Discussions By Condition: I cannot get a diagnosis.

Pain in pelvis bone

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • February 5, 2008
  • 06:02 PM

I made a mistake in describing the pain I have at the bottom of my spine, and leg pain when walking, when I went to the doctor in 2005. I told the doctor the pain was in my low back. (I also had stiffness in my neck.) So the doctor took an MRI of my lumbar and cervical spine, and found multi-level degenerative disc disease. (But he said it was not bad enough to cause my trouble walking.) Later, I learned that my lumbar spine is located above my hips, and my pain is lower than that. The pain is between my hips, across the back of my pelvis bone. (I also found out that this is called the sacral area.) Now my doctor will not listen to me. How can I find out what is wrong? I have the pain every day. It feels like a gripping tightness, and is worse in the mornings. By the end of the day it always feels better. (But every morning I have the stiff pain when I wake up.) I have to bend forward in bed and stretch my sacral area many times to make it feel a little better. Lately, I feel numbness there too, and my legs have started to feel heavy also when I walk. In the past two years, the leg pain has gotten worse! My doctor took tests for rheumatoid arthritis and inflammation, and said they were normal. Now he ignores me. Please tell me what to do?

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4 Replies:

  • It may be time for another updated MRI of the lumbar and sacral regions. It sounds from your symptoms that you may have some progression of your condition. Did the last MRI mention stenosis at all? Does the numbness extend to the perianal region or just the mid sacral region? THe legs feeling heavy can be intermittent neurogenic claudication. I hope that you find the answers that you need. Good luck.
    Anonymous 42789 Replies
    • February 6, 2008
    • 05:47 AM
    • 0
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  • Some of these syptoms sound similar to my husbands. He gets a buring pain in his inner thigh just about where your leg joins your **m. We have been searching for about 2 years now to no avail. Different GP's and specialists say different things and none of the pain killers last for long. Has anyone heard of this sort of thing before? We are getting desperate. the buring and pain are greater when sitting down.an ultrasound mentioned a bursa in the area inflamed but nothing has eventuated from that.One specialist told us it was all in his mind, the pain is way too much and specific for that. If you have any info it would be great to here from someone else! Cheers, Lana.
    Anonymous 42789 Replies
    • February 6, 2008
    • 06:29 AM
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  • I am replying to NRVS, and have included a more detailed account of my symptoms. I had to look up perianal region on google, and the answer to your question is "sometimes" I have a vague numbness in the area. But the pain is constant in the mid sacral region. Also, the MRI showed stenosis, but the doctor said it was not too bad. Here is my new post: I am a female, age 55. (I feel ill every day). I made a mistake in describing the pain I have at the bottom of my spine, when I went to the doctor in 2003. I told the doctor I had pain in my low back (and he assumed it was in my lumbar spine). I also told him I had stiffness in my neck, and leg pain when I walked. The doctor did not order an MRI of my cervical and lumbar spine until 2005! He found multi-level degenerative disc disease, facet disease and stenosis. (He said it was not bad enough to cause my trouble walking.) Then I learned the MRI of my lumbar spine is above my hips, and my pain is located "lower" than that. My pain is located between my hips, a few inches above my tailbone, across the back of my pelvis. (I also found out that this is called the sacroiliac area.) Now my doctor will not listen to me. How can I find out what is causing the pain? I have pain every day, and it is getting worse! It feels like an aching stiffness. It is worse in the mornings. It hurts more when I stand up, and gets better when I lie down. I have to bend forward in bed, and stretch the area many times to ease the aching before I can get out of bed. Lately I feel numbness there, too. And, my legs have become heavy when I walk. In the past two years my leg pain has also gotten worse. I can not walk too long, and have trouble climbing steps. Since 2007, I have trouble kneeling. My doctor ordered blood tests for rheumatoid arthritis, muscle enzymes, and inflammation, and he said they were normal. (I also had a bone density screening of my ankle, at another hospital, and it was -1.4. The nurse said I had osteopenia because I am 1 1/2 inches shorter than I was in 2003.) But, when I went back to my doctor, he said a screening does not mean anything! Please tell me how to find out what is causing the pain across the back of my sacral spine?
    Anonymous 42789 Replies
    • February 7, 2008
    • 05:50 PM
    • 0
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  • Ankylosing spondylitis hits the sacral area heavily and usually described as morning stiffness that lasts more than 30 minutes. Or Sacro/Iliac Joint pain (S.I. joint). Some pain clinics do cortisone injections there. There are some exercises for S.I. pain.
    rad-skw 1605 Replies
    • February 8, 2008
    • 00:11 PM
    • 0
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