Since high school (and some as early as childhood), I have battled many, MANY health issues that include:
Chronic tonsillitis and tonsil stones
Chronic and debilitating pain in immense amounts (especially shoulders, hips, legs)
Recurrent rash on arm
Chronic and debilitating fatigue
Migraines with and without auras that have turned into hemiplegic migraines in recent years
Documented weakness in the right side of my body
Recurrent infections of all sorts (mainly yeast, sinus, and bladder)
Inability to read properly (perceive written word...I'll explain later)
Hip and spine pain (explanation for this too)
Growing skin and vision photosensitivity
Irregular menstrual cycles
Chronic nausea, diarrhea, digestive pain
And most recently a large amount of blood in urine
As for tests I've received over the past few years:
Ova & Parasite Screening (neg)
Pap smears and STI "brushing" (neg for everything except yeast)
Occult Blood (neg)
Stool culture (neg)
C. Difflicile Toxin A & B (neg)
UGI With Small Bowel (barium swallow) (neg)
H. Pylori (2) (neg both times)
Comp metabolic panel + CO2 (Very low alkaline phosphatase)
CBC w/auto diff (5) (many, many different off values)
CT scans of pelvis and abdomen (ovarian cyst found)
Lipase (Low, outside standard range)
Basic metabolic panel
Hepatic function panel (total proteins high)
Celiac Panel (Was told it came out negative, had cut gluten entirely out for over a year when tested. IGA Serum very low.)
CT Brain Scan
Brain MRI (a year after brain CT scan, mentioned a "small posterior fossa arachnoid cyst vs. mega cisterna magna" that had gone unchanged for the past year. First I had heard about it)
Anti-Streptolysin O Screen W Reflex Titer (2) (both positive, years apart)
Strep Group A Culture (Positive)
"T4, Free" (average value)
Thyroid Stimulating Hormone (3) (average values)
Basic Metabolic Panel w GFR
Strep A Rapid Assay w/Optic (positive)
Lipid Profile (low LDL:HDL ratio?)
Lyme Antibody (neg)
Rheumatoid Factor (neg)
C Reactive Protein
ANA Screen (2) (First years ago positive, recent one neg)
Many EKGs, one of which was in the ER where the doctor told me to see my cardiologist immediately due to the fact he thought there could be a possibility I have Wolff-Parkinson-White Syndrome)
Event monitor (Found what cardiologist called "basic arrhythmia", though doctor did not listen to my concerns)
Vitamin D (insufficient. I take multivitamins and eat fairly well, lots of veggies, so I was surprised.)
And most recently:
Urinalysis ("Large" amount of blood in urine, WBC present)
Urine Culture (neg)
I have been on every antibiotic known to man it seems like. I get recurrent tonsillitis 2-4 times a year. I am always battling infections of some sort.
Living every day is a battle. The pain in my joints is immense. I can barely stay awake for four hours at a time. I get tunnel vision at work due to the pain and fatigue. I've had xrays of my back and hips to find that I have spine adjustment issues and a very shallow and high hip socket on one side, so that explains a little bit of my issues, but it doesn't explain everything.
I've been tested for lyme, lupus (or so my doctor thinks. I think maybe she used the wrong tests, or didn't use them all), and RA. I have had constant positive strep tests, so I'm considering this to be an issue.
I'm at the end of my rope and my budget. I rack up thousands of dollars of bills a year with tests and visits for the incidental issues, and I only work part-time for minimum wage. I cannot keep doing this.
If anyone has any suggestions, please help.
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