Discussions By Condition: I cannot get a diagnosis.

One-sided back pain, flank pain, fatigue, chills, muscle weakness - 3 Months

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: caoimhin
  • February 12, 2009
  • 06:40 AM

Good evening everyone! This is such a wonderful community, and it's very generous of all of you to give up your time to help. I thank you all in advance for any insight you can offer.

I'm a 23 year old male with average build, and no significant medical history. Past surgeries include removal of gynecomastia on my left breast and wisdom teeth.

Since November, I've been suffering from back pain on my right side--between my upper lumbar area and lower thoracic area. The pain typically occurs a few inches to the right of my spine, several ribs up.

The pain is occasionally felt as tenderness on my right flank, in particular when I'm laying on that side (which I try to avoid), but otherwise is an internal pain that I generally can't reproduce by pressing anywhere.

The pain started as a dull ache, but has recently felt "crisper." I've been having occasional pangs of pain that feel like pinched nerves.

I have also had mild to moderate fatigue that presented at the same time as the pain. I have a harder time waking up in the morning and am lethargic throughout the day. I have occasionally been waking up with slight chills--I'll wake up curled into a ball. A few seconds after I wake up, my temperature seems to return to normal. I have no fever or sweating accompanying the chills.

Finally, over the past few days, I've felt a bit of muscle soreness in my thighs, shins, and forearms. It feels as if I've been punched--charlie horse style--in each of my limbs. This could be unrelated, but I can't think of any exercise or exertion that could have caused it.

DIAGNOSTICS:

I have had a fairly sophisticated work-up.

2 CT scans of the abdomen/pelvis, one with IV contrast - Normal
Colonoscopy - Normal
X-Ray of lumbar spine - Normal
X-Ray of ribs - Normal
Chest X-Ray - Normal
MRI of lumbar and thoracic spine - Normal
Ultrasound of kidneys - Normal
Ultrasound of gallbladder - Normal
Bloodwork (lyme disease, mono spot, Epstein-Barr) - Negative (positive for chronic EBV, because of mono I had 5 years ago)
Thyroid - Normal
CMP - Normal
several CBCs - Normal, except for slightly high Eosinophil percentage (8%), and slightly elevated C-Reactive Protein (0.9 mg/L). My doctor did not believe either was significant. Red and white counts are normal.

So here I am--trying not to worry. The pain is real--and my doctor hasn't been able to diagnose anything. I've been through the gamut of self-diagnoses and would love to have some sort of direction to take from here. At this point, I'm lost!

Thank you in advance for your time. I know everyone must be busy.

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7 Replies:

  • HiI just wondered if you have ever eaten undercooked pork.Muscle aches and chills could possibly be from Trichinella cysts in you muscles.I would expect your eosinophil count to be higher though.You can be tested for antibodies to Trichinella if you have eaten undercooked pork.
    chrismia 159 Replies
    • February 12, 2009
    • 00:45 PM
    • 0
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  • Undercooked pork, eh? Not that I can recall, although that's certainly possible.What does everyone think about lyme disease? I know I tested negative, but I've read things all over the place about false negatives--lots of factors that interfere with the test. An ER doc gave me 5 days of Flagyl which I took prior to the lyme test. It seems that that could have thrown it off. Any thoughts?
    caoimhin 6 Replies
    • February 13, 2009
    • 05:37 AM
    • 0
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  • Also wondering about gut bacterial populations. I just started taking a potent probiotic -- VSL #3. Could underpopulation cause any of these symptoms?
    caoimhin 6 Replies
    • February 14, 2009
    • 07:17 AM
    • 0
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  • So, I have been experiencing very similar symptoms over the last three months except that my chills are almost always present. My flank pain is just as you describe and sometimes goes up my back a bit farther. All of my imaging studies are negative except for an enlarged spleen. My blood results are also negative with the exception of my reticulocyte count and heptaglobin (my doctor suspected hemolysis taking place because of the enlarged spleen). Any update on your condition? Are you feeling better and did anything help? I'm clearly getting frustrated with this.
    gmozes 1 Replies Flag this Response
  • I would look into Fibromyalgia/ Chronic Fatigue Syndrome... I went through the same problems about 2 years ago... went to many doc's and went through many tests (ALL negative) my doc's decided that I have Fibromyalgia (FMS) along with Irritable Bowel Syndrome (IBS)...something to look into. Good luck in your search for answers!
    Anonymous 42789 Replies Flag this Response
  • hi, dontknow if you have found an answer yet,but i had similar symptoms a few years back and no doc could find anything and then i found this great doc that asked a few different questions and it turned out to be ablood clot in my lung... i felt cold from the inside out, always lying down, always had pleuracy/pneumoia for ages and it thats what it was... hope this helps
    Anonymous 42789 Replies
    • October 22, 2009
    • 00:16 PM
    • 0
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  • hi, dontknow if you have found an answer yet,but i had similar symptoms a few years back and no doc could find anything and then i found this great doc that asked a few different questions and it turned out to be ablood clot in my lung... i felt cold from the inside out, always lying down, always had pleuracy/pneumoia for ages and it thats what it was... hope this helps..... I am having a lot of the same issues. I have Celiacs and think it may be something I ate, although I have never had symptoms like this. I hope you feel better.
    Anonymous 42789 Replies
    • October 27, 2009
    • 02:55 AM
    • 0
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