Hi, my names John and for the past 3 - 4 years ive had bad medical problems
Im 15 turning 16 soon, Male.
My family has a history of: Cancer, Blood disorders (my moms dad had a blood disorder where his blood wouldnt clot) and Arthritis
So 3 - 4 years ago I started to have symptoms:
Joint pain all over the body
EXTREME insomnia and sleep deprivation (wont sleep for 4 - 5 days at a time)
mysterious swelling that only lasts seconds but is very painful (wrists sometimes will swell to the size of a soda can but will only stay liek that for max 30 seconds)
Purple marks under my skin in my thighs and kness (A LOT of them, not one or two, but over 20 id say)
Very fast heart rate, that almost never slows down (110 - 130 BPM)
Shortness of breath
Feeling as if my neck isnt supporting my head
constant stiff/sore neck
lower right side abdomen pain (feeling like somebody is putting pressure on the area)
Extremely bad memory loss (cant remember something that happened 5 minutes ago, cant remember what day it is, sometimes I wake up at 8 pm and think its 8 am)"
and the reason im posting here today, my new symptoms:
3 days ago I took a bath and when I got out I noticed that my feet were BRIGHT red, and my toes were red but turning a purple hue
that only happens when my feet touch WATER. the water wasnt to cold, it wasn't to hot, I even tested it with my hands and got my mom to test it. it deffinatly was NOT to hot or cold.
it was luke warm
Then, the next day I stood in some water in the kitchen, because snow got in from the door being open. the water was warm, again. it was warm because the heater was on and it had been sitting there for at least 2 hours
so when i stepped in it my feet INSTANTLY became swolen, bright red, purple hue to the toes
again, I got people in my family to touch the water to see if it was freezing or extremely hot. It wasnt, it was warm
the next thing that happened was I was doing calligraphy homework, and i got ink on my hand
So I went to wash it, set the tap to warm and when I started to wash my hands, they became numb, slightly swollen, but VERY tingly
this is very concerning to me because I thought Fibromyalgia wasn't supose to progress as other illnesses do. I thought the symptoms you get is what stays unless you have complications
So in my eyes, Fibromyalgia is off the table now (and yes I was offically diagnosed with Fibro roughly 2 years ago at Sick Childrends hospital)
I have NEVER thought it was Fibro but this is the proof
theres something nuerological going on here, which explains the heart, my shortness of breath, and everything else
have been tested for:
Lyme disease, several times
ANA blood panal
stool sample for parasites
urine test for calcium ect..
multiple blood tests for cancer markers
countless blood tests looking for inflamation
countless blood tests looking for ANYTHING out of the norm
3 MRI's of the head over the years
Xrays of my entire body
ultrasound of my heart (showing my valves pumping like they are on steroids, opening but not closing completely which was a concern to the tech guy doing the ultrasound)
heart monitor test showing arrythmia
ALL NEGATIVE (besides the heart altrasound and a EKG + heart monitor test showing arrythmia)
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