Discussions By Condition: I cannot get a diagnosis.

Over 20 Symptoms and years of illness please help...

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: amlich
  • May 27, 2011
  • 07:10 AM

I am 23. I have been pretty sick for about 4yrs. It all started 4yrs ago I got a uti, took antibiotics for 1 month to get rid of it, ended up with severe C-difficle, hospitalized for a week, while in hospital found a DVT blood clot in my hip. Struggled with recurring C-Diff for 2 years.

Now 2 months ago I was admitted into the hospital with fatigue, diarrhea, vomiting, nausea, low blood pressure, heart palpitations, and body ache. I was extremely sick. While I was in the hospital they found a 7mm adrenal nodule, and told me to get further testing. They sent me home after 2 days with a diagnosis of the Flu. So I have been getting tests ever since, finally my endo is testing for Adrenal Insufficiency. So here are my symptoms and most recent test results.

Symptoms (daily, weekly, monthly)
extreme fatigue
weak bones and muscles
chronic diarrhea
weight loss and inability to gain weight (used to weigh 128 now 105 or less)
low appetite
low libido
dizziness when standing
low blood pressure 90/50-108/60 on avg
occasional heart palpitations
insomnia
extreme mood swings
anxiety
extreme irritability
recurring yeast infections every months
frequent UTIs
very painful menstrual cramps
heavy menstrual bleeding
acne one chest, back
very thin nails
itchy dry skin and scalp
red splotchy hands and dark feet
occasional chest pains

Test Results (So far doctor says everything is normal)
Random Cortisol (11:17am) 6.2 ug/dl
ACTH, plasma 14pg/ml
Sodium 140mmol/l
Potassium 4.1mmol/l
DHEA Sulfate 120 ug/dl
TSH w/reflex to Free t4 tsh 1.02mu/l
Testosterone Total 19ng/dl

So do those numbers look normal to you? I have been mis-diagnosed so many times in the past, so I always want second opinions. I demanded an ATCH stim test, which I did yesterday and should receive results next week. I am worried though because my stress has been very high lately from all the pain i've been in. Doctor says if test comes back negative we can completely rule out adrenal insufficiency. If negative any suggestions on what route to take next? Any ideas what could be going on? I am so desperate to feel better! I can hardly function http://www.healthboards.com/ubb/frown.gif

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