Discussions By Condition: I cannot get a diagnosis.

Persistent Hip/Pelvic pain

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • July 17, 2009
  • 01:44 PM

Over last two years, I have had occassional "phantom" pelvic pain - various pelvic sonograms were clear. Location seems closer to femoral artery. On a recent flight, acute pain started and became chronic. Couldn't put weight on the leg - gave out. Went to the hospital - CT Scan, X-rays, urinalysis, blood work. They reported all normal, blood pressure extremely low (86/54). Started cortisone, pain killers - no relief. Difficulty raising right leg when laying flat - could swing it out and lift, but not a direct lift. Hospital provided CT on a disk. Upon return home, visited ortho and he found Subchondral cysts (posterior/anterior) on CT Scan. MRI ordered and cortisone injection made. No pain relief - he diagnosed osteoarthritis w/subchondral cysts (right hip only). However, same pain started on left hip within a week. Primary Care ordered inflammatory marker tests, CRP, Lyme, ANA - all negative. Referred to Rheumatologist - he couldn't read CT Scan, disagrees about there being any cysts in MRI. Did X-ray, says looks great. Has repeated blood tests + some others - am awaiting next visit w/him. The pain morphs a bit - some days it feels like a "torqued" muscle in the front groin area, other times it feels like a burning rash or like siting on hot stones of buttock bones. Occassionally, it feels grinding. Sitting, standing and laying - all are affected by pain. The pain is relieved by heat, but not relieved by most NSAIDs. Found some relief by taking a Hyaluronic Acid supplement, but this is not agreeing w/my kidneys. No pain during urination or bowel.
Thanks in advance for taking the time to read this and respond.

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