Back again, I'm finding a pattern to my symptoms and praying for answers. Symptoms started nearly 2 yrs ago, got worse about a year ago. That summer and over the next 6 months I did have times I had to deal with black mold. That fall me and my daughter got the flu, took three months to fully recover. In April I got Bronchitis. And 9 months later they found out I had a serious sinus infection whith white nodules. During this entire time i suffer with what feel like cold symptoms that come and go but I never get a cold.
Prior to all of that I always had extra energy, normally optimistic person.
I have what I like to call flare-ups. I' m charting it trying to get a better hold of my symptoms. On average it appears I have 7 'normal' days - other days vary between little symptoms to what I like to call crashes. On normal days I feel positive, optimistic, love life and am full of energy. I've always been very high energy.
Tests: Year ago, negative for thyroid, but I went to my own lab and it stated I had high peridoxidase (sp) 78. Did a full blood chemistry tested high for allergies. Because I had a lot of pain/burning under my ear in my neck and glands that swell now and again, they sent me for MRI and Cat Scan of neck - results are normal. Lyme negative.
Very possible I has rheumatic fever as child.
Symptoms come and go, some can lasts hours, while others last days:
ear ringing lasts about 1 minute, mabe once week.
itchy during day, apparently I scratch my legs while sleeping
Joint pain (have had since 17) knees shoulders
neck pain/burning left side only - normally under ear
muscle twitches under rib, calf area - left side only
dry/soar throat can last two weeks
jaw tightness, pain, sometimes under left eye
starving - could eat almost anything usually lasts week, other times I could care less if I eat
head pressure, more often than not. Mostly mild, but when it's bad I can't think/focus. Starts in back of sculls and goes through entire head.
Allergy symptoms - itchy eyes for day, chest feels congested, sneezing. Positive allergy test but they never said to what.
Exhuasted! I refuse to sit on the couch - so I push myself through my day getting little done - the worst can last 4 - 7 days.
Some mornings sounds like the blood is rushing back in my head when i sit up
mild ear popping
Hypoglocemic episodes, normally on my 'starving days', even if I eat.
Warm flush feeling in face - sometimes mild fever
pain left foot about two weeks now, comes and goes.
Eyes feel gritty now and again, usually couple times of month last good few hours.
ALWAYS have low blood pressure 90/50 - they always make a big deal about it, but then they don't look into it.
So far what I've come up with as some times it's hard to chart symptoms especially if some are in your sleep: starts with nightmares for a night or two, then I get super tired, feel generally crappy, soar throat, possible neck/burning feeling, sometimes spreads to left upper jaw, behind left eye. Usually have head pressure same time, soar throat, feels like it's swollen on left side - super thirsty!!!! As these symptoms increase I get depressed, irritable, frustrated, can't focus.
I'm crashing again, started being tired last week. Soar/dry throat two weeks now. This morning when i sat up, it sounded like the blood was rushing back into my head. This has happened before. Sounds sort of like the sound you hear in your ears when you are underwater. This usually predicts i'm going to have a 'bad' day. Feel like a walking zombie, finger tremors left side lasted about 1/2 minute. Head achey/pressure feeling, tired. Hard to focus. Soar/dry throat. Mentally; nervous, irraitable, bummed out, shaky feeling. Face felt flush and warm, but temp seems normal. Achey tight jaw.
I know many said Fibro but honestly, pain is NOT the main factor. Also I don't have pain pressure points. The joint pain I've had 17 yrs, and you almost can feel the knee or shoulder popping out of place. From what I've read, Fibro does not cause swelling and fluid in joints. I'm defintiely having some kind of auto-immune flare ups. Frustrated with the Dr's and won't go unless I have some kind of solid proof of what I have. The specialists I have seen feel I do have something wrong, yet my PA's and general Dr's dismiss all my symptoms.
Big question _ did the black mold set this off? You read the sites and they make it sound horrible if you come in contact with it, ( a good portion of my symptoms) yet it seems once you are away from it you should recover. I want to spend the $400 to be tested for mold, but not sure if I trust these sites and being just back to work can't afford to lose the money.
Most replies said I could have Grave's disease - Hashimatos - but I suggested that to my Dr last year and she laughed. I have no insurance and can't afford to do much on my own but research. Sick of Dr's telling me nothing is wrong.
Any help is so appreciated! I want my life back! Thank you all so much.