Discussions By Condition: I cannot get a diagnosis.

no one can figure out what's wrong!!

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • April 15, 2007
  • 10:36 PM

Hi. I am fifteen years old and I am always feeling sick or worn out. It's gotten to the point where I am depressed, and most people (including my parents) think it's all in my head. I have never been a hypochondriac, but I sure feel like one now. It all started in late September, I was having headaches and weird pressure in the upper right parts of my body and near my spleen, and pains in my legs and shoulders. My doctor felt my tummy area and said he was pretty sure that my spleen was inflamed and that I had Mono.
But later they did tests and found out that wasn't the case. I started getting more symptoms, and they were getting worse. That lasted about 3 months before fading away. During that time I saw 4 different doctors, had tests for Rheumatoid arthritis, celiac's disease, crohns disease, ect. But all of the tests were negative. I still have the pressure in my abdomen that turns to a throbbing pain most of the time, I get headaches frequently, and really bad shooting pains in my legs. Latley, the pains in my legs have been getting worse and has spread to my hands and arms also. The veins behind my knees get inflamed, then sting and itch also, and then they settle down. I have a lima-bean sized lump on the side of my neck, and I've lost about 10 pounds. I was 138 in September and now I am 128 pounds. I eat well, but I'm always tired.
Eventually my doctor sent me to a psychologist because she thought it was an "underlying emotional problem". I promise I'm not faking! Does anyone have any idea what this could be?

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7 Replies:

  • Hi Claire, I had a rather substantial bout with mononucleosis last November. It's not uncommon for the spleen to enlarge during mono (my spleen and liver were both enlarged) however chances are you would have experienced other symptoms as well such as a fever, fatigue, muscle soreness, severe sore throat, and swollen lymph nodes ("glands"). If a doctor performed a blood test during the time, your White Blood Cell (WBC) count would probably have been elevated as well. Based on what you described however, it seems like your doctor just felt your abdomen, said it was mono, and dismissed you. Not terribly responsible but not unheard of.What you describe doesn't sound like mono at all, and if antibody testing performed recently cannot confirm an infection by the Epstein-Barr Virus (EBV; this causes mono) then it wasn't. There is a chance you might have contracted the Cytomegalovirus (CMV) which can also cause a mono-like condition. This would require a separate test because it's looking for different antibodies, but again, what you describe does NOT sound like mono. Out of curiosity, did anyone test for Lupus? Did you have a blood sugar test or glucose tolerance test? Did anyone check for HIV (unless you aren't sexually active)?About the lump in your neck: did this just appear spontaneously, or has it slowly gotten larger? When did it appear? When did the weight loss start? Has your diet changed at all? Based on these two symptoms you should get another CBC (complete blood count). It's possible that this could be lymphoma (possibly Hodgkin's lymphoma) which typically presents itself as a swollen lymph node in the neck area, fatigue, weight loss, and at times, enlargement of the spleen. DON'T panic about having cancer yet as there could be other things causing this. More than anything else, don't let the doctors or even your family try and tell you that you're worrying about nothing. The mass in your neck needs to be properly evaluated as does the weight loss before anyone can claim you are "healthy".
    Anonymous 42789 Replies Flag this Response
  • Thanks for replying!They did test for Lupus, that turned up negative. My white blood cell count was normal, and I'm not sexually active so it couldn't be HIV. I am pretty sure they didn't do a blood sugar or glucose intolerance test. The lump in my neck appeared about the time I got sick. It's been slowly getting bigger over the months, and it's right under the skin. It doesn't hurt at all. I started losing weight because my appetite was completely gone, and even after it came back, I didn't gain any weight back, just kept losing. Now it hovers anywhere between 121 and 128. And I am not afraid of the possibility that it's cancer, more than anything I just want to know what's wrong! thanks a bunch for the advice,~claire
    Anonymous 42789 Replies Flag this Response
  • Get tested for Lymes disease, and do a search online or on other posts as to which test is the most accurate - there are ones that give false readings and I'm sorry I don't know which is the most accurate -anyone know? I really think you are showing symptoms of this. Get your thyroid tested as well. Don't let the docs give you antidepressants or antianxiety meds - this is just a cop out! You are NOT a hypochondriac, and don't let anyone say your symptoms are due to stress or depression. Find a naturopathic or Oriental medical doc who can perhaps point you in a better direction. Acupuncture is wonderful for chronic pain, and can at least help give you some lasting, non-medicated relief while the docs try to find a diagnosis. It is also brilliant for depression - which you have as a result of your symptoms, not as a cause, or so it seems to me. Visit www.acufinder.com to find a practitioner near you. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • www.bowen.org and www.igenex.com are the labs to use. Gotta run.Ralph
    Anonymous 42789 Replies Flag this Response
  • Claire...not sure if you've tried it but check out the symptom checker on this site. Put in all your symptoms and it shows you a list of diseases associated with those symptoms. Definitely get the lump checked even biopsied. Ask for an MRI of your neck. I know you are a very young lady and have a lot to learn in this big old world but don't let doctors dismiss you. Listen to yourself. You know your own body better than anyone else. I know how frustrating it is for you that people believe it's all in your head. I've been sick for 3 years and they still can't figure out what is wrong with me. Best of luck to you...Stay strong and keep pushing until you are satisfied with all of the results...mommy cat
    mommy cat 1654 Replies Flag this Response
  • I read that the Bowen lab tests are *always* positive - why would that be considered a good test?
    Anonymous 42789 Replies Flag this Response
  • Claire go to www.ahummingbirdsguide.com your symptoms are there see how many you have...good luck
    mommy cat 1654 Replies Flag this Response
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