Discussions By Condition: I cannot get a diagnosis.

Nystagmus, hypothermia and cognitive changes

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: justyna
  • November 14, 2010
  • 05:15 AM

My daughter has seen several neurologists, a psychiatrist and sleep specialist. No diagnosis and the ideas they suggest just don't add up.

Episodes:
Violent rapid eye movements
Drop in body temperature
Difficulty processing thoughts, speaking
Fatigue

Durations:
10 minutes to 8 hours

Frequency:
2-3 per week

Triggers:
upon waking

Result:
exhausted and wants to go back to sleep

The doctors have gotten bored. They have run out of ideas. Does not respond to seizure meds. No seizure type activities. She is not "asleep". Neurologist says not seizures. Psychiatrist says it is not psychiatric. Sleep specialist says she is not asleep. Each specialist just refers to another specialty so we are going around in circles. I think it is something "new". We have tried treating with benodryl with no change.

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.