Discussions By Condition: I cannot get a diagnosis.

Pain in right side of neck, under and behind ear, and temple.

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: pxgq55
  • February 4, 2010
  • 03:30 PM

Firstly, I'm creating this topic to hopefully get some info for a friend of mine. She was awakened by what she thought was jaw pain several nights ago. Thinking it was due to sleeping on the side of her face wrong, she adjusted and went back to sleep. Once waking up, she realized that the pain was still present and was not isolated in the jaw, but seemed to stem from around the ear and up into the temple as well. She then scheduled an appointment with her primary care physician who diagnosed her with an ear infection. The next day, the pain was worse. And by day three, she described it as blinding pain. She was now running a fever along with being nauseous and having diarrhea. She then visited her doctor again. This time, he said that it was mastoiditis and gave her some anti-inflammatories and medication for pain. When she returned home, the pain was worsening. She couldn't sleep because of it and the pain medication had no effect. The next evening, the fever persisted so she decided to go to the E.R. The doctor there said that it surely wasn't an ear infection or mastoiditis, but said it was probably a cholesteaoma. They did a cat scan at the hospital and didn't detect anything abnormal. The following day, the pan was worsening still, fever persisting, so she mad an appointment with an ear, nose, throat specialist who took a look and said that it was definitely not an ear infection, mastoiditis, or a cholesteaoma. He said it was most likely TMJ and said that she should get to the dentist to rule out that and/or a possible tooth problem. She went to the dentist yesterday and all x-rays came back clear. there were no jaw or tooth issues whatsoever. She's at a loss and the pain, at this point, is keeping her from sleep, work, and daily activities. The pain is worsening by the day but she doesn't know what to do at this point. Every appointment has debunked the former diagnosis and now she's back at square one. Are there any conditions that could cause a referred pain to this area? if anyone has any suggestions as to what kind of specialist she should see, at this point, or what kinds of questions she should be asking, please feel free to share. I'm just trying to find out a little info so that she can get this obviously worsening condition fixed. Thank you.

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5 Replies:

  • Firstly, I'm creating this topic to hopefully get some info for a friend of mine. She was awakened by what she thought was jaw pain several nights ago. Thinking it was due to sleeping on the side of her face wrong, she adjusted and went back to sleep. Once waking up, she realized that the pain was still present and was not isolated in the jaw, but seemed to stem from around the ear and up into the temple as well. She then scheduled an appointment with her primary care physician who diagnosed her with an ear infection. The next day, the pain was worse. And by day three, she described it as blinding pain. She was now running a fever along with being nauseous and having diarrhea. She then visited her doctor again. This time, he said that it was mastoiditis and gave her some anti-inflammatories and medication for pain. When she returned home, the pain was worsening. She couldn't sleep because of it and the pain medication had no effect. The next evening, the fever persisted so she decided to go to the E.R. The doctor there said that it surely wasn't an ear infection or mastoiditis, but said it was probably a cholesteaoma. They did a cat scan at the hospital and didn't detect anything abnormal. The following day, the pan was worsening still, fever persisting, so she mad an appointment with an ear, nose, throat specialist who took a look and said that it was definitely not an ear infection, mastoiditis, or a cholesteaoma. He said it was most likely TMJ and said that she should get to the dentist to rule out that and/or a possible tooth problem. She went to the dentist yesterday and all x-rays came back clear. there were no jaw or tooth issues whatsoever. She's at a loss and the pain, at this point, is keeping her from sleep, work, and daily activities. The pain is worsening by the day but she doesn't know what to do at this point. Every appointment has debunked the former diagnosis and now she's back at square one. Are there any conditions that could cause a referred pain to this area? if anyone has any suggestions as to what kind of specialist she should see, at this point, or what kinds of questions she should be asking, please feel free to share. I'm just trying to find out a little info so that she can get this obviously worsening condition fixed. Thank you. I've had similar pain before... Mine was diagnosed by an ENT. When my dentist diagnosed me with TMJ I had no other problems either...until my wisdom teeth showed up - they'd been 'hiding' pretty far down in my jaw so that even with the x-rays no one could find the why to my symptoms. I really believe an ENT (ear nose throat) doctor will be able to help. Has your friend tried taking glucosamine/ chondroiton/ msm or omega-3 fish oil? My body doesn't respond well to narcotics or anti-inflammatories either... They're over the counter supplements - usually found in any grocery store or health food store. Hope I've helped.
    Anonymous 42789 Replies
    • February 6, 2010
    • 00:57 AM
    • 0
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  • Wish I could help. I have just about the same thing, but, I also have back pain with it. One doctor said spin issue and the other said no. I have seen every kind of doctor(over a month = 10 trips to doctors, I will be poor soon). Also, no mine is not my teeth. I am going to Mayo soon since I have had mine now for three months and I have trouble living my life. I am having a MRI done that should say once and for all. I wish you luck. There are just too many things I think that mask its self just like what your friend and I are going through. Luck to you all.
    Anonymous 42789 Replies
    • January 8, 2011
    • 06:18 AM
    • 0
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  • Mine started on both sides of the back of the neck and caused extreme pressure and severe migraines...lasted for 14 days straight with no help from the doc. was prescribed migraine meds and it didn't touch it. a few days ago the pain moved to right side only and the meds help to dull the pain enough to function. good luck on her diagnosis...any updates btw? interested in finding a cure myself.
    Anonymous 42789 Replies Flag this Response
  • Have you tried steaming your nose with thyme oil? I have sinus and bronchial isssues as well. The pain start from my ears and goes down to my jaw. It sounds like sinus and allergy issues. Not a Dr. but I have have this problem for years when my allergies get bad. The only thing that helps me is lots of rest, and steaming my face over 2-3 drops of thyme oil in 3 quarts of water. It helped me this evening when I couldn't sleep and woke up with a sneezing attack and pain in my jaw up to my ear. Read about thyme oil and you'll see. It can cause skin irritation so use is lightly. Also acupuncture helps!Good luck
    Anonymous 42789 Replies Flag this Response
  • I recently experienced the same type of pain. I awoke with the worst pain I have ever had in my head. Pain behind my right ear extending to the back of my head and pain in the temple area. I could not stand my head to touch the pillow on the right side and the pain never goes away. I have gone to my PCP and after blood tests she has scheduled me with a surgeon for a temporal artery biopsy. She started me on Prednisone in the meantime for inflammation. They think it is Giant Cell Arteritis or Temporal Arteritis. I hope that you find an answer to your problem.
    Anonymous 42789 Replies
    • August 21, 2011
    • 02:50 AM
    • 0
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