Discussions By Condition: I cannot get a diagnosis.

Numerous symtoms, no answers

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Anonymous
  • September 30, 2007
  • 11:52 PM

Hi. I have had many problems over the last six years. When my first child was 5 1/2 months old, I was hospitalized with exertional rhabdomyolysis. I had problems with weight gain after this. I was diagnosed with polycystic ovary syndrome, PCOS. I had been trying to get pregnant. I began taking glucopage. I was pregnant almost immediately. I had to take the glucophage for the first trimester.

After my second child, I had to take the glucophage again. My cycles were never regular. I began to take 2000 mg of glucophage daily. The cycles still were abnormal. I was having a period every 2 wks. I had an endometrial ablation, (sp?). I was still having periods. I began having large cysts on my ovaries on top of the small pearl cysts. I then had a complete hysterectomy. That was 4-06.

Since then, I have gained 30 lbs. I was diagnosed with insulin resistance, reactive hypoglycemia, high chlesterol, high triglycerides, low hdl. I have been diagnosed with vitamin D Deficiency, and low estrogen. I really watch my diet. I am tired constantly. I have insomnia. I have extreme coldness in my hands and feet. I have brain fog at times, blurry vision, dry skin, among others.

I know have recurring stomatitis (Aphthous Ulcers) in my mouth. I will have up to 12 in my mouth at one time. They occur at least 6 or more times a year. I have one in my mouth almost at all times. Over the last three weeks, I have had two swollen lymph nodes under the same arm.

Does anyone have any idea what all of these symptoms could be caused by? Thanks.

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8 Replies:

  • WOW!! It's like reading my life story...I had all of it except the mouth ulcers.The only help I found was right here in this forum. Someone recommended NAET or Bioset therapy. I found a BioSET practicioner close to me and I went. 2 months later, I am back to work after being told I would never work again. PLEASE consider this treatment. If you let me know where you live, I can try to help find a practicioner for you. I am so glad to havve my life back that I spend time in this forum when possible, trying to help others...just like someone helped me. Best wishes.....mommy cat:)
    mommy cat 1654 Replies
    • October 1, 2007
    • 10:44 PM
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  • I suggest seeing an anti-aging specialist who's experienced with bioidentical hormones to get the right mix of supplements.
    Anonymous 42789 Replies
    • October 2, 2007
    • 01:56 AM
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  • Hi, Have they done in depth thyroid tests, like for wilson's syndrome? do a net search and you will find info on it. Hope you feel better.~~~Dee
    Anonymous 42789 Replies
    • October 2, 2007
    • 09:51 AM
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  • Do you live near a pharmacy that will "compound" hormones as suggested above? Most U.S. cities have them. Maybe you should see an endocrinologist and get a hormone cocktail suited to your needs. Also, they can check out your thyroid, adrenals and parathyroids at the same time.
    rad-skw 1605 Replies
    • October 2, 2007
    • 10:32 AM
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  • People with PCOS are extremely senstive to simple sugars. You should eliminate all refined sugar from your diet-- white bread, potatoes, and anything with corn syrup, fructose, sucrose or most other "oses" except sucralose, (which is Splenda) & doesn't digest like sugar. Also, avoid fruit juices. Eat a fruit instead (no offense to Frui, if reading!).:) I have PCOS & did this, and my mouth ulcers and joint pains are hugely better! Good luck-- find a doctor who specializes in PCOS.
    aquila 1263 Replies
    • October 2, 2007
    • 00:58 PM
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  • Thank you for the responses. Right now, I see an endocrinologist every 3 months. I had a thyroid panel run a few months ago. The lab results were a little off, but not enough for her to put me on thyroid meds. I am taking Avandia now for my insulin resistance. I have had a hysterectomy last year, so I don't have to worry about the PCOS now.I had another knot come up under my arm yesterday. My mouth is still full of mouth ulcers. I went to 3 dr. appt today. I had blood drawn, a biopsy of one of the ulcers, and had a visit with a surgeon about the knots under my arm. The surgeon seems to think I have infected sweat glands under that arm.I continue to be frustrated. I will do some checking into the suggestions. Thx.
    Anonymous 42789 Replies
    • October 4, 2007
    • 00:19 AM
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  • Consider asking your docotrs to check for thyroid disease, including antibody tests even if your TSH hormone level is normal. Your symptoms sound like they may be a combination of low thyroid and/or hashimoto's encephalopathy.
    Anonymous 42789 Replies
    • October 13, 2007
    • 00:31 AM
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  • Since they did a complete hyster, are you taking any hormone replacement therapy? I think that is what Fauve was referring to. (your female hormones). Sorry, I meant gynecologist, not endocrinologist. Aphthous sores .They can also be linked to an increased intake of acids such as ascorbic acid (one form of Vitamin C) or citric acid. In this case the sores disappear after intake decreases (for example, by substituting ascorbate salts for ascorbic acid, hormonal changes, deficiencies in vitamin B12, iron, and folic acid. Zinc deficiency has been reported in people with recurrent mouth ulcers. Also toothpaste with lauryl sulfate.
    rad-skw 1605 Replies
    • October 13, 2007
    • 06:31 AM
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