Discussions By Condition: I cannot get a diagnosis.

Optic Neuritis won't go away

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: reedmce
  • February 6, 2007
  • 08:57 PM

I was diagnosed with optic neuritis in 2003, I had a solumedrol/Prednisolone drip IV then oral steriods. An MRI showed no lesions of myelin beyond that which is in my eye. It has not gotten better in 4 years, and I cannot get any diagnosis other than the onset of MS, (but I haven't had another "attack" in any other part of my body, which would "officially qualify" me for the MS diagnosis) any ideas what could be causing the ON?

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7 Replies:

  • I have been working for Ophthal. for over 13 yrs and MS can cause Optic Neuritis. Are you seeing a Specialty Ophthalmologist...If not perhaps you could ask for a referral to a neuro Ophthalmologist....maybe they could help.
    Anonymous 42789 Replies
    • February 24, 2007
    • 06:12 AM
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  • I too am experiencing optic neuritis, and I have had every test done and everything is normal. I am looking for answers too. I would love to hear more about your story maybe we can help each other. I have to know what the cause of this is. I have been doing nothing but research and cant figure it out, everything leads to MS but I definetly do not have MS. This is very faustrating, I too went through the steriods and then on the predisone and I am now going on my 4 reaccurence since October, Doctors cant figure it out? Have you had a spinal tap?
    Anonymous 42789 Replies Flag this Response
  • I was recently diagnosed with optic neuritis as well. I had the solumedrol iv a few weeks ago, and I think my vision is getting worse. I too had an MRI and showed no Signs of MS. I really am itching to find out the cause, literally itching, because my body itches all over all the time for the last few days. Any possiblities, and experience is welcomed.
    Anonymous 42789 Replies Flag this Response
  • In July, 2009 I experienced extreme pain in my left eye and was diagnosed with Optic Neuritis while on vacation. Was given IV steroid drip for 5 days, saw neurologist and opthmologist, had MRI. Upon return home, saw neurologist and opthamologist in my residence area. Had a second MRI and spinal tap. Diagnois (due to lesions shown in MRI and 5 bands in spinal fluid) is Multiple Sclerosis. Optic neuritis pain immediately left after fist IV drip. Vision gradually improved with each daily IV drip from "total black curtain" to blurry vision and no "black curtain". After 5th IV drip, vision was like looking through a cracked windshield. In September, visit to opthmologist and resulting tests showed left eye atrophy and "legal blindness". Today, vision in that eye is dim and like looking at an "out of focus" picture. I am to see opthmologist this week (October) and was told if vision not improved by then, it probably will not improve beyond what it is. I itch just like one of the other posts on this subject. I have not had another attack. To diagnose the cause of Optic Neuritis and to rule in or out MS, a good MRI AND spinal tap, along with other symptoms being experienced i.e. fatigue, balance problems, numbness, itching, sensitivity to heat, etc. should be taken. Wrong diagnosis or not, I am following a fat free diet, taking recommended vitamins and doing everything I can to avoid another attack just in case my diagnos is correct. All optic neuritis patients should do the same.
    Anonymous 42789 Replies
    • October 20, 2009
    • 04:26 PM
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  • Same scenario with me - 10/15/09; had solumedrol drip 4 days; pain gone - sight hasn't returned yet. What kind of diet and what vitamins were you advised to take? My doctor hasn't suggested anything yet.In July, 2009 I experienced extreme pain in my left eye and was diagnosed with Optic Neuritis while on vacation. Was given IV steroid drip for 5 days, saw neurologist and opthmologist, had MRI. Upon return home, saw neurologist and opthamologist in my residence area. Had a second MRI and spinal tap. Diagnois (due to lesions shown in MRI and 5 bands in spinal fluid) is Multiple Sclerosis. Optic neuritis pain immediately left after fist IV drip. Vision gradually improved with each daily IV drip from "total black curtain" to blurry vision and no "black curtain". After 5th IV drip, vision was like looking through a cracked windshield. In September, visit to opthmologist and resulting tests showed left eye atrophy and "legal blindness". Today, vision in that eye is dim and like looking at an "out of focus" picture. I am to see opthmologist this week (October) and was told if vision not improved by then, it probably will not improve beyond what it is. I itch just like one of the other posts on this subject. I have not had another attack. To diagnose the cause of Optic Neuritis and to rule in or out MS, a good MRI AND spinal tap, along with other symptoms being experienced i.e. fatigue, balance problems, numbness, itching, sensitivity to heat, etc. should be taken. Wrong diagnosis or not, I am following a fat free diet, taking recommended vitamins and doing everything I can to avoid another attack just in case my diagnos is correct. All optic neuritis patients should do the same.
    Anonymous 42789 Replies
    • October 22, 2009
    • 01:36 AM
    • 0
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  • i too am experiencing optic neuritis, and i have had every test done and everything is normal. I am looking for answers too. I would love to hear more about your story maybe we can help each other. I have to know what the cause of this is. I have been doing nothing but research and cant figure it out, everything leads to ms but i definetly do not have ms. This is very faustrating, i too went through the steriods and then on the predisone and i am now going on my 4 reaccurence since october, doctors cant figure it out? Have you had a spinal tap?hi, yes i to am having exactly the same problems as yourself, i was diagnosed with o.n back in may 2009, i have had every possible test that is availible for this including a lumber puncture, but nothing, absokutly nothing abnormal is coming back, i have also lost all sensations in both my legs since about a week after the onset, i went on high dose steroids for around 4 months then every time that they drop the dosage the o.n comes back, now they tell me that this will be my last dose of steroids and thats it,i cant have any more so it looks like im going to lose my sight in a little while, im scared i can tell you
    jags1005 1 Replies
    • February 12, 2010
    • 04:05 PM
    • 0
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  • Get a check up on your teeth. Its rare but a bad root canal can cause an unexplained optic neuritis or papilledema. Search for "focal infection".
    Anonymous 42789 Replies Flag this Response
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