Discussions By Condition: I cannot get a diagnosis.

NOT Pheochromocytoma - but exact symptoms

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Miss Kitty
  • March 17, 2011
  • 02:44 AM

My husband has all the symptoms of pheochromocytoma (chest pains, high blood pressure, severe headaches, flushing, fatigue) - but all the blood and urine tests come back negative. He has small tumors on both adrenal glands - but we have been to specialists and they say they are 100% sure that whatever is wrong with him has nothing to do with his adrenal glands.

Did you know that if you go to a specialist and you do not actually have the disease they specialize in they dismiss you like a peasant? It's been A LOT of fun. :mad:

The main symptoms: Chest pain (below left breast), constant headaches, flushing and high blood pressure.

He has had:
Multiple chest X-Rays
Chest CT
Heart CT
Brain MRI
Double dog fancy CT on adrenal glands
Endoscopic thing on his throat/stomach (to rule out acid reflux)

Thyroid is OK. No diabetes. Heart is good. No rocks in his head (none that showed up on the MRI anyway).

We are meeting with an internal medicine guy next week.
Family doctor has no idea.
Endocrine guy - nada.
Adrenal guy - dismissed.
Nephrology guy - dismissed.

Any help would be appreciated. I am exhausted! :confused:

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