Discussions By Condition: I cannot get a diagnosis.

OK, My turn to pick your brains ... mommy cat and whoever wants to help

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: Anonymous
  • August 10, 2007
  • 10:03 AM

I have yet to be diagnosed for one problem which started just about the same time my hypothyroid symptoms worsened in February of this year.

This will be long but hopefully give you the full picture.

I'll begin with the last 1 and 3/4 months, June 14, 2007, when I was appropriately flagging on Flag Day in the US. When my sx's worsened again after getting on the right dose of thyroid replacement - a case of too late for the medication - I was rushed to the ER by ambulance. The paramedics had a difficult time controlling my bp - 3 nitro sublingual without significant reduction so they resorted to morphine too. One of the symptoms was shortness of breath (which I'll use the shortened acronym from now on) or SOB aka dyspnea. When the paramedics put me on oxygen - wow - for the first time in months I felt good. I can't explain that good feeling. However, my doctors all chocked it up to being hypoT and breathing more shallow. I also had chest pain and coolness in my arms. With all the sx's I thought - heart attack.

After a battery of tests and an exam I was told I have an enlarged heart in my right ventricle, possibly congestive heart failure or could develop it, bradycardia with 1st degree heart block, severe under treated hypothyroidism, and stage II hypertension. This is what happens when doctors refuse to treat thyroid disease in a timely and proper manner. My diuretic Triamterene/HCTZ was increased from 1/2 tablet to 1 tablet per day. My BP at home when the paramedics took it was 174/69.

On July 26 I saw my new endocrinologist, whom I like. He increased my thyroid medication which after about two weeks started to help me. However, I then had the infamous flare after about 3.5 weeks where the sx's kick into the high gear of hyperthyroidism. So for a week I felt awful only to have those sx's subside and feel my metabolism change. I started losing some weight.

From June 14 until now, I haven't been able to exert myself without post exertion fatigue and SOB. Those sx's would come hours afterwards or the next day. Now the fatigue is nothing like that of hypothyroid. However, just the same I was fatigued. My chest pain wasn't kicking in until I exerted myself beyond just a walk around my house on the inside.

BTW, for the past 4 months I've been housebound because of the hypothyroid and the complications. My only excursions are to the doctors.

I started noticing an increase in my sx's starting July 29th when I decided to walk around a large warehouse store instead of using the scooter. MISTAKE! One of my sx's when I first presented with hypothyroid was post-menopausal bleeding caused by anovulation and resulting in minimal hyperplasia of the endometrium. The next day after I executed my stint I started bleeding again for the first time in 6 weeks. In addition I had chest pain, SOB, and fatigue. I rested for that day and the next. However, the bleeding persisted with spotting which is how it has always been. And then the SOB and fatigue would follow every exertion. It was minor but noticeable and annoying.

Finally, this week the bleeding worsened and I suspected it was the diuretic. I did some research on the www and found it can cause easy bruising and bleeding. Both of which I have. So I called my doctor and got to see her that day. I came in initially with the bleeding but one thing lead to another and I shared about the SOB and fatigue. So she decided to send me to a cardiologist who I don't see until the first week in September. (Don't know if I'll wait that long.)

Meanwhile in her office she did a test of my pulse ox with the oximeter. Sitting down my pulse ox was 98%. When I stood it decreased to 96% and after a short time walking one short hallway several times (until I had SOB, less than 3 minutes), it dropped to 92%. She said that is not normal. And confirmed that this is a serious situation, thus the referral to a cardiologist.

I was sent home with a prescription for progesterone to stop the bleeding and told to stop the diuretic. Also the diuretic has cross reactions to sulfa drugs. I am allergic to sulfa drugs. She said it was rare. Yet in the back of my mind I wonder it the SOB and fatigue and chest pain could be allergic reaction. I also had this red flushing on my arms and legs. My arms would be itchy too. And I had some photosensitivity. :eek:

After reading the complications of taking the progesterone, I held off one day. But knew I had to take it when I started really bleeding. It was no longer spotting but bright red blood and huge clots and soaking through my pad. I took the medication and the bleeding decreased considerably within 8 hours.

Meanwhile, when I stopped taking the diuretic I felt somewhat better, less SOB and fatigue, so I decided to vacuum my entire house, that was Wednesday, August 8th. Last time, I got halfway through and had to sit down with chest pain, SOB, and fatigue. I never finished it all. That was three weeks ago. This time, I made it all the way through without SOB, fatigue, and chest pain during it. However, afterwards I was fatigued and had some SOB. All the sx's subsided after about 3-4 hours.

Then Thursday I did laundry and I started having more SOB. It feels as though I'm breathing through a straw or drowning in a pool yet without water in my lungs. The only way to catch a breath and feel like I won't pass out is to stand up and slightly lean over. Going outside where the air was cooler helped too. However, coming back in my house it's back again when I sit down. I went through a very scary, intense couple of hours in the evening when I couldn't breath enough air in through my nose. So I breathed using both my nose and mouth at once. That helped and then the chest pain started. And one other sx which I've had before started again, dry coughing. And a sharp stabbing pain in my back right where my heart is. I've had this before too. And then my left shoulder was hurting after all this SOB, chest pain, sharp stabbing pain, and fatigue.

Now without the diuretic, my legs and arms are swelling up and I'm sure my blood pressure is going back up too. :eek: It was good at the doctor's office on Tuesday, 112/72 without taking my diuretic that day.

So my plan of action is:
Calling the doctor today and telling her what's happening to my body.
Telling the doctor about the bleeding ceasing.
And asking to see a specialist sooner than September.

Thoughts and questionings:
Maybe the SOB is because of swelling somewhere?
Allergic reaction to the diuretic?
Heart problems beyond what they determined in the ER?
Lung problems?


And now I ask for your thoughts mommy cat, eatafruit and others.

Thank you for reading.
RK

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14 Replies:

  • Dxd....Hello again!!!!!!You may not believe me but this is true...I was sick a long tome...thyroid issues, heart issues, ovary issues ect...I have CFS. I was sick....dying.Eatafruit recommended I go for Bioset therapy...a form of NAET...I was desperate, so I did.truth is...it works...no matter what the "diagnosis" is that the docs give you.We are trained (brainwashed) into believing that every disease is different and requires different treatment...not true...Bioset works...If you want to help yourself and get your life back, forget the traditional docs we are brainwashed into believing. They will run tests, find nothing and give you meds to "mask" your symptoms. Obviously you are also having some autoimmune issues as well.The thyroid is greatly affected by CFS as well as the heart and ovaries. Problem is, traditional docs don't know how to treat alot of these emerging diseases like CFS and Fibromyalgia......I was on Lortab for joint and muscle pain...and Xanax for "anxiety". My pain and anxiety have disappeared so no more meds for me!!!! yeah!!!!!!!!!!!!!!!truth is with CFS people have multiple chemical sensitivites and increase or new "allergies"...My symptoms were the effect of my body "rejecting" many things I came into contact with.A story....A young woman presents in the ER...screaming at the top of her lungs...attempting to rip her clothes off of herself...scratching and clawing herself and hospital staff. They immediately treat her as if she is a "psych" patient and give her meds to subdue her.She attends Bioset therapy and realizes infact, she is "allergic" to polyester, which was what was in her clothes at the time of this "issue" Instead of her body going into anaphalactic shock or getting a rash...it exhibited itself in a manifestation of "mental" symptoms.Not a psych patient after all...just a sick little girl with CFS who was having multiple "allergies"Hope this helps...we are working together to help others...as there are many who need our help. Eatafruit and I are just 2 from this forum working together...best to you...nice chatting with you again...Be well and I hope this helps...GO FOR NAET OR BIOSET....GET YOUR LIFE BACK...WE DID!!!!!LOVE, MOMMY CAT:D
    mommy cat 1654 Replies
    • August 10, 2007
    • 00:23 PM
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  • Dxd...the first time I read your post I thought you had this too!!Here are the symptoms...yours are in red. Sore throat, chills, sweats, low body temperature, low grade fever, lymphadenopathy, muscle weakness (or paralysis), muscle pain, muscle twitches or spasms, gelling of the joints, hypoglycaemia, hair loss, nausea, vomiting, vertigo, chest pain, cardiac arrhythmia, resting tachycardia, orthostatic tachycardia, orthostatic fainting or faintness, circulatory problems, to include blood pressure issues, flushing, opthalmoplegia, eye pain, photophobia, blurred vision, wavy visual field, and other visual and neurological disturbances, hyperacuity, tinnitus, alcohol intolerance, gastrointestinal and digestive disturbances, allergies and sensitivities to many previously well-tolerated foods, drug sensitivities, stroke-like episodes, nystagmus, difficulty swallowing, weight changes, paresthesias, polyneuropathy, proprioception difficulties, thyroid malfunction, myoclonus, temporal lobe and other types of seizures, an inability to maintain consciousness for more than short periods at a time, confusion, disorientation, spatial disorientation, disequilibrium, breathing difficulties, emotional lability, sleep disorders; sleep paralysis, fragmented sleep, difficulty initiating sleep, lack of deep-stage sleep and/or a disrupted circadian rhythm. Neurocognitive dysfunction may include cognitive, motor and perceptual disturbances. Cognitive dysfunction may be pronounced and may include; difficulty or an inability to speak (or understand speech), difficulty or an inability to read or write or to do basic mathematics, difficulty with simultaneous processing, poor concentration, difficulty with sequencing and problems with memory including; difficulty making new memories, difficulty recalling formed memories and difficulties with visual and verbal recall (eg. facial agnosia). There is often a marked loss in verbal and performance intelligence quotient (IQ). The other symptoms you mentioned are a part of this too, just because they do not appear in the list...trust me, I lived it...likepost exertional fatigueshortness of breathhouseboundirregular bleedingitchingdry coughstabbing painI also suffered diarrhea, nausea, tinnitus, vertigo...the whole gammet!! Wishing you well and letting you know it goes way beyond a malfunctioning thyroid!! That is just one part of the whole picture...see, all these symptoms are not explained by a malfunctioning thyroid.Love, mommy cat:)
    mommy cat 1654 Replies
    • August 10, 2007
    • 01:14 PM
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  • Ok Dxd- I am reading your story- and I am not going to lie- I did not finish reading because I am afraid it is all too clear. You are having allergic reactions to the drugs/hormones since the very beggining of the story. You are taking meds that you are allergic to!You are not hypo or hyper nothing! You are allergic to your hormones!Listen- it sounds crazy- but it is true! You are allergic to your hormones- they are there in your system but they don't work because the rest of the body is not allowing them to function! It is not that you have too much or too little hormones- you have the right amount but you are allergic to them! that's why you have the condition.Phewww you are loosing weight because your body is using all your reserves to 'fight off' the invading substance: all the hormones you are dumping into your blood stream. You don't have any instant energy, and I won't be surprised if you are increasing your simple carbs intake as your body is exhausted trying to fight off the hormones as if they were pathogens.The heart thingy- (this is as far as I read/skimmed) is happening because inflammation is a common mechanism of defense of the body- your neurtransmitters are trying to 'proctect' the heart so they are willing to kill the heart, trying to keep it from getting invaded by all the hormones that you are taking.I bet all I am saying sounds like the most anti-scientific thing you ever read in your life. If you want to stop this misery try NAET. At least read about it. Read Nambudripad's book (amazon.com).The mainstream medicine for the masses is like McDonald's - you get cheap stuff that won't substain you.Please listen to me- Ever since I got sick back in November I work over 40 hours a week researching on disease.I am completely recovered and I can back up all I am saying, but you have to be willing to read 300 research papers or just go ahead and try NAET and ask for an explanation from the NAET doctor.Please! I am begging you- open your mind a tiny bit. I don't want to leave the wealth of society in the hands of doctors- it is the responsibility of all of us.Frui.
    Eatafruit78 960 Replies
    • August 10, 2007
    • 04:21 PM
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  • Ok Dxd- I am reading your story- and I am not going to lie- I did not finish reading because I am afraid it is all too clear. You are having allergic reactions to the drugs/hormones since the very beggining of the story. You are taking meds that you are allergic to!You are not hypo or hyper nothing! You are allergic to your hormones!Listen- it sounds crazy- but it is true! You are allergic to your hormones- they are there in your system but they don't work because the rest of the body is not allowing them to function! It is not that you have too much or too little hormones- you have the right amount but you are allergic to them! that's why you have the condition.Frui.Thank you for reading what you did.There is a version of thyroid medication which has no fillers, additives, etc. which I might request.First I'll read the Bioset and NAET information.Thanks for response.
    Anonymous 42789 Replies
    • August 10, 2007
    • 04:59 PM
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  • Do you know there are xenoestrogen hormones in Laundry detergent?Shortness of breath when in contact with petrochemicals- just one of those 'things' I already dealt with.Frui.For the whole enchilada rustyangel3000 at hot mail dot comYou are very Welcome... :)Sincerely, Mar.ps: sorry Honey, I finshed reading your whole story, I have been there- survived that.
    Eatafruit78 960 Replies
    • August 10, 2007
    • 05:01 PM
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  • NAET.comQ. "• How do I know if NAET® is right for me?" http://www.naet.com/subscribers/top.GIF A. If you are a patient, and would like to find out if NAET® could help with your condition, you should read the book, Say Goodbye to Illness by Devi S. Nambudripad, M.D. (WI), D.C., L.Ac., Ph.D. (Acu.). If you suffer from any allergic condition (food, chemical, environmental, emotional allergies)or if your health condition has developed from any allergy, no matter how long you have been sick, or how old you are (we have treated patients aged between 3 days old to 96 years old), NAET® can help you. Please read the book to find a case history similar to yours in the book. After reading the book, if you would like to begin NAET® treatment, please look up the practitioner locator section to find a NAET® specialist near you. We will update the practitioners’ list every month. You may need numerous NAET® treatments before you begin to feel better if your condition is serious, you have a poor immune system, or if you have been sick for a long time. Use the book Living Pain Free to help you keep balanced. Q. "What is going on, Doctor? One minute I feel fine and the next minute, I feel terrible." http://www.naet.com/subscribers/top.GIF A. If the statistics are true, this question is asked by more than 50% of the people who enter their doctors' offices as patients seeking answers to the misery of allergic reactions to what they inhale, ingest or contact in their environments every day. If you find yourself in this select group, you know the frustration and hopelessness your condition has produced. The lucky patients have isolated the specific allergen and are avoiding it, but for the unlucky, the allergen either cannot be avoided without complete isolation, or it remains undiagnosed, resulting in severe and chronic ailments. Q. "Do you mean that allergies can cause real illness?" http://www.naet.com/subscribers/top.GIF A. They certainly can! When a virus attacks, an amazing defense mechanism goes into action. The struggle to rid the body of the invading virus we recognize as the symptoms of illness, such as fever, coughing, aches, vomiting, fatigue, etc. These are, in fact, signals of the battle that is going on inside the body as it tries to throw off the invading toxins-producing virus. Untreated, the symptoms increase with serious results. Similarly, continuous contact with an allergen produces toxins in the body, causing similar reactions to occur. An undiagnosed or undetected allergic condition will produce conditions that are equally serious. Many times the allergic reactions produce symptoms that mimic other conditions. Respiratory problems like bronchitis, pneumonia, and asthma, circulatory problems like chest muscle pains, poor circulation, rapid heartbeats, heart irregularities, gastrointestinal problems like indigestion, acute abdominal pains, acute appendicitis, bloating, constipation, diarrhea and ulcers, genito-urinary problems like kidney and bladder infections, prostate troubles, pre-menstrual syndromes and post menstrual disorders, impotency, infertility, muskulo-skeletal problems like unexplained pains anywhere in the body, various types of headaches, backaches, arthritis, restless leg syndrome, brain symptoms like brain fog, depression, anger, attention-deficit disorders, hyperactivity, learning disorders, skin problems like eczema, boils, slow healing wounds, environmental reactions like multiple chemical sensitivity, allergy to pollens, perfumes, animal dander, carpets, building materials, etc .... just about any health condition could be merely a symptom of underlying allergies. If such conditions are not diagnosed correctly, the patient may receive a treatment procedure that may further complicate the patient's condition.
    Eatafruit78 960 Replies
    • August 10, 2007
    • 06:15 PM
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  • What is your thyroid med ? There are much more natural things to help than the meds. And what do they test for your thyroid ? Only TSH ? On the diuretuc - what one ? Is it potassium sparing or depleting. Cause if it gets lots of potassium out and you don't replace it, watch out ! Does sound like CHF but why ? And the reccs for NAET etc is good also. After a stroke my ex determined that I was allergic to one of the drugs and it helped. Also just remembered had one patient on thyroid meds who was allergic and after 3 rounds of NAET the dose in cooperation with the prescribing MD we lowered by 75%.
    Anonymous 42789 Replies
    • August 11, 2007
    • 03:57 AM
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  • :D Go Ralph!!!!!!....Glad to see you again....I'm still investigating the Lyme...heavily. The Bioset I've done has given me back my life!!Thanks for all of your info...mommy cat:D
    mommy cat 1654 Replies
    • August 12, 2007
    • 01:32 AM
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  • :D Go Ralph!!!!!!....Glad to see you again....I'm still investigating the Lyme...heavily. The Bioset I've done has given me back my life!!Thanks for all of your info...mommy cat:D
    mommy cat 1654 Replies
    • August 12, 2007
    • 01:37 AM
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  • 31 March 2006Are You Allergic To Your Own Hormones? Women that suffer from menstrual cycle disorders like asthma and migraine headaches may in fact have an allergy to their own estrogen and progesterone hormones, say researchers from the University of Texas. Their study, in the American Journal of Reproductive Immunology, could go a long way to helping explain the misery that many women suffer from period related illnesses like asthma, migraines and joint pain. Researchers Russell Roby and Aristo Vojdani found that women who experienced health changes during their menstrual cycle had higher levels of progesterone and estrogen antibodies, typically indicating an allergic response. Antibodies play a critical role in the body's immune system and are produced by the body in response to substances the body recognizes as foreign. It was previously thought that hormone molecules were too small to create an allergic response, so they were never suspected of playing a role in allergic reactions. But the researchers found that estrogen and progesterone combine with other proteins and that the hormone part of this new molecular complex then becomes a target for the antibodies. "We have shown that antibodies are produced against estrogen and progesterone," said Roby. "This opens a whole new area of treatment possibilities," he added, citing interstitial cystitis and fibromyalgia as two conditions that could benefit from this new understanding. Source: University of Texas at Austin http://www.aphroditewomenshealth.com/news/20060230233713_health_news.shtml
    Eatafruit78 960 Replies
    • August 12, 2007
    • 03:26 AM
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  • Ellen Cutler, D.C. Hormone Allergy January 25, 2006 · Filed under health conditions Most women are sensitive to their own hormones. In fact Premenstrual Syndrome and premenopause symptoms can be easily resolved when this sensitivity is cleared. The three most common hormones that women are sensitive are estrogen, progesterone and thyroxine. Estrogen sensitivity may cause fibrocystic breasts, fibroids and endometriosis as well as weight gain and modd swings and asthma later on in life Progesterone sensitivity is the most severe in terms of mood swings, depression and bloating and puffiness. It can also cause rashes, muscle pain, and breast tenderness premenstrually as well as asthma Throxine is very common. This hormone is the primary hormone secreted by the thyoid gland. An allergy to this hormone can cause weight gain, rashes, depression and fatigue and contribute to other allergies. Thyroxine sensivities are made worse by drinking caffeine and eating refined sugar and carbohydrates. http://drellencutler.wordpress.com/2006/01/25/hormone-allergy/
    Eatafruit78 960 Replies
    • August 12, 2007
    • 03:59 AM
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  • Very good points on the possible allergy / sensitivity to your own hormones. Dr. Cutler is very sharp, she trained with Dr. Nambudripad many years ago.
    Anonymous 42789 Replies
    • August 12, 2007
    • 04:18 AM
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  • Very good points on the possible allergy / sensitivity to your own hormones. Dr. Cutler is very sharp, she trained with Dr. Nambudripad many years ago.Hello Dr. RalphHow are you? Busy, busy, busy? :)Hello Dxd?How are you? Hope everyone is doing okay.
    Eatafruit78 960 Replies
    • August 17, 2007
    • 08:58 PM
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  • So my plan of action is:Calling the doctor today and telling her what's happening to my body.Telling the doctor about the bleeding ceasing.And asking to see a specialist sooner than September. sounds good. I'd be interested to hear what is found when you see specialist. Many of your symptoms do sound as if something is going on with the heart. Sounds like you need an exercise stress test etc done to see what your heart is doing with exertion etc. As far as whether you have CFS or not.. its hard to say as you have too much other medical things going on (with the possible heart issues and thyroid probs).
    taniaaust1 2267 Replies
    • August 18, 2007
    • 03:29 AM
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