Discussions By Condition: I cannot get a diagnosis.

Paralyzed by depression caused by painful degeneration of facial skin.

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • November 8, 2010
  • 00:27 PM

Last June (2009), the onset of atypical trigeminal neuralgia was immediately (and ostensibly relatedly) followed by the rapid and thorough degeneration of my facial skin, within mere days leaving it doughy, infirm and sensitive. The once crisp eyelids, now completely mushy, no longer sit properly on the eyeball as intended, causing me unceasing discomfort and making me feel tired every last second of the day.

Ridges formed in the corners of my lips as the skin became malformed. The inner part of the lips have become sticky and the perpetual sticking together of the lips is highly uncomfortable. The corners where the ridges formed often burn or tingle and the lips on the whole never cease to bother me.

The skin has become very sensitive to small stimuli such as an eyelash or loose thread on the pillow case—but especially water—as the nerves seem to have been damaged along with the skin. It now reddens and irritates easily.

The flaccidity is perhaps most noticeable in the cheeks, though as they have caused little to no discomfort, they are of minimal concern to me at this point.

The gums have also become extremely sensitive, becoming raw when brushed and seemingly discolored as well.

Six message board posts and countless hours spent scouring the internet have yielded very little information of use. Of the myriad conditions involving the degeneration of subdermal tissue, none that I've encountered come particularly close to completely satisfying my criteria. The dermatologist I went to was also unhelpful, all of this leaving me feeling completely alone in this world with a harrowing condition that I fear may never even be recognized, much less treated, and effectively paralyzed by the unrelenting anxiety and depression caused by the hopelessness of my situation. I barely function.

As stated, I am at my absolute breaking point. I am not sure that the help I seek even exists and I've been terrified to look. I've been deathly afraid of seeing another dermatologist lest it should turn out like the first. Any light that could be shed on this condition would be immensely appreciated and certainly never forgotten.


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