Discussions By Condition: I cannot get a diagnosis.

Nobody can figure out what is wrong

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: raerae1
  • April 16, 2009
  • 07:49 PM

I am a 30 year old professional that has been sick for years with just about everything. I have to take the flu shot every year and my allergist gave me the pneumovax shot because my immune system just doesn't fight things off. Over the past 9 months it has gotten so bad to the point that I have not been able to work or have had to worked reduced hours for long periods of time. The problem is that it is not always the same thing or the same symptoms, but all the doctors I see say they "could" be interconnected. I have always suffered from allergies which cause of sort of cold like symptoms and the colds/sinus stuff comes and goes with that. I did not have any problems all of last summer and then come september, I started getting really bad flu like symptoms such as the stuffed up head, aches, nausea etc... I would wake up "hung over" just about every morning and people would say it was just my allergies. This went on for weeks to the point where I could not get out of bed. Once it gets that bad, I have to just stay in bed and do nothing for 3 or 4 days then I'll be okay. A number of times I've had to take meclizine for the dizziness and nausea. In October, I had an ear infection and a sinus infection. Again in November, the "flu like" stuff happened again. Since then, I just get very stuffy for a few days at a time, have gotten ear infections, migraines, major body aches etc... when my sinuses started acting up again a few months ago, I stared to see my allergist again and he kept testing my sinuses. It was clear that I was stuffy, but nothing was showing up. My ears were red, but they weren't infected, my white blood count was up, as it has been every week for the past 6 weeks, but there is no sign of infection anyway. My head pounds, my body aches and I have to strain my eyes for just about everything. No tests have said that anything is wrong and I just feel like crap all the time. Then the good stuff began, the one that is really going to drive me crazy. About 3 weeks ago, I began getting fully body hives. There was no reason for the hives, I hadn't changed anything in my life or eaten anything I shouldn't have - all my allergy testing was negative for new things. The other thing that made the allergist think that it wasn't allergy related was the fact that it wasn't going away, ever. Terrible rashes from my head to my toe and other than the itching and heat all over my body, I felt fine. It was not being treated by anything like zyrtec, allegra, claritin etc... nothing was working. I went 10 days before they finally "gave up" trying to figure it out and gave me prednesone for symptom relief. The day after I stopped the prednesone, my hives came back. The allergist recommended something else, but said with how bad they were that they would come through the medicine. since starting that medicine, the hives have subsided through the days but I can not take the medicine at night due to the stimulant effects. It has not however taken away other symptoms such as aches, headaches, stuffiness and other ongoing symptoms. The allergist sent me to the ENT thinking maybe I had bacteria built up in my ear canals behind scar tissue, and the ENT thought that was ridiculous so that was a dead end. I just had a 3rd cat scan and am awaiting the results, but the last two in the past two weeks haven't showed anything. The allergist insists that there is something there and that it is not related to my commom allergies. I'm going crazy here, I'm itchy, I'm always swolen and I've missed way too much work. I'm sick of hearing people say that they just don't know what it is. It's clear I have the symptoms and the fevers and hot skin to go with it. I need some answers and to be comfortable again.

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  • Hi .you do need to ask you doctor to do .(ana) test .anti-nuclear antibody autoimmuen disorder test.read more online
    charmaine petzer 176 Replies Flag this Response
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