Discussions By Condition: I cannot get a diagnosis.

Not my body anymore

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: Anonymous
  • July 16, 2009
  • 07:51 PM

Early 40's, chronic joint pain everywhere, burning tingle sensation in arms and hands, finger tremors left hand, muscle spasms in all limbs, back and neck, loss of balance, memory loss, speech difficulties, feel hot all the time, right now my ankles are horribly painful and feel very stiff making it painful to walk, especially going up/down stairs. I also have concentration difficulties. My nuerologist had me do an MRI, since nothing showed abnormal, he said I had fybromyalgia. But I have a lot of symptoms that are not consistent with fybromyalgia. What could be causing all these symptoms?

Reply Flag this Discussion

13 Replies:

  • miserable in missouri;Blaze thinks EVERYTHING is an allergy to electromagnetics. It's getting really really annoying because he spams it over and over in forums that have NO RELATION to it. Blaze also says that all sicknesses are "like mine" and it's particularly annoying. Sorry I do not have an answer but I want you to know it.
    Tiedye 31 Replies Flag this Response
  • could have started out as shingles--is the burning one sided?
    Monsterlove 2921 Replies Flag this Response
  • Have you had all the thyroid tests available, and your B-12 levels checked? It sounds like an autoimmune disease situation, and where there is one autoimmune disorder, there is at least one more. That would explain the strange combination of symptoms, as well. Stick with it until you find a doctor that will get to the problem, rather than just treat the symptoms. I found Robert Uchiyama in St. Louis (St. Luke's Hospital) to be that kind of doctor. He was the only physician (after many) who solved the puzzle of my auto-immune disorders, and I found his name on a discussion board years ago. I have regained my life thanks to this great physician. It took several visits to get everything diagnosed and addressed, so be patient with the process. You'll be in good hands, however. The best of luck to you, and just know that you can get better.
    Anonymous 42789 Replies Flag this Response
  • Yes and Monsterlove thinks everything is shingles.I bet she caught something nasty once.
    Anonymous 42789 Replies Flag this Response
  • I have very similar symptoms and have also been given a fibromyalgia diagnosis. Muscle aches, joint aches (without swelling), muscle twitching all over my body, tingling extremities, memory issues (brain fog), cognitive problems (can't "think" or focus), balance issues.In addition to those symptoms, I also have chronic itching all over my body.It's almost impossible to get a decent doctor to THINK about problems like this which don't have an acute treatable problem like bleeding!I've investigated all kinds of things and had all kinds of tests, but nothing concrete has come of it.I've looked into lyme's disease, allergies, neurological problems...on and on.I've been put on an antidepressant that is used commonly for fibromyalgia, but I'm not getting any relief yet.There may not be a good answer, but for what it's worth...at least you have company.:)
    aceadman 1 Replies Flag this Response
  • I am experiencing very similar symptoms - actually what you described were my symptoms a couple of months ago and now I can tack on bloody noses, skin pigmentation changes, confusion, debilitating fatigue, voice comes and goes, tounge and jaw and teeth burn. I have just about given up I am desperate for someone to help me figure out what this is... I think it is a parisite of some type but just not sure anymore. If you get an answer please share
    Anonymous 42789 Replies Flag this Response
  • Hi miserable in Missouri,I don't have any answers but i have some of those same problems. I know that doesn't make you feel any better but I just want you to know you aren't alone. And I'm in missouri. Isn't it exhausting trying to find answers? Especially when fatigue is one of the symptoms to begin with. If I find anything out I'll pass it on to you.
    papermoon 5 Replies Flag this Response
  • I too have those symptoms and then some. I was diagnosed with Lyme last year. Was retested last month and it was negative. I've heard even if you have it, the test can come back negative. I get anxious and start having panic attacks which then hightens my symptoms. I feel so alone and don't think my husband takes me seriously. How long have you been having your symptoms?Lisa in MarylandHi miserable in Missouri,I don't have any answers but i have some of those same problems. I know that doesn't make you feel any better but I just want you to know you aren't alone. And I'm in missouri. Isn't it exhausting trying to find answers? Especially when fatigue is one of the symptoms to begin with. If I find anything out I'll pass it on to you.
    Anonymous 42789 Replies Flag this Response
  • I have very similar symptoms and have also been given a fibromyalgia diagnosis. Muscle aches, joint aches (without swelling), muscle twitching all over my body, tingling extremities, memory issues (brain fog), cognitive problems (can't "think" or focus), balance issues.In addition to those symptoms, I also have chronic itching all over my body.It's almost impossible to get a decent doctor to THINK about problems like this which don't have an acute treatable problem like bleeding!I've investigated all kinds of things and had all kinds of tests, but nothing concrete has come of it.I've looked into lyme's disease, allergies, neurological problems...on and on.I've been put on an antidepressant that is used commonly for fibromyalgia, but I'm not getting any relief yet.There may not be a good answer, but for what it's worth...at least you have company.:)I was given the same diagnosis of fibromyalgia back 2000. And it turned out that I had Hashimoto's Thyroid Disease. My endo says I've had Hashimoto's for at least 30 years (2007 dx's).Now on the correct dose of thyroid medication I'm feeling better.It took nine doctors to find one who knew what they were doing.
    Anonymous 42789 Replies Flag this Response
  • I've had my symptoms forever and a day. It started in 1991. They said I had Gulf War Syndrome. Then chronic fatigue syndrome, after that fibromyalgia. The problem is there is no definative test for these things and they all have about the same symptoms. Then I discover a few years ago my thyroid is destroyed and almost not there (x-ray treatment from childhood did it) and guess what? Hypothyroidism. Almost same symptoms. Here's two things I hate. Number 1. Being told that all my symptoms and problems are from depression and I'm brushed off by the doctor. (Who wouldn't be depressed when they're sick and hurting all the time? Aren't you?) Number 2. I am tired of making excuses for why I was sleeping or why I'm going home to take a nap or why I'm tired. My friend calls and asks me how I am and I say I'm tired. His reaction is "tired??" like I don't have a reason for being tired. I can almost hear him thinking - tired from what? She hasn't done anything. People don't understand. I've tried explaining it (the sickness and symptoms) and it goes in one ear and out the other. Do you have these things happen to you? So, tell me the things that you hate.
    papermoon 5 Replies Flag this Response
  • It could be a hormonal imbalance or chronic inflammation -common for women during menopause. This site seems helpful:http://www.womentowomen.com/understandyourbody/symptoms/stiffnessjointpain.aspx
    Anonymous 42789 Replies Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • I have the same thing and they told me fibro to in 1985. But now it is getting even worse.I start getting pain all over like I have a very high fever but there is no fever. And then I start trembling inside and have to go to bed. It is very scary like im loosing my life.
    Anonymous 42789 Replies
    • August 13, 2009
    • 09:49 PM
    • 0
    Flag this Response
  • You should get your ck creatine kinase levels checked. I had very, very similar symptoms and it turned out to be myositis. Which is a progressive muscle disorder. If it is, there's a good chance of treatment for some and for the rest there is time to enjoy life before you are incapacitated. Good luck!
    Anonymous 42789 Replies
    • December 28, 2009
    • 06:12 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.