Discussions By Condition: I cannot get a diagnosis.

Pain in my head and face FOR 6 MONTHS

Posted In: I cannot get a diagnosis. 27 Replies
  • Posted By: landobi1
  • December 14, 2006
  • 01:32 PM

Someone please help me, I am in serious pain. Ihave had severe head/face ache every hour of every day for 6 months now. I have been to 2 ear nose throat doctors 2 neurologists, and seen my family doctor atliest 20 times now. I have had a ct scan and an mri. Both showed no sinusitus, tumors, or really anything. I have had blood tests done, and am going in for another mri in a week. Nobody seems to know what it is. I have taken 5 different types of antibiotics, 2 rounds of prednizone steroids, and a multitude of antiinflammatories and pain medication. The pain is in the corner of my eye and nose on the right side of my face, and inflames to my brow over my eye. Sometimes I feel like it is spreading to my temple. The ENT said it isnt sinusitus, and the Neurologist said it isnt migraine or cluster headaches. Although my symptoms are simmilar/same to cronic sinusitus, but there is no infection. I cant live like this. If anyone has anything at all PLEASE help!

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27 Replies:

  • Hi I read your post. I am in the same boat as you right now. I've had pain in my face and head with extreme headaches daily since 3/06. Also have a continous hiss/ringing in both ears 24/7. I am going crazy. In the past two months I've been treated with z-pack,levaquin, and now augmentin antibiodicts. In November I had two cat scans and an mri of the brain because of the extreme headaches. I was afraid of a blood clot or aneurysm. One of the CT scans was of my Mastoid and Paranasals sinuses. Both the CT and MRI indicated that I have small cysts or polyps in my maxiallry sinuses (in cheek bone on right and left side of my nose), also inflamation in my left Mastoid sinuses behind the left ear. I have wore out my family doctor, been refered over to an ENT specialists and still don't have an answer. My ENT charges $120.00 per office call and he spend about 10 min each time with me. I am seeing a second ENT specialists this coming Tuesday. He's the best sinus surgeon in Michigan and I hope to get some relief. I know what your going through. Sometimes the pain is so great I can't get out of bed even to work. You need to get a ct or mri of your Mastoid and paranasals sinuses if you haven't done already. And find a good ENT in your area. Good luck and let us know how your doing. I'll try to answer when I get more answers to my condition. Feel free to right back. P.S. Do you feel pain in the eyes when you press on your closed eyes? Thats an indication of sinusitis..
    Anonymous 42789 Replies
    • December 16, 2006
    • 02:49 AM
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  • I have had a ct and an mri. They keep telling me it isnt sinusitis....but i know it is, and yes I do feel pain when i push on my eyes. I looked up sphenoid sinusitis and I fit every symptom to the letter, but they say the cant see anything in there. The cure for it is only by iv antibiotics. But they wont even try that, even though they have had me on amox. augmenten, and clindomicin. It is such a pain in the a$$ that i cant get a doctor to just do what I tell them to. they think they are allmighty and that what they say is the ultimate answer.....When you have a toothache you know you have a toothache......when you have sinus pain well you know what you have.....pain is what and where the paitent says it is....but here i am stuck....and if they dont do someting about it i will eather suffer meningitis or be in a pain management clinic.....eather way I am still open to suggestions....I even had one ent tell me that he didnt think my pain was serious enough to prescribe pain medication.....He was never seen again...But my doctor wont prescribe me anything for it eather.....i spent all those assetts....i am now forced to buy pain medication illegally.....and then you see how much more frusterating this gets...is there a doctor in the house!!!
    landobi1 1 Replies
    • December 16, 2006
    • 03:44 AM
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  • glad to know im not alone.my problems have been going on fror about 8 months. i'm 21 years old and for the past 8 months ive been dealing with this pain. almost on a daily basis. i have this pain/pressure by my right eye.kind of in my eyebrow as well. it also feels like i go cross-eyed and that my right eye weighs a tonive been wearing contacts for the longest time.the pressure has gotten so bad, where i feel like i can't see straight and i get dizzy. i thought i was losing my mind, but ive discovered i'm not.so far, ive gotten a cat scan of my brain, that was normal.i went to eye doctors ..but not an opthamologist (normal)i went to an ear nose & throat doctor last...he said that there's inflammation on my right sinus..put me on antibiotics, allergy pills and nose sprays..also sent me for a cat scan of my sinuses.i have yet to bring them to the doc for him to look at.i looked at the scans myself, and i dont see anything..but i can be wrong.talk about annoying...i havent felt 'myself' for months.ive gotten depressed because i HATE going to doctors and NOBODY knows whats wrong with me..people are saying it's in my head.NO ITS NOTim not a hypocondriac.i know when i dont feel well.it upsets me that i cant go a full day without feeling 'abnormal'the past 2 days i haven't worn my contacts..im testing a new theory..i actually can see better..i dont feel like i'm going cross-eyed.my next step is for the ear nose & throat doc to review my scans and hopefully we'll figure out whats going on with me..if it's not my sinuses, maybe my eyes....geez...
    Anonymous 42789 Replies
    • December 20, 2006
    • 04:04 AM
    • 0
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  • i know its going to sound a bit crazy, but how close do you live to cellphone towers/electrical substations? how many cellphones/computers/tvs in your house and how much exposure do you have to them? the frequencies genereated by our high-tech society can have an impact on nerve impulses in the body, causing pain that no doctor can pinpoint through physical inspection.
    Anonymous 42789 Replies
    • December 23, 2006
    • 00:43 AM
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  • Have you looked into Trigeminal Neuralgia?
    Anonymous 42789 Replies
    • December 23, 2006
    • 07:20 AM
    • 0
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  • Someone please help me, I am in serious pain. Ihave had severe head/face ache every hour of every day for 6 months now. I have been to 2 ear nose throat doctors 2 neurologists, and seen my family doctor atliest 20 times now. I have had a ct scan and an mri. Both showed no sinusitus, tumors, or really anything. I have had blood tests done, and am going in for another mri in a week. Nobody seems to know what it is. I have taken 5 different types of antibiotics, 2 rounds of prednizone steroids, and a multitude of antiinflammatories and pain medication. The pain is in the corner of my eye and nose on the right side of my face, and inflames to my brow over my eye. Sometimes I feel like it is spreading to my temple. The ENT said it isnt sinusitus, and the Neurologist said it isnt migraine or cluster headaches. Although my symptoms are simmilar/same to cronic sinusitus, but there is no infection. I cant live like this. If anyone has anything at all PLEASE help!:( I Know the pain you are feeling I have had it for 2 years .It sounds to me like clusyer headaches which they call suicide headaches or trigeminal neuralgia. Keep trying dr. and medication until you find one that works.
    Anonymous 42789 Replies
    • January 14, 2007
    • 03:32 AM
    • 0
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  • with all the heavy antibiotic and steroid use you need to visit these websites: www.wholeapproach.com and www.candidasupport.org. Candida can cause extreme sinusitis and may not show up on tests. At the very least you need to be taking a good probiotic to help build up your intestinal flora. Please do the questionaire and saliva test on these websites to see if you have a candida concern. Western medicine doesn't believe candida overload exists, and if they do the antifungal treatments they recommend are very toxic! Also, consider trying acupuncture - it could really help with your pain and get you back on the path of health. Go to www.acufinder.com to find one near you. Hope this helps,Doctor of Oriental Medicine
    acuann 3080 Replies
    • January 14, 2007
    • 03:59 AM
    • 0
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  • I hear ya. I started 4 months ago with ' not seeing right" that turned into my whole head filling up with fluid and swelling on the inside, took 3 rounds of antibiotics, 5 rounds of steroids, had a brain MRI (normal) had a ct scan which showed some swelling and slight infection in the right cavity, have been on Nasacort, Astallyn nose spray, and taking Allegra. The funny thing is, this whole thing started with swelling underneath and behind my eyes and progressed with swelling all the way to the back of my head and now after all these medications, the sinuses are completely clear, but my eyes are still swollen underneath, especially my left eye, cant pop left left ear, and all they way down into the base of my skull. My right eye is only swollen underneath a little bit, and I could always pop my right ear. My whole left side and back of my head feels heavy. I am so sick of this. The last ENT I went to said it could be Acephalic migraines. I have news for him. I have always had those as well as regular migraines and yes it can cause nasal congestion but I have never had swollen eyes because of it, especially when my nose is completely clear.
    fluffyv 38 Replies
    • February 19, 2007
    • 03:36 AM
    • 0
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  • Hi there,I have put up with pressure like feelings in my head /neck along with swoosh like sensations for over 3 plus years now. It started when I had a bad cold virus. The doctor's have had me on antibiotic's, have sent me for blood work, eye test, CT scan, neck exray, MRI, ENT specialist and the list goes on. I have had appointments with two differenet neurologist. The first one did all the test's to rule out anything life threatening and the 2nd one is now sending me to what they call' the dizzy clinic'. They have also recommended what they call 'vestibular' therapy(which I have yet to begin, as I am waiting to see my family physician). They seem to think it is a Vestibular disorder http://hcd2.bupa.co.uk/fact_sheets/html/Dizziness.html I am humoring them for the time being....to see if they are right. I am usually an optimistic, but I am finding it hard to find truth in anything the doctor's suggest it could be. I am at my wits end as I am in pain every single day of my life. It is hard to work and do your normal day to day stuff. I am a single mom with two teenage daughters, that sometime's lose patience with their mom because they just don't understand. I have a very understanding boyfriend who is helping me push to find out what is going on in my head. I hope you find out what is wrong with you and if you, please pass the info along. I do sympathize with you...as I know everyday can be a challenge to get out of bed.
    jarremi 1 Replies
    • February 19, 2007
    • 09:29 PM
    • 0
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  • I tried going off my Nasacort nose spray last week because I didnt think it was helping. Today both my eyes are really swollen underneath and I can barely move my jaws. The inside of my face feel so stiff. When I grit my teeth, my nose bone sticks up in my forehead for a long time. I will finish my Ceftin after 20 days in 4 more days and then I get a repeat CT scan. This is just awful. How does a person function like this? The funny thing is, I havent had much drainage at all. Just mostly swelling. Whats up with all the swelling?
    fluffyv 38 Replies
    • February 24, 2007
    • 04:53 AM
    • 0
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  • Please note that facial swelling is a side effect of ceftin, and this is a very strong antibiotic. Also, nasacort is a steroid, and even though it is not an oral pill, it may still cause you problems if you if you suddenly stop taking it. Are you taking probiotics yet? Please do this - ceftin and other antibiotics can cause a horrible bacterial infection, clostridium difficile, which causes pseudomembraneous colitis. Taking a high dose of probiotics will help prevent this from happening. Trust me, you do not want this on top of all your other symptoms! I also recommend you try acupuncture to help with this pain - it is very effective and will really help. For info and to find a practitioner near you please visit www.acufinder.com. I have chronic sinusitis with facial pain and have had amazing relief with acupuncture and Chinese herbal medicine. It works! Best wishes.DOM
    acuann 3080 Replies
    • February 25, 2007
    • 01:30 AM
    • 0
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  • I know this might sound stupid, but to the multiple sufferers posting in this thread: have you tried seeing an eye doctor? Although I don't have the kind of pain you all have, I've had recurring and chronic sinusitis over the last two or three years. The first infection I had, I spent two weeks seeing doctors before one recognized it, and looking back now, I can say it was the most textbook sinus infection I've ever had. One of the things the doctors thought it might be before they properly diagnosed me was eyestrain. Apparently, if your prescription is just a little off or if your glasses are maladjusted, it can cause intense headaches that mimic sinusitis. Eyestrain might not be the cause of your pain, but it'll only take a few minutes to go to an opthamologist, or even somewhere like Iris or Lenscrafters and ask them to take a look at your eyes.
    Anonymous 42789 Replies
    • February 25, 2007
    • 04:41 AM
    • 0
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  • Ive been to the eye doctor 6 times in 4 months because when this whole thing first started, I thought I was having an allergic reaction to my Glaucoma drops. Im told my eyes are fine. Im feeling a little better today since I restarted my Astyllin and Nasacort nose spray. Will I ever get off this stuff? Im almost finished with my Antibiotic and Im getting scared the whole thing will start all over and I havent even gotten all the way better yet.
    Anonymous 42789 Replies
    • February 25, 2007
    • 05:34 AM
    • 0
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  • Reply to ACUANN: I am also on Diflucan which I just started last week. So far no real stomach issues and ya I know what ya mean about the colitis. Your right, that is not fun at all.
    Anonymous 42789 Replies
    • February 25, 2007
    • 05:39 AM
    • 0
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  • Two things: get your teeth checked...possibly a microscopic fracture in a back tooth that is irritating the nerve...a root canal might be the answer. Secondly, find a good chiropractor... cervical misalignment might be the cause of LOTS of misery...Wouldn't hurt to start taking a good probiotic, too. Been there and done that...Good luck
    Anonymous 42789 Replies
    • February 25, 2007
    • 07:02 AM
    • 0
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  • I had the same as you for years, everytime I went to the ear, nose and throat specialists they would say that I didn't have sinusitus, finally they took an mri from the top of my head, showing that 7 out of the 8 sinus cavities were completely closed, I had surgery to open them, it was horrendous, the pain went away for about 9 months and then all of a sudden it was all back, that was 10 years ago and now they tell me that I have chronic sinusitus and nothing they do or give me helps me, when the weather changes, especially when it is going to rain, my face throbs, the skin actually hurts. For the past 2 years I have been coughing, deep dry coughs that make my blood pressure go up to 200/100, now in the last year, I cough phlegm, it's white and sometimes it is complete foam, I've told my doctor and he says take Mucinex D because if it's white then it's not an infection, that helps a little, now in the last 2 months I cough up phlegm everytime I take a drink or try to eat, I literally have to cough up or nearly throw up phlegm for about 30 minutes before I can eat and then after I eat, the same thing. You can't sleep at night, it doesn't matter if you are sitting up or lying down. I looked on a site for chronic sinusitus and Mayo Clinic has been studying chronic sinusitus and say if you have all of this for a long time, they feel like it is candida, where your body has too much yeast and the only way you can get rid of all of it is to take something that cleans out your system completely. I just ordered some pills that are supposed to put oxygen back in to our blood streams so that phlegm cannot attach itself to our organs and we can breath better, I just started it. You may go to the Mayo Clinic site and see if this may pertain to you. I truly believe that this is my problem. There is not a day that goes by that I don't have some sinus problem, either severe headaches, itchy runny eyes, sneezing, my face hurting, feeling like a knife is stuck in my left eye, pain at the corner of my eye or all of it at the same time. I wish you much good luck.Someone please help me, I am in serious pain. Ihave had severe head/face ache every hour of every day for 6 months now. I have been to 2 ear nose throat doctors 2 neurologists, and seen my family doctor atliest 20 times now. I have had a ct scan and an mri. Both showed no sinusitus, tumors, or really anything. I have had blood tests done, and am going in for another mri in a week. Nobody seems to know what it is. I have taken 5 different types of antibiotics, 2 rounds of prednizone steroids, and a multitude of antiinflammatories and pain medication. The pain is in the corner of my eye and nose on the right side of my face, and inflames to my brow over my eye. Sometimes I feel like it is spreading to my temple. The ENT said it isnt sinusitus, and the Neurologist said it isnt migraine or cluster headaches. Although my symptoms are simmilar/same to cronic sinusitus, but there is no infection. I cant live like this. If anyone has anything at all PLEASE help!
    Anonymous 42789 Replies Flag this Response
  • Has anyone checked you for Trigeminal neuralgia? It sounds like that is what you have. The treatment usually involves high doses of the drug neurontin. The drug does have side effects but has worked wonderfully for my patients with this disorder.
    Anonymous 42789 Replies Flag this Response
  • Have you looked into Trigeminal Neuralgia?Exactly. Sounds like Trigeminal Neuralgia, which can be treated with Gabapentin (Neurontin is the brand name). I have atypical T.N. which is a burning sensation in my right ear and forehead. accompanied by severe fatigue. It was misdiagnosed for years until a wonderful doctor prescribed Neurontin. now symptoms are gone in a day instead of a flare up that lasted for weeks.
    Anonymous 42789 Replies Flag this Response
  • I had a very similar experience. Out of the blue I started to have these pains in my face, my checks under my eyes, my forhead, and even in my lower jaw. It felt as if I had being hit in the face with a baseball bat. I had had sinus infections in the past and figured I had another one, but the x-ray was normal. The Dr. gave me antibiotics anyway and some strong pain killers. Nothing seemed to have any effect. Then he ordered an MRI and a CT scan also normal. He then figured I must be depressed and prescribed Prozak. Still nothing until one day I started to notice a kink in my back and went to the Chiropractor. He told me that due to an earlier car accident I had had my C2 and C3 in my neck were out and putting pressure on the nerves leading to my face. BINGO!! Please go see a Chiropractor. It will change your life!!! I still get the head aches, but if I get adjusted, they go away after a couple of visits. Best of Luck.
    Cherrie627 1 Replies
    • September 18, 2007
    • 04:02 AM
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  • I'm thinking it's trigeminal neuralgia also. I notice you haven't mentioned it at all in your post.
    rad-skw 1605 Replies
    • September 19, 2007
    • 10:45 AM
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