Discussions By Condition: I cannot get a diagnosis.

periodic paralysis

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Stephen
  • February 19, 2007
  • 02:10 AM

It all started when I blacked out when getting out of my car. I have got right sided parathesia and occational jerking movements. I am now also having periodic paralysis where I can not move or talk for an hour or so. I have some brain function probems in memory and concentration.

I have been off work for five months now and all the Doctors can tell me is that it is psychological.
I am not crazy

Can any one shed some light?


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5 Replies:

  • Hi, there are many problems that can cause paralysis and wouldn't like to speculate too much, but MS, MG and even epilspsy could be a cause. Have they done any tests ? I too suffer from a PP and because all my test are normal, Neuro reckons I should see a psychotherapist and psychologist too. I am not crazy either (mostly) but there attitude is driving me that way! However I have seen a few Drs who sez it looks like potassium sensitivity and I can link my attacks to all the triggers of Hyperkalemic PP. There are other forms of pp caused by mutations on the sodium channel genes for the muscles which don't show up on reg tests and only occassionally on blood tests. They can do a simple oral potassium test to see if I react. But despite my insistence on them doing this and going to Oxford in the belief this is what they were doing, they only did an EEG which was normal (Duh) and no Oral K test! I have had it since last Jan. I am 28 years old and have had to leave 2 jobs and am now on benefits until I get a diagnosis so I can manage or treat it. Why do they insist it is in our heads without going down the obvious routes first ? Stress is a trigger, but I get breathing difficulties worse case, sometimes only my voice goes. All my limbs can be affected or just one! It varies from 2 mins to 4 hours and I can be ok for a few days or have many attacks in one day. Slightly inconvenient too!Perservere as no one will care more about your health than you! Becki
    Squidgeblip 9 Replies Flag this Response
  • Oh and I get mytonias too resulting in contortions, spasms and twitches of varying degrees although less frequently than the paralysis. It can leave me exhausted and hungry when bad.
    Squidgeblip 9 Replies Flag this Response
  • Type In Periodic Paralyses On Google You Get A Very Useful Website - Periodic Paralysis Newsdesk - There's A Chart Comparing Symptoms Associated With Pp's Due To Different Causes - As Someone In A Similar Mess, I Found It Helpful After I Read It Carefully - None Of The Uk Docs I've Seen Have Apparently Even Heard Of Pp's, Altho Rare, They Exist Alright, Read It ! Best Of Luck
    Anonymous 42789 Replies Flag this Response
  • Please let me know if you have found anything else. I have the same exact thing and my doctors have been giving me so many different drugs and experimental cures it is making me sick. I was told it was Hemiplegic Migraines and now they are saying they think it is depression. But I am not depressed!!! I have been out of work for about 3 months and have 3 to 4 episodes that last 5 to 25 minutes each per day. It is scarring getting these periodic paralysis episodes and have prevented myself from driving unnecessarily.
    Anonymous 42789 Replies Flag this Response
  • it can be a cause of lyme disease. A lot of people are said they have Maby Guillain Barre, and after no, and so so...If you start having numbness, pain , brain fog, you say you have memory problems...Please look at all this.For finding a lyme doctor, cause lyme tests and infectious doctor don,t believe in lyme: http://flash.lymenet.org/ubb/ultimatebb.phpAttorney general actions against infectious doctors for lyme:http://www.ct.gov/ag/cwp/view.asp?a=2795&q=414284Movie coming about lyme disease:http://www.openeyepictures.com/underourskin/uos_background.htmlTrailer: http://fr.youtube.com/watch?v=sxWgS0XLVqwSymptoms list:www.canlyme.comPlease consider it, you have serious symptoms, this is ridiculous to tell u you this is psychological! If there would be something else , they would have find.And you are not crazy!!But this is all people with lyme disease are told, and look in the movie where you finished if not treated! They are crazy, but things will change soon, just a question of time...
    Fannou 111 Replies Flag this Response
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