Discussions By Condition: I cannot get a diagnosis.

pain/urge to stretch calves/forearms-cloudy urine-fatigue

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: raptors0718
  • June 5, 2010
  • 11:41 PM

I have many symptoms starting back towards the end of 2008. The beginning were all flu symptoms/severe sore throat. It looked like strep with white markings all over my tonsils. It got so bad that I went to the ER for it. That was my third strep test that came back negative. Tested for mono since I was severely fatigued as well. That came back negative as well. The weird part about this initial flu like sickness was I would get sick off and on, but in a short time span. It would come for a week and then disappear for a month. Then come back and disappear for a month or a month and a half. This happened 6 times total and I have never felt 100 percent since. I was put on many different types of anti-biotics and nothing worked. I knew they also killed the good bacteria in my body so I was constantly doing things to boost it back up. Also, my girlfriend never got what I was getting. I was sick and could be and she never caught anything.

During this time the lymph nodes in my neck were acting up as well. They were so bad that I had a CT scan and a fine needle aspiration to see if anything was going on. Nope. I was totally fine. I had lots of blood work/urine samples and everything came back as normal.

I got rhabdo a while back and thought that maybe almost a year after that was over this might be correlated with it? But my doctors didn't think so.

Now, for about a year I have been getting aches and pains in my legs. Mostly lower legs like in my calves that was really bad at night. The only thing that helped was a deep massage. This sounds like it could have been RLS, but I don't kick around at night. I do feel like I need to constantly stretch my legs, but not necessarily move them. This pain and discomfort is sometimes dull and sometimes very sharp. It has recently started affecting my forearms. They weren't bothered at all before, but now they get to the point where they hurt pretty bad as well and I feel like I need to stretch them too. This is all paired with fatigue. I'm only 26 so i should not be this tired all the time. Things that were once so easy for me to do physically I now notice tire me out and I need to take a break. A break!? I never had to do that before.

Recently I started having heartburn constantly at night. I take heartburn alka seltzer like it's candy. Some nights i'm fine, but I take it more than i should.

I also justt started having a stinging feeling when I urinated and had very cloudy urine for a while as well. I thought maybe a UTI, but men don't usually get those. My Dr. thought it was the same thing and put me on cipro... But that did nothing. The stinging is not as often, but there are times when it is still there. And my urine is almost always cloudy now. This is sometimes paired with constipation. I can have bowel movements, but they are very labored at times and sometimes not much comes out at all. I have hemorrhoids as well. At least that's what I think they are. My anus started itching a lot and at times after I defecate it burns quite a bit.

So that's pretty much all I can think of at the moment. Which actually seems like a lot. This is all really confusing to me and very scary and frustrating. I'm 26 and two years ago I didn't have any of these symptoms. I didn't start drinking till I was 23, but I don't drink a lot. That's basically the only habit with me that has changed.

Please help if you can!

Reply Flag this Discussion

3 Replies:

  • sounds like tuberculosis u should get tested
    Anonymous 42789 Replies
    • September 30, 2010
    • 03:29 PM
    • 0
    Flag this Response
  • sounds like tuberculosis u should get testedI get tested for work twice a year so its not TB. I was also tested for cocci and that's neg too.
    raptors0718 1 Replies Flag this Response
  • My daughter was diagnosed with restless leg syndrome. It can affect your arms, as well, and it usually doesn't affect them at first. Also, 80% of people with RLS don't have PLMD (periodic limb movement disorder) which is the involuntary kicking at night. Your other symptoms sound similar to Chronic Fatigue Syndrome, though, maybe the pain in your legs and arms are from Fibromyalgia, the two have overlapping symptoms (I also know a lot about these from personal experience). However, because of some other symptoms she's had (including constipation and burning with urination) I've done some research and have recently read a lot about mitochondrial disorders. One of the things some of these disorders cause is rhabdomyolosis. There are a lot of these disorders out there, and they used to think that it was always diagnosed in childhood, because in children they cause very obvious and serious symptoms. Now they have found mitochondrial disorders in many adults, but they are hard to find because people with the exact same disorder can have different symptoms and their symptoms vary in severity. Sometimes they are inherited and sometimes they come from spontaneous mutations. There is a website, I think it's the United Mitochondrial Disorder Foundation, that has more information. I don't know how likely it is that you could have one of these, but since they can take years to find, and sometimes are not found until later generations, it may be worth looking into and asking your doctor about it.
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.