Discussions By Condition: I cannot get a diagnosis.

Pain, vomiting, bleeding, all tests normal. HELP!

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: RachelBullets
  • November 22, 2008
  • 04:57 PM

For over a year I've been suffering from abdominal pain, nausea , vomiting, diarrhea, constipation, blood in my stools sometimes , weight loss and gain, excruciatingly heavy menstrual bleeding, swollen glands, fevers, UTIs, and occasional nosebleeds.

I've had the basic blood tests, H. Pylori tests, liver tests, ultrasounds, 2 endoscopies, a colonoscopy, biopsies, and a HIDA scan.

EVERYTHING IS NORMAL WHEN IT COMES BACK. Maybe its just me, but something should be coming back with some sort of answer. If I have bloody bowel movements, how is my GI system normal? Help me so I can work with my doctor on this...I'm basically disabled because of how unwell my body is.

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10 Replies:

  • This sounds like a blood disorder to me. A funny question, but ask if your thumbs are hyperextensible. Try here: http://www.ingentaconnect.com/content/bsc/bjh/1998/00000101/00000002/art00008?crawler=true A form of Ehlers-Danlos syndrome comes to mind.
    aquila 1263 Replies
    • November 24, 2008
    • 08:23 PM
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  • But would that make me nauseas? My gyno wants me to have another pelvic ultrasound and a laparoscopy, but to ask my doctor to test me for von Willebrand disease.
    RachelBullets 120 Replies
    • November 25, 2008
    • 01:30 AM
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  • Can you explain where the abdominal pain is? Location of Swollen Glands? is the process cyclic, if so when is it worst (Night/Day,Monthly/Seasonal) ?Endometriosis is a hard diagnosis that is a possibility.
    Anonymous 42789 Replies
    • November 25, 2008
    • 02:22 AM
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  • I also get hours-long-bouts of low blood pressure, sometimes dropping as low as 80/55 or 90/40.
    RachelBullets 120 Replies
    • November 25, 2008
    • 06:41 AM
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  • If it isn't a blood problem:Look into diverticulitis, endometriosis, maybe fluctuating or low cortisol/ACTH (adrenal insufficiency will give you a tan skin color, Pituitary ACTH deficiency will not)..Endometriosis is indicated by the very heavy Menstral Period, pain nausea, voimiting.. Celiac disease and IBS are possible, but don't really explain most of the symptoms.
    nckmorris 53 Replies
    • November 25, 2008
    • 02:44 PM
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  • Yeah, my gyno thinks its more than likely endometriosis. This would be a really bad case, if its making me have bloody stools. My mother actually has a lot of reproductive and GI problems...gastritis, colon polyps, she's had many cysts on her ovaries and now she has a golf-ball sized tumor on the ovary she always has cysts on, so my gyno wants me to have an ultrasound first to make sure its not cysts like her. I don't think I have Celiac, I've done elimination diets on my own, but its really hard to completely eliminate gluten, considering its in everything. My duodendal biopsy didn't show any malabsorption, though. People call me a hypochondriac, and I know I'm not but it makes me FEEL like I'm just freaking about nothing, but I don't consider bloody stools or debilitating nausea nothing. Honestly...I'm so physically miserable I've considered suicide just to stop the physical pain that's keeping me from living a normal life.
    RachelBullets 120 Replies
    • November 25, 2008
    • 06:16 PM
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  • I would be surprised to find someone who wouldn't be worried about these symptoms. There have been links found between endometriosis and specific ovarian cancers:The relationship of endometriosis and ovarian malignancy: a review.Nezhat F, Datta MS, Hanson V, Pejovic T, Nezhat C, Nezhat C.Fertil Steril. 2008 Nov;90(5):1559-70.Perhaps you inherited a genetic predisposition from your mother.I found some information that says that hypothyroidism is 7 times more common in women with endometriosis. That might help explain your low BP and weight gain.Adenomyosis (would have uterine enlargement), and Diverticulitis shouldn't be discounted.
    nckmorris 53 Replies
    • November 25, 2008
    • 07:39 PM
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  • Overall I'be been experiencing weight loss, but a lot of 10lb or so fluctuation from water and bloating. The abdominal pain is almost always in my right side, around my gallbladder and pancreas, which is why those were some of my first tests. The swollen glands are always in my neck, one time the gland on my right side swelled to 1.75" in diameter with extreme tenderness...it looked like a tumor in my neck all night. Yes, my problems mostly cycle , which sometimes is a problem when I'm not having the pain, diarrhea or vomiting when I see the doctor, they don't see what I go through every day. I almost always wake with nausea, sometimes that keeps me in bed, but I haven't really noticed a specific pattern. When I got a pelvic exam last, my gyno told me I had a tipped uterus...I had never been told that before. How do I bring these up with my doctor without having him think I'm paranoid or trying to undermine him?
    RachelBullets 120 Replies
    • November 26, 2008
    • 04:53 PM
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  • Crohn's disease or Ulcerative Colitis? Ask your dr/specialist where your colonoscopy looked at and if it looked in the small bowel. They may have only looked in the colon which on its own isn't enough to rule them conditions out.
    Anonymous 42789 Replies
    • December 16, 2008
    • 08:48 PM
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  • Crohn's disease or Ulcerative Colitis? Ask your dr/specialist where your colonoscopy looked at and if it looked in the small bowel. They may have only looked in the colon which on its own isn't enough to rule them conditions out. I don't think they looked in my small intestine, but they said everything, including the biopsies, are fairly normal. I actually recently started a new BC pill which is preventing any ridiculous menstrual bleeding and helps a little with my nausea, but not stopping any pelvic pain. I have another kidney infection , my joints hurt, I just got glasses, but still have headaches. Nothing makes sense. I recently had blood tests done that showed white blood cells and epithelial cells in my urine, but no bacteria, and elevated lymphocytes in my blood, along with slightly high TSH, which jumped almost 3.5 points in 9 months, from 1.28 to 4.27. A nurse also recommended I get tested for TB because of my kidney infections, cough, and night sweats.
    RachelBullets 120 Replies
    • December 17, 2008
    • 08:22 PM
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