I'm a 20 y/o who's been looking for a diagnosis for a couple of years now. It all started back in fall '04 where I was diagnosed with CMV (similar to mono), had to be home schooled for a couple of months until I got better. Some fatigue lingered but it wasn't a huge deal, I went back to school, etc. About 2 months after going to college, in fall '05, I was in class one night and I started feeling really lightheaded, my limbs felt heavy, I got palpitations, and I felt really warm all of a sudden. They brought me in to the ER and my EKG was normal 'cept for the increased heart rate. They also ran some bloodwork and claimed that my electrolytes were slightly off, so they gave me an IV, monitored me for a while, and then let me go. My heart rate continued to be a bit high, so I saw a cardiologist in November '05, who sent me for an ultrasound and then put me on a low dose of a beta blocker to help control the palpitations.
When sitting for extended periods of time (an hour or more) my legs from the knee down would feel kind of strange. Not really numb, they didn't hurt, they just felt kind of heavy. I had been doing better for awhile but after having more bloodwork taken in March '06 over spring break, they found that my prolactin level was mildly elevated. Still struggling with feeling weak when standing (like I'll fall over, but I've never actually passed out and my vision is fine). They repeated the test a few months later and it was elevated a bit more. They sent me for a brain MRI which showed a possible small mass on my pituitary, but it was inconclusive. So then I was sent to an endocrinologist, who ran a lot more blood tests (testosterone, some other hormones, continued to check the prolactin, etc) some rare endocrine disorders were ruled out, but the microprolactinoma wasn't diagnosed/ruled out. I ended up in the ER again one afternoon for palpitations, sweaty palms, feeling weak, etc. EKG showed nothing, the triage people tried to call it a panic attack (though I didn't panic til well after I started feeling sick)
I had bloodwork repeated in November '06 and the prolactin level was back to normal. I then got a bad cold in February and had to be put on bed rest at school for a week because I was too dizzy, they took chest x-rays and that was normal. They put me on a heart monitor for 3 weeks and that didn't show anything.
palpitations (the true occurrences are rare now ONLY because of the medication), I feel weak a lot of the time especially when standing up, legs below knees feel heavy sometimes, sometimes my chest will feel tight as though I'm anxious even if I feel calm...I'm about to go for more bloodwork tomorrow to recheck the prolactin level along w/ a CBC and testosterone again. Everything is more complicated now because my endo apparently left the practice and left no forwarding info, so I'm without an endo. We're debating going to an infectious disease specialist to find out if this is somehow related to my bout w/ CMV...
does anyone have any insight into this? It's been so frustrating because I've had to give up so much of what I used to do because I feel too weak to do it, and getting bounced around from doctor to doctor without any answers is getting hard to take. Whenever they find something they end up deciding that it's not what's causing the problem... :/ I apologize if this rambles horribly, I just got done taking a test for a class and my brain is fried :)
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