Discussions By Condition: I cannot get a diagnosis.

No Doctors Can help me!!

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • November 10, 2006
  • 02:30 AM

fixing the post

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4 Replies:

  • I UNDERSTAND YOUR FUSTRATION. I HAD SIMIAR SYSMTOMS FOR ABOUT 5 YEARS ALSO UNTIL THEY DID A MRI/MRA ON MY HEAD AND VERTABRA (NECK). THEY FOUND I HAD A RARE DECEASE CALLED ARNOLD CHIARI MALFORMATION OF THE BRAIN. THIS IS WHEN YOUR SO CALLED TONSILS AT THE BOTTOM OF YOUR BRAIN FALL OUT OF YOUR SKULL AND COMPRESS UP AGAINST YOUR VERTERBRA. THIS CAUSES NUMBNESS AND SEVERAL OTHER SYSTOMS. I WOULD SEE A NERO FOR THESE PROBLEMS. I HAD DECOMPRESSION BRAIN SURGERY IN FEB 06 AND HAVE BEEN RELEIVE OF ALL THOSE SYMTOMS. CHECK IT OUT ON THE WEB. TAKE CARE
    armygirl 4 Replies
    • November 10, 2006
    • 04:55 AM
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  • Hi girls: i just joined this forum; i was with another one and they are nice people and very bouncy but suffering with the effects of what you people call ME. I was just looking at some of the sites here and the 'suffering' especially of you young people. I am 63 but a 'young' 63. I hate to see young people having their lives torn by whatever strange 'illnesses' seem to be afflicting the planet. But unfortunately, i think it's got a lot to do with the stressful times we live in; and our environment (i'm in Canada); in my post i note how 'rich' people are getting on putting out info on this; but nevertheless, 'we' are suffering from a strange ailment. It's just a different world than one i remembered when i was being abused. But i am a survivor; and the symptoms i see here; very much fit in with the crazy stuff i experience...I care about people; and the only real advice i can give and i have to do too..and i'm sure you've heard it: Live One Day At a Time; it seems the younger are getting it the most. I read on the net in my research about this, that it hits ages 14 to 69. Strange aye?. i just started suffering with it a few months ago when i started having what they call the 'symptoms'...Anyway, i joined to share the agonies, mental and physical of the people..so please post when feel like it..i would be glad to hear from you too....cheyenne:) I don't have arthritis; not osteoperosis; you know the ugly things we get in old age (lol)..but i do have the 'symptoms' of the CFS or ME/Fm; and i have a 'faulty' immune system(that contributes i believe to the other one). they say we get flu like symptoms and boy i know those, but i never get the flu i never used to...but also it says on the net that our systems are so upregulated we don't get the flu??? We just feel like sneezing all the time and that we have a cold/flu:confused: write soon....i need the support too!....:cool:
    cheyenne 1 Replies
    • November 10, 2006
    • 06:28 AM
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  • Hi Cheyenne. It sounds like you have a problem within the right hemisphere of your brain, judging from the symptoms. All motor function (along with other things) for one side of the body is controlled by the opposite hemisphere in the brain. If you just had the symptoms in your arm it would have been quite possible to have been a condition not involving the brain, but with the facial palsy too, it is more suggestive of neurological cause. It could be as simple as a latent viral infection causing inflammation of your brain tissue when you are immunosuppressed (ie when you get a cold). I would suggest to see a neurologist and request and MRI or CT scan or both.Hope this has helped
    Cavanchacs 1 Replies
    • November 10, 2006
    • 10:55 PM
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  • Hi There, Have you been checked for migranes? My friend gets the exact same symptoms with migrane headaches. Weird, I know, but it's true. I get migranes as well, but have different symptoms. We both use extra-strength excedrin, and often have to lie in a dark room--not sure if you're sensative to light at all when the headaches come on--the excedrin usually kicks in in an hr. or two if you catch the migrane at an early stage. Consider that as a possibility. good luck, Karin
    bigfoot 3 Replies
    • November 10, 2006
    • 11:09 PM
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