Discussions By Condition: I cannot get a diagnosis.

Pain radiates from hands and arms to jaw/tmj disorder/fibromyalgia

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: ladynokturna
  • October 18, 2010
  • 04:08 AM

Hello,
I have had bad jaw pain and limited ability to open my mouth for about a year now. I have seen two Oral Surgeons and both say I have TMJ disorder. I have also been dealing with bad neck, upper spine, thigh, and wrist pain for over two years. My Rheumatologist said I have most symptoms of Fibromyalgia but since I didn't YET have all the tender points he couldn't diagnose it but is treating me for it. But I do believe I have them all now. Anyways the reason I'm posting is I also have the problem of whenever I use my hands or move my arms (mostly when using a computer or writing) pain goes to my jaw and my neck. It affects my jaw more but that could be because my jaw usual is in the worst pain. No one has told me exactly what is doing this yet. My Rheumatologist seems to think it may have something to do with my Fibro but nothing I have read has said anything that sounds like that to me. So I was hoping maybe someone had heard of this problem before or had any ideas what might be causing it.

Please and thank you!

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2 Replies:

  • Hello,I have had bad jaw pain and limited ability to open my mouth for about a year now. I have seen two Oral Surgeons and both say I have TMJ disorder. I have also been dealing with bad neck, upper spine, thigh, and wrist pain for over two years. My Rheumatologist said I have most symptoms of Fibromyalgia but since I didn't YET have all the tender points he couldn't diagnose it but is treating me for it. But I do believe I have them all now. Anyways the reason I'm posting is I also have the problem of whenever I use my hands or move my arms (mostly when using a computer or writing) pain goes to my jaw and my neck. It affects my jaw more but that could be because my jaw usual is in the worst pain. No one has told me exactly what is doing this yet. My Rheumatologist seems to think it may have something to do with my Fibro but nothing I have read has said anything that sounds like that to me. So I was hoping maybe someone had heard of this problem before or had any ideas what might be causing it. Please and thank you!Read up on myofacial pain disorder.
    Anonymous 42789 Replies
    • October 19, 2010
    • 02:17 AM
    • 0
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  • Read up on myofacial pain disorder. I actually read about that last night and I do have a problem with trigger points. My bf is going to school for massage therapy and is always rubbing them out for me. I will deffinately bring that up when I go to the doc Monday. That and Somatoform pain disorder. I have depression and anxiety issues that go back about ten years so that looks possible to me also. Thanks for replying!
    ladynokturna 1 Replies
    • October 20, 2010
    • 02:20 AM
    • 0
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