Asperger's to be diagnosed... I often wondered if i was a sociopath due to some of the stuff i used to think and feel). Asperger's people take things literally... as they think in "black and white" terms. Socially I am awkward, but manage to fit in by mimic. Asperger's people often have to mimic to fit into society. I didn't have trouble making friends, but I never keep friends long. I tend to have friends out of boredom, not companionship. as far as being close to people, physically it makes my skin crawl when strangers touch me. Classic Asperger's. Also, I have been told I am clinically depressed, though this is not constant, Asperger's people can often be mistaken for being depressed... and they actually also do get depression more commonly than neurotypical "normal" people. I suggest you check the Aspie forums out so you have more understanding what im positive your issue actually is http://www.wrongplanet.net/forums.html
    taniaaust1 2267 Replies Flag this Response
  • Also, I have been told I am clinically depressed, though this is not constant, and much better than it was when I was a teen. I am 32 now, these "episodes" started when i was 12. I remember the first one vividly. I was at a common street corner, and looking at the crosswalk button. I had this surge, and then felt dizzy, and had to sit down. I nearly blacked out. I have had some that severe, but most make my head hot, dizzy, foggy, then extremely tired. ThanksShane yeah.. ive heard of many with Asperger's reacting like that to things.. Ive actually heard of some completely going unconscious due to reacting to something they saw (which are everyday kind of things)
    taniaaust1 2267 Replies Flag this Response
  • I am semi-familiar with Aspergers syndrome, and it has been suggested that I may have this. But the "episodes" I have, is that related? I have never heard of that sort of thing being associated.Thank you so much for the help, if nothing else, it's a direction to look in.Shane
    mimewar 11 Replies Flag this Response
  • Man oh Man, if I could count the times my wife has told me I think too black and white. It just seems like Logic to me. Now that I think on it, she has told me I might have Aspergers, it only came up in passing, so neither of us acted on it. This is kind of exciting, maybe I found out what's going on in my giant head. I don't mean to be rude, or egotistical, but I am very intelligent, I can learn a language in under a month(so far it's Bosnian, German, Spanish, Greek, Farsi, and Urdu), I taught myself electronics, and computer programming, yet I have a sever math problem, and I can seem very ignorant, or dumb at times, concerning certain subjects. Sports bore me to death, and when people get into conversations I don't understand, my head swims, and I feel super anxious. Does OCD factor into Aspergers? I have been told I show signs of that as well by a doctor.Thank you so much for the information. I'm kind of venting now, but thank you!Shane
    mimewar 11 Replies Flag this Response
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  • I am semi-familiar with Aspergers syndrome, and it has been suggested that I may have this. But the "episodes" I have, is that related? I have never heard of that sort of thing being associated.Thank you so much for the help, if nothing else, it's a direction to look in.Shane Yes.. the episodes you are having are related, its what made me think you had Asperger's from the start. They are being caused by an Asperger's anxiety response, thing is you may not even realise you are anxious at the time (due to the Asperger's).
    taniaaust1 2267 Replies Flag this Response
  • Now that I may have an answer to my disorder title quest, and a direction to start looking in, I cannot find a place to give me answers. I am on public aid, since I am recently disabled and will be for a year. Finding a place to test me, and a psychiatrist who knows ANYTHING about Aspergers, is difficult, in the public aid system. Thank you for the help, again.
    mimewar 11 Replies
    • August 29, 2010
    • 01:36 AM
    • 0
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  • Finding a place to test me, and a psychiatrist who knows ANYTHING about Aspergers, is difficult, in the public aid system. Hi Shane,Have you tried to do a search to see if there are any studies being conducted on Asperger's that you might fit into their criteria? Maybe you could get some free testing and/or treatment.I'm happy for you to have possibly found at least a name and a medical reason for your maladies. Good luck in your continued search for answers.Smiles, Sue
    his little gimp 5 Replies
    • August 29, 2010
    • 06:47 AM
    • 0
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  • I will look into a study, and I will certainly keep looking. At least with a diagnosis, I can start searching, and find a the right balance of ADD drugs and antidepressants. I want to try abilify, but it's tough to ask a doctor for that drug, if they arent familiar with Autism/ADD/ head issues.I continue on...
    mimewar 11 Replies
    • August 30, 2010
    • 03:41 PM
    • 0
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  • Success!! I got into an Autism research center in my area, and they diagnosed me with... ASPERGERS!!! Thank you all so much for the help. All my little quirks fit so nicely into the Aspergers box, and I could not be happier. Now I need to figure out how to make my head more linear, and get rid of this insomnia ( I have racing thoughts/ cannot stop thinking/designing/creating) It sounds great and all, but I need some sleep!Thanks againShane
    mimewar 11 Replies
    • October 9, 2010
    • 05:32 PM
    • 0
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  • Shane, I'm so happy that you've finally found the answers you've been searching for. Maybe a doc will prescribe you a mild sedative or anti-depressant so you can finally get some rest!!! I hope that you have less stress & a happy life. Smiles, SueSuccess!! I got into an Autism research center in my area, and they diagnosed me with... ASPERGERS!!! Thank you all so much for the help. All my little quirks fit so nicely into the Aspergers box, and I could not be happier. Now I need to figure out how to make my head more linear, and get rid of this insomnia ( I have racing thoughts/ cannot stop thinking/designing/creating) It sounds great and all, but I need some sleep!Thanks againShane
    his little gimp 5 Replies
    • October 9, 2010
    • 08:48 PM
    • 0
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  • Hi Shane, I hope all is well with you. I just want to let you know about a new treatment that's helping me with my fibromyalia pain & insomnia. I've been trying the treatment for a couple weeks, 2 times a week & have had a lot of success. Before, in addition to other problems, pain, etc., I also had insomnia & when I was finally able to go to sleep, I just could not wake up. After trying this for the first time in years, I was actually able to go to sleep at night, at a normal time, & wake up to my alarm clock, and I got out of bed, actually feeling rested. Sooo, long story longer, I asked my physical therapist if I could get the treatment to use at home. Today he sent me home with one part of the treatment that he uses, an alpha-stim cranial electrotherapy stimulator. I was looking it up on line and found that many have found it to be a very effective, drug free cure for insomnia. I'm supposed to use it for one hour every morning. I also get micro current treatment on my neck & ankles for my cervical injury-induced fibromyalgia. For anyone else who may read this, it is honestly working and I've been able to almost wean myself off my pain meds, fentynal patch is off, hydrocodone has been greatly reduced and I'm almost weaned off the lyrica, which was really messing up my eye sight. Anyway, Shane, just a thought. Best wishes. Smiles, Sue
    his little gimp 5 Replies
    • October 14, 2010
    • 03:20 AM
    • 0
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  • I take adderall ( my little pink friend) for ADD, and inpulse control issues, and the lack of sleep is making that not even work properly. My jerky ticks get worse, and by 4, I am dead tired. I see the psychiatrist on thursday, so hopefully he can help me with something.alpha-stim cranial electrotherapy stimulator eh? I will look that one up.Thanks againShane
    mimewar 11 Replies
    • October 20, 2010
    • 01:33 AM
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