Discussions By Condition: I cannot get a diagnosis.

Pelvic pain and leg function loss

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: jjoanne
  • April 15, 2008
  • 09:52 PM

Hello everybody. :o I am hoping someone can help me. I am a female, age 55. I have pain across the back of my pelvis-between my hips. It first started as stiffness, then after months got very sore. It is worse in the mornings. It feels stiff, with burning pain. I also have trouble walking, that is also getting worse. Both legs hurt when I stand up and put weight on them. The muscles in both legs stiffen up and get very heavy. I drag my legs. I used to be able to walk for up to an hour. But today, I can not walk 20 minutes. I can also not kneel down, or walk on my toes, or stand on one leg, or climb steps. (Previous to this, in 2005, an MRI of my neck showed multi level degenerative disc disease and mild stenosis.) In 2007, a disability advisor said that I have leg function imparement. She told me to go back to my doctor for answers. So I went back to the doctor, and he still would not tell me what is wrong! He sent me to a physical therapist, who said I had sacroiliac joint dysfunction, and thoracic joint dysfunction. But, my doctor said I did not have this. :confused: Last week, he ordered an x-ray of my pelvis, and MRI of my low back (but not my pelvis!) The doctor said the x-ray and MR was normal, and that he did not know what was causing the pelvic pain, or upper back stiffness! But the radiologist reports said: Multi-level DDD, borderline stenosis (L4-L5), several hemangiomas, mild sclerosos at the symphysis pubis; and incidental note of phleboliths in pelvis. :eek: My question is: What ARE these things, and could they be causing my pelvic pain. What could be causing my leg function loss? Is my doctor doing the right tests? I feel very ill every day, also. My doctor does not answer me.:mad:

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4 Replies:

  • I am not sure, but it seems that you may need to talk to a different doctor! It is ALWAYS worth a second opinion...ask friends and relatives and see if you can find a doctor that will carefully listen to your concerns and try to help you sort this out. Joan
    Joan5555 316 Replies Flag this Response
  • get a blood test for herpes 2--it causes a lot of your symptoms...you can have it without an outbreak..on the other hand, could be just the stenosis.
    Monsterlove 2921 Replies Flag this Response
  • Dear JJoan: This is for you: My case is almost identical to yours, I have recently been to clinics, the ER, and they thought appendicitis, guess what? Pelvic Pleboliths, multiple as well. I had to get my own record of this cat scan from the Hospital, as I do know, they will just say normal to everything, I usually find more, I as have the hemeangiomas, ddd as well, had one surgery on my spine for Spondylisthese, fusion releaved alot of pain in 1991, now I am in constant pelvic back, and neck pain, this feels like my circulation is cut off to my legs, I have severe neruological pain, and no answers.
    Anonymous 42789 Replies Flag this Response
  • I have been suffering for a number years with these same symptoms and they are getting progressively worse. I have been sent for the same tests and my doctors have no answers. They did find a few bulging discs with slight nerve narrowing but they feel that's not what is causing all my pain. It's getting to the point that I can barely leave my house because I can't walk because of the stiffness and pain that I have in my pelvic area, hips, legs and back. It feels like the muscles just don't want to work. I can't even lift my legs. My pubic bone is also slightly separated, but they say this shouldn't cause all my symptoms either. I can sympathize for the way you feel because it gets very frustrating not to have any answers for what we go through and it puts such limitations on your life because you aren't able to do all the things you would like to do. I hope we get some answers soon. Hello everybody. :o I am hoping someone can help me. I am a female, age 55. I have pain across the back of my pelvis-between my hips. It first started as stiffness, then after months got very sore. It is worse in the mornings. It feels stiff, with burning pain. I also have trouble walking, that is also getting worse. Both legs hurt when I stand up and put weight on them. The muscles in both legs stiffen up and get very heavy. I drag my legs. I used to be able to walk for up to an hour. But today, I can not walk 20 minutes. I can also not kneel down, or walk on my toes, or stand on one leg, or climb steps. (Previous to this, in 2005, an MRI of my neck showed multi level degenerative disc disease and mild stenosis.) In 2007, a disability advisor said that I have leg function imparement. She told me to go back to my doctor for answers. So I went back to the doctor, and he still would not tell me what is wrong! He sent me to a physical therapist, who said I had sacroiliac joint dysfunction, and thoracic joint dysfunction. But, my doctor said I did not have this. :confused: Last week, he ordered an x-ray of my pelvis, and MRI of my low back (but not my pelvis!) The doctor said the x-ray and MR was normal, and that he did not know what was causing the pelvic pain, or upper back stiffness! But the radiologist reports said: Multi-level DDD, borderline stenosis (L4-L5), several hemangiomas, mild sclerosos at the symphysis pubis; and incidental note of phleboliths in pelvis. :eek: My question is: What ARE these things, and could they be causing my pelvic pain. What could be causing my leg function loss? Is my doctor doing the right tests? I feel very ill every day, also. My doctor does not answer me.:mad:
    Anonymous 42789 Replies Flag this Response
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