Discussions By Condition: I cannot get a diagnosis.

No Diagnosis - Job at jeopardy - please help

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • January 26, 2008
  • 11:09 PM

Hello everyone. i hope that someone out their will have experienced theses systoms and get back to me. About 3.5 weeks ago I noticed my balance was way off but only to the right. I was also in kind of a fog and disoriented. It got progressively worse until I went on a scheduled trip and passout in an airplane at 35K feet (I have had not further episodes like passsing out). I am very agitated when something doesn't work out but will not stop like normal people, I'll carry it on and on. I have had swollen feet,ankles and legs and have woke up to a swolen face. I was given full cbc, tested the tsh and t4 for thyriod and and have had an MRI with contrast. The only thing that came back was a slight inbalance in the thyriod that dissappeared on the retest and a sinus infection on the MRI. I have been referred to a neurologist and will be getting an eeg on Monday. Oh yeah when I was at my meeting what most people noticed was a slow and slurred speech (8 am eggs but I don't drink).

CT

Reply Flag this Discussion

5 Replies:

  • I am sorry you are having such awful symptoms.I spent several years with neuro symptoms, no diagnosis, and difficulties at work/school because of my symptoms. I know how frustrating it can be and hope you get an answer soon.I don't know if it applies to you, but ultimately, my answer/diagnosis was a rare neurological complication of autoimmune thyroiditis called Hashimoto's Encephalopathy (HE). Most people who have it have completely normal thyroid hormone levels, which is unfortunate in a way, as the way to detect HE is by checking for thyroid ANTIBODIES, and doctors are trained not to check these unless your hormones are off first. Most doctors have never even heard of HE, so unless you mention it, you will not get checked for it. When you have autoimmune thyroiditis, your hormone levels can fluctuate, so this could be consistent with the single abberant reading you had.HE can cause balance disorders, fatigue, speech problems, and disorientation, among other things. No two cases are alike, and you don't have to have the more serious symptoms of it to have it.Many patients have diffuse slowing on their EEG. HE is highly treatable with steroids. My symptoms came and went much like MS. I had multiple MRIs looking for plaques and these were all negative except for some minor perivascular changes attributed to migraines- another potential HE symptom.There are other things your symptoms could be too. It sounds like they have checked for MS. It could also be something like another autoimmune disease such as Lupus or celiac or many other things. I hope the neurologist takes your symptoms seriously and finds out what you have.I wish you the best!Good Luck finding your particular answer.
    Anonymous 42789 Replies
    • January 27, 2008
    • 03:01 AM
    • 0
    Flag this Response
  • Hi, just reading your thread and had a few questions, though it seems like you're on the right track to see a neurologist. If he doesn't find anything then hopefully, if your symptoms haven't resolved, he can refer you to another specialist like maybe and allergist, rheumatologist, or whatever it takes. Just wanted to know how old you are, if you have any medical history at all, if you take any medications or supplements including herbs, etc., any significant family history, any problems urinating or decrease in urination, any chest pain or breathing problems, smoking history, blood pressure, and if you have gotten a rash or have itching with your swelling? Also, anything that changed in your life or environment at or around the time your symptoms began? Hope that's not asking too much!!! This will help at least narrow some things. Thanks
    Anonymous 42789 Replies
    • January 27, 2008
    • 03:11 AM
    • 0
    Flag this Response
  • Hi: I have had lots of your symptoms. I have a lot of medical problems that I wouldn't even list them here. But I just went to a neurologist because of some of the same. I was, out of no where, walking to my left. Actually doing circles around my coffee table. When I went to the hospital the nurse had to pull me right because I wanted to go left. Then sometimes my body wanted to go right. I had no dizziness or anything that causes vertigo but that was his diagnosis. I think he didn't want to waste his time because of my so many illness. He said he couldn't help me and I should go to University of Madison, Milwaukee Froedert, or Mayo Clinic and Hospital. I will in due time but right now I have sooooo much going on with trying to get my narcolepsy and sleep apnea I can't really go. Go luck:confused:P.S. I also had the problems with memory and not being able to say my words right and forgetting things that just happened. This may sound crazy, but sometimes I don't know how to type or remember where the keys are.:o
    klschup 42 Replies
    • January 27, 2008
    • 07:44 AM
    • 0
    Flag this Response
  • Hi: I have had lots of your symptoms. I have a lot of medical problems that I wouldn't even list them here. But I just went to a neurologist because of some of the same. I was, out of no where, walking to my left. Actually doing circles around my coffee table. When I went to the hospital the nurse had to pull me right because I wanted to go left. Then sometimes my body wanted to go right. I had no dizziness or anything that causes vertigo but that was his diagnosis. I think he didn't want to waste his time because of my so many illness. He said he couldn't help me and I should go to University of Madison, Milwaukee Froedert, or Mayo Clinic and Hospital. I will in due time but right now I have sooooo much going on with trying to get my narcolepsy and sleep apnea under control I can't really go. Go luck:confused:P.S. I also had the problems with memory and not being able to say my words right and forgetting things that just happened. This may sound crazy, but sometimes I don't know how to type or remember where the keys are.:o
    klschup 42 Replies
    • January 27, 2008
    • 07:45 AM
    • 0
    Flag this Response
  • Hello everyone. i hope that someone out their will have experienced theses systoms and get back to me. About 3.5 weeks ago I noticed my balance was way off but only to the right. I was also in kind of a fog and disoriented. It got progressively worse until I went on a scheduled trip and passout in an airplane at 35K feet (I have had not further episodes like passsing out). I am very agitated when something doesn't work out but will not stop like normal people, I'll carry it on and on. I have had swollen feet,ankles and legs and have woke up to a swolen face. I was given full cbc, tested the tsh and t4 for thyriod and and have had an MRI with contrast. The only thing that came back was a slight inbalance in the thyriod that dissappeared on the retest and a sinus infection on the MRI. I have been referred to a neurologist and will be getting an eeg on Monday. Oh yeah when I was at my meeting what most people noticed was a slow and slurred speech (8 am eggs but I don't drink).CTFirst let me thank you all for your responses. In times like this its always nice to have someone there. Elke- I have an EEG tomorrow (Monday) and can't really say if they give you the results there or you have to play the waiting game so you probably know that better but will print out and mention (since my memory is not so good).Sb62 - I just wanted to get back with you on some of the questions you had. I'm 40 and a Manager in a Medical Device company unrelated (Oncology). My medical history has involved mostly sports related injuries, torn rotator cuff requireing surgery, ruptured fascia on calf, Brachial Plexopathy of my shoulder. No heart disease (although all 3 of my uncles died of heart attacks before 55) I have high cholesterol (240 range) taking crestor. I have been a runner all my life until the torn fascia and have been mostly sedentary since. No herbs - only crestor and zrytec-d for hayfever. No breathing or heart pain although I had a Panic attack in 2001 that I thought was a heart attack but no reoccurrance.No problem urinating (oh I forgot that I am taking water pills for the swelling) Blood pressure taking 3 minutes ago was 119/78 pulse of 80. Stop smoking in 1991, no rash or itching, maintaining water. Changes in lifestyle around the start of this - maybe an increase in stress?? Sorry for being so long winded but hope that helps someoneCT
    Anonymous 42789 Replies
    • January 28, 2008
    • 02:57 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.