Discussions By Condition: I cannot get a diagnosis.

not sure what to title this

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: lovendove
  • April 18, 2010
  • 02:50 AM

Hope someone can help point me in the right direction. I have PCOS, arnald chiari (very mild form) and MVP but other than that I have been pretty healthy. Overweight (need to lose about 40lbs to be at my target weight for age/height) but on a diet and exercise plan the past few weeks and doing well with that. However I have always had this issue of fatigue that comes and goes. It seems to hit when I don't get enough sleep, the following day my eyes and mouth are extremely dry, I get palpitations and high heart rate, pain in various parts of my body and just feel like crap.

Was dx with fibromyalgia by two different doctors of the years because I have extreme sensitivity to pain but not chronic pain; just if I am touched in certain areas/pressure points it's like super exaggeratedly painful for me verses a normal person. I don't take anything for it as it's not debilitating, I just learn to live with it.

Recently I was dx with an enlarged thyroid but my levels came back normal. I had a sono and it just showed enlargement but nothing suspicious. My youngest child is going on 20 months and I nursed her for over a year so not sure if it's just a delayed enlargement from pregnancy/nursing or what is going on there.

Other vague things that happen are sometime my hands swell, have had some hair loss (but that could be from stress and the PCOS), dry hair/skin, lower back pain (but that could be from my occupation), lightheaded and like my brain is in a fog (only with the severe fatigue).

I can't figure out what is going on but when I get this fatigue/exhaustion/pain and dryness it's really annoying. It seems to always result from poor sleep even if I get the right amount of sleep but just poor quality. Sleep apnea was ruled out.

Not sure if this is just a symptom of the fibromyalgia or could be something else. The doctor thought for sure it was my thyroid but since the levels came back normal we are back at square one.

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  • https://health.google.com/health/ref/Fibromyalgia That is so you can see the symptoms for yourself. Although the enlarged thryroid is kinda making me wonder though if you possibly have something else and might have been given a misdiagnosis.
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