Discussions By Condition: I cannot get a diagnosis.

No Diagnosis

Posted In: I cannot get a diagnosis. 25 Replies
  • Posted By: sunshine8790
  • September 10, 2007
  • 05:03 AM

I've been searching for 3 years to find out what is wrong with me, I'm weak, and tired....I have flares where my whole body feels so swollen
that I'm short of breath. I gain 30 pounds in 24 hours and have gained 30 more pounds since then. I have had every test imaginable and find nothing except that my liver count is elevated, my aldosterone is elevated, and my cortisol level is low. Why do I feel so swollen and miserable and why can't I stop gaining weight? I have intense sugar cravings that I can't control. Was tested for cushings but results were fine.

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  • This sounds immunoillogical if you cannot figure out an allergen, irritant, bacterial, or viral cause. How long has this been going on? This sounds like it can be many things. Will take some research. I am not a medical doctor. Yours, Brent. Age and record of previous diagnoses of illness, surgeries, and history of serious illness in your family and relatives please.
    Dr. Brent Royal 24 Replies
    • September 10, 2007
    • 05:46 AM
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  • I will work on this more when I solve another important case. Cortisol low means that your body does not properly limit inflammation...your immune response system may be running a tad amok -- overreating -- where your good cells mistake other good cells for pathogens and attack. Has any doctor said this is immunoillogical? Would be interesting if there is much diabetes and rheumathoid arthritis and other immunoillogical diseases in your family history.
    Dr. Brent Royal 24 Replies
    • September 10, 2007
    • 05:51 AM
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  • Are you on any drugs and what have you taken? Has any doctor mentioned Prednisone?
    Dr. Brent Royal 24 Replies
    • September 10, 2007
    • 05:52 AM
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  • I am 43 years old and I was just diagnosed with rheumatoid arthritis.I've been trying to find out for 3 years why i'm gaining all this weightand feel swollen. I also have interstitial cystitis, asthma, rls, vasovagalsyncope, mitral valve prolapse. Family history: diabetes, heart problems, high blood pressure; congestive heart failure, copd, cancer.just got off prednisone for the rheumatoid arthritis. I stay sick to my stomach....I just feel sick inside
    sunshine8790 7 Replies
    • September 10, 2007
    • 01:46 PM
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  • Forgot to post my medssingular- for asthmalozol - for fluid retentionsulfasalazine -(doesn't work) for rheumatoid arthritisflorinef - for vasovagal syncopespironolactone - for fluid retentionazmacort - for asthmaimitrex - for migrainesprochlorperazine - (doesn't work) for nauseaprotonix - for stomach acidamitriptyline - for bladder painelmiron - for bladderhydrocodone/apap 500 mg. for pain as neededxanax 0.5 - for anxietyambien cr 10 mg as needed
    sunshine8790 7 Replies
    • September 10, 2007
    • 02:26 PM
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  • A quick glance reveals this all makes sense. I am very busy today but will look thoroughly tonight or tomorrow, then write you an analysis. Yours, Brent.
    Dr. Brent Royal 24 Replies
    • September 10, 2007
    • 03:05 PM
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  • Dr Brent are you a medical doctor? If so what type? I have a medical background too im not a doctor though so what do you practice or is your nick name her just a doc :rolleyes: I gain 30 pounds in 24 hours As any medical doc would tell you Hon anyone who would gain 30 pounds in a 24 hour period it is always fluid build up in the body. Its impossible to gain weight of that extent in a 24 hour period. So one has to look at the things that would cause this rapid fluid retention, we always think of the kidneys, the heart etc. Have you had these things looked at? Things like a CBC and metabolic panel? These things can be very helpful, i'd recommend a visit to the ER with that type of fluid build up that quick. Or get in yoru primary ASAP they would not fool around if you explained the amount of weight in just a few days. Also Prednisone is a serious drug - it can cause some long term problems and in certain conditions it can cause much more damage if diseases, sometimes death if its not for the right condition except that my liver count is elevated, my aldosterone is elevated, and my cortisol level is low. The liver count concerns me. How high was your aldosterone and how low was your cortisol and what time of the day was it drawn? Both aldosterone and Cortisol are higher first thing of the day. Im also quite concerned with breathing difficulties. AT the end of the day do you urinate all this fluid out?
    burninghead 37 Replies
    • September 10, 2007
    • 03:39 PM
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  • I don't have a copy of my test results, so I don't know the numbers on them, but they were done in the morning. I really swell bad after I eat.I've gone from 138 to 204 from a size 4 to a size 18. I can't to look at myself because I'm so swollen, why can't these doctors see it?
    sunshine8790 7 Replies
    • September 10, 2007
    • 04:15 PM
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  • Sunshine when you say size 4 to an 18 is that just in a short span?Im so sorry your going through this I wish I had answersOne thing I always do is get a copy of everything I have ever had tested, doctors must give this its your info you paid for it, that way I have a large file of any test I had and the results for reference.
    Anonymous 42789 Replies
    • September 10, 2007
    • 04:21 PM
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  • Dear Sunshine...if you research mycoplamsa you will find it is responsible for every disease in your family history...even your arthritis.I had severe CFS which is also mycoplamsa related.Western docs will give you long term antibiotics for this and it is still questionable if that works or not.NAET/Bioset therapy will help you with these symptoms. I know, I had most of them. My family also suffers from many of the same dis-eases that run in your family.Please look into the first 3 treatments. After the first 3 is when I saw my most improvement.be well, best wishes...mommy cat
    mommy cat 1654 Replies
    • September 10, 2007
    • 04:22 PM
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  • The Main Human Mycoplasma PathogensPathogen / Implicated Disease (1-6) Mycoplasma genitalium Arthritis, chronic nongonococcal urethritis, chronic pelvic inflammatory disease, other urogenital infections and diseases, infertility, AIDS/HIVMycoplasma fermentansArthritis, Gulf War Syndrome, Fibromyalgia, Chronic Fatigue Syndrome, Lupus, AIDS/HIV, autoimmune diseases, ALS, psoriasis and Scleroderma, Crohn's and IBS, cancer, endocrine disorders, Multiple Sclerosis, diabetesMycoplasma salivariumArthritis, TMJ disorders, Eye and ear disorders and infections, gingivitis, periodontal diseases including even cavities.Mycoplasma hominis and Ureaplasma urealyticum Pelvic inflammatory disease, infertility, non-gonococcal urethritis, vaginitis, cervicitis, amnionitis, pyelonephritis, post-partum septicemia, neonatal pneumonia, neonatal conjunctivitis, Reiter's syndrome, peritonitis, wound infections (C-section), low birth weight infants, and premature rupture of membranes. Mycoplasma pneumonia Pneumonia, asthma, upper and lower respiratory diseases, heart diseases, leukemia, Steven-Johnson syndrome, polyarthritis or septic arthritis, CNS disorders and diseases, urinary tract infections, Crohn's and Irritable Bowel Syndrome, Guillain-Barr syndrome, polyradiculitis, encephalitis, and septic meningitis, autoimmune diseases. Mycoplasma incognitus andMycoplasma penetrans AIDS/HIV, urogenital infections and diseases, Autoimmune disorders and diseasesMycoplasma pirum Urogenital infections and diseases, AIDS/HIVMycoplasma faucium, M. lipophilum and M. buccale Diseases of the gingival crevices and respiratory tract
    mommy cat 1654 Replies
    • September 10, 2007
    • 04:28 PM
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  • The Main Human Mycoplasma PathogensPathogen / Implicated Disease (1-6) Mycoplasma genitalium Arthritis, chronic nongonococcal urethritis, chronic pelvic inflammatory disease, other urogenital infections and diseases, infertility, AIDS/HIVMycoplasma fermentansArthritis, Gulf War Syndrome, Fibromyalgia, Chronic Fatigue Syndrome, Lupus, AIDS/HIV, autoimmune diseases, ALS, psoriasis and Scleroderma, Crohn's and IBS, cancer, endocrine disorders, Multiple Sclerosis, diabetesMycoplasma salivariumArthritis, TMJ disorders, Eye and ear disorders and infections, gingivitis, periodontal diseases including even cavities.Mycoplasma hominis and Ureaplasma urealyticum Pelvic inflammatory disease, infertility, non-gonococcal urethritis, vaginitis, cervicitis, amnionitis, pyelonephritis, post-partum septicemia, neonatal pneumonia, neonatal conjunctivitis, Reiter's syndrome, peritonitis, wound infections (C-section), low birth weight infants, and premature rupture of membranes. Mycoplasma pneumonia Pneumonia, asthma, upper and lower respiratory diseases, heart diseases, leukemia, Steven-Johnson syndrome, polyarthritis or septic arthritis, CNS disorders and diseases, urinary tract infections, Crohn's and Irritable Bowel Syndrome, Guillain-Barr syndrome, polyradiculitis, encephalitis, and septic meningitis, autoimmune diseases. Mycoplasma incognitus andMycoplasma penetrans AIDS/HIV, urogenital infections and diseases, Autoimmune disorders and diseasesMycoplasma pirum Urogenital infections and diseases, AIDS/HIVMycoplasma faucium, M. lipophilum and M. buccale Diseases of the gingival crevices and respiratory tract To mommy cat - WOW!! According to you all of the doctors, research centers and everyone else that works in the medical field might as well take down their shingle. After all you have declared the cause and cure for almost every affliction that affects us. Of course to accept this you have to believe all of the conspiracy theories that abound about how we are out to kill the world with our biological warfare weapons. It is interesting that the people that claim this always have talked to someone that knows someone that has a cousin that did research or worked with something. But never are names given or facts that can be verified. The fact that mycoplasma exists in our bodies Does NOT make it the cause of all of our illness. You could argue that 100% of everyone that has these diseases have bacteria in their intestinal tract so it is the bacteria that is causing the problem. The facts are these:Does mycoplasma exist? YesCan it make you sick? Yes (an example is walking pnumonia)Is it responsible for causing ALL of these issues you claim? Show me your PROOF. Yes I have seen the websites that proclaim it to be the cause of everything. None of them show PROOF. They make general claims and most want to sell you their special cure (snake oil) for it. Were you found to have mycoplasma? I don't doubt it. You would also be found to have a vast amount of e-coli bacteria in your system. So this is not surprising. The fact that you had some treatments that has temporarily helped you does NOT mean that you are cured or that the treatments will rid you of the mycoplasma. Are you a medical doctor that can make this type of claim? Are you, or have you ever worked in medical or pharmaceutical research that would give you knowledge about this? nutritionist :mad: By the way, I spent 15 years in pharmceutical research.
    nutritionist 14 Replies
    • September 10, 2007
    • 09:14 PM
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  • Dear Mad Nutritionist, 15 years of pharmaceutical research makes you "educated" to what you are taught/what you learn from it.My 15 years as a nurse makes me "experienced" to the situations I was presented with daily.My 3 years of illness with no help made me hopeless7 Sessions of Bioset...PRICELESS All I am telling people is what I have found. This is a public forum, take what you want and leave the rest. I am informing others that there are "alternative" answers when western med has none to offer. No answers, no treatments, no medications ect... If you don't agree with me, that's fine...but there is no reason to attack me.I am writing of my own personal experience with Bioset and letting others know that it does help. I am not claiming it is the cure all, just that it gave me back my life...after it had mysteriously been taken from me. For proof of mycoplasma and the illnesses it causes, please see next post.This is an actual US Military document written about a Doctor from the Pentagon who testified in front of a congressional committee in 1969 regarding mycoplasma and the DNA portion of the Brucells Bacterium.You see, I do not go to "Jow Blow DOT com and listen to one person's views...my findings that I post here are from months of research that has been completed by myself and others from this forum...who all have CFS and want to know why.Perhaps if you have the answer, you could show us that we are wrong.Do you have proof that mycoplasma does not cause all of these diseases?You, yourself admitted that it exists and causes illness.Do you know how mycoplasma was found?Scientists broke open human white blood cells and found mycoplamsa within them. It is "stealth" in nature...it goes undetected and causes illness.Perhaps you should become a little more informed...even if it means going against the grain...Have a nice evening nutritionist and I apologize if I've ruffled your feathers...mommy cat
    mommy cat 1654 Replies
    • September 10, 2007
    • 10:00 PM
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  • Sorry Sunshine... The title page of a genuine US Senate Study, declassified on February 24, 1977, shows that George Merck, of the pharmaceutical company, Merck Sharp & Dohme (which now makes cures for diseases that at one time it created), reported in 1946 to the US Secretary of War that his researchers had managed "for the first time" to "isolate the disease agent in crystalline form".3 They had produced a crystalline bacterial toxin extracted from the Brucella bacterium. The bacterial toxin could be removed in crystalline form and stored, transported and deployed without deteriorating. It could be delivered by other vectors such as insects, ( such as ticks)aerosol or the food chain(cow's milk and meat) (in nature it is delivered within the bacterium). But the factor that is working in the Brucella is the mycoplasma. Brucella is a disease agent that doesn't kill people; it disables them. But, according to DR Donald MacArthur of the Pentagon, appearing before a congressional committee in 1969,4 researchers found that if they had mycoplasma at a certain strength -- actually, 10 to the 10th power (1010) -- it would develop into AIDS, and the person would die from it within a reasonable period of time because it could bypass the natural human defenses.If the strength was 108, the person would manifest with chronic fatigue syndromeor fibromyalgia. If it was 107, they would present as wasting; they wouldn't die and they wouldn't be disabled, but they would not be very interested in life; they would waste away. LISTEN UP PEOPLE, THIS IS A DOC...FROM THE PENTAGON...TESTIFYING BEFORE A CONGRESSIONAL COMMITTEE!!!!!!!!!!!!!!!!!!!!!!Most of us have never heard of the disease brucellosis because it largely disappeared when they began pasteurizing milk, which was the carrier. One salt shaker of the pure disease agent in a crystalline form could sicken the entire population of Canada. It is absolutely deadly, not so much in terms of killing the body but disabling it. Because the crystalline disease agent goes into solution in the blood, ordinary blood and tissue tests will not reveal its presence. The mycoplasma will only crystallize at 8.1 pH, and the blood has a pH of 7.4 pH. So the doctor thinks your complaint is "all in your head". HOW MUCH MONEY IS MADE EVERY YEAR IN THE PSYCHOLOGY REALM?SOMETHING TO THINK ABOUT...
    mommy cat 1654 Replies
    • September 10, 2007
    • 10:05 PM
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  • To mommy cat - WOW!! According to you all of the doctors, research centers and everyone else that works in the medical field might as well take down their shingle. After all you have declared the cause and cure for almost every affliction that affects us. Of course to accept this you have to believe all of the conspiracy theories that abound about how we are out to kill the world with our biological warfare weapons. It is interesting that the people that claim this always have talked to someone that knows someone that has a cousin that did research or worked with something. But never are names given or facts that can be verified. The fact that mycoplasma exists in our bodies Does NOT make it the cause of all of our illness. You could argue that 100% of everyone that has these diseases have bacteria in their intestinal tract so it is the bacteria that is causing the problem. The facts are these:Does mycoplasma exist? YesCan it make you sick? Yes (an example is walking pnumonia)Is it responsible for causing ALL of these issues you claim? Show me your PROOF. Yes I have seen the websites that proclaim it to be the cause of everything. None of them show PROOF. They make general claims and most want to sell you their special cure (snake oil) for it. Were you found to have mycoplasma? I don't doubt it. You would also be found to have a vast amount of e-coli bacteria in your system. So this is not surprising. The fact that you had some treatments that has temporarily helped you does NOT mean that you are cured or that the treatments will rid you of the mycoplasma. Are you a medical doctor that can make this type of claim? Are you, or have you ever worked in medical or pharmaceutical research that would give you knowledge about this? nutritionist :mad: By the way, I spent 15 years in pharmceutical research.Nutritionist: I am very curious about something: What is YOUR theory of disease? I mean, bottom line.....what causes disease?Do you believe that a body, receiving the nutrients it needs won't get sick?Here's some food for thought: Since you have spent time in the pharmaceutical industry, did you know that H2 agonists actually deplete stomach acid causing Vitamin B12 deficiency?Why is it that every time a Dr. prescribes an antibiotic, they do not provide an antifungal for a yeast infection? Ever had those?I think this original poster is FULL OF YEAST!!!!! YEP!If you have been in pharmaceutical research, then you must know that any equipment used in growing cells has to be "specially cleaned" to rid it of mycoplasma. Mycoplasma is hard to kill and probably has wound up in every pharmaceutical-tissue-growing experiment ever! How many "experiements" are "scrapped" because of contamination?Ever hear how Jonas Salk's vaccine for polio was found to be contaminated by the SV-40 virus? That is a proven, known FACT! Other vaccines have been found to be contaminated by mycoplasma. Do you REALLY know what mycoplasmas can do to the body? Any idea?I am surprised, as a nutritionist, that you do not have more to offer in the light of "nutrition'. Don't you realize that with dis-ease, the body becomes beat down, loses nutrients and the inability to process food (if you can call the stuff most of us eat, food) becomes nill?What do you know about Vitamin B12 deficiency as a nutritionist? Look on this board....sooooo many people, YOUNG people, not 80 year olds have been diagnosed with Vitamin B12 deficiency!Do you know why? Seriously, with your nutritionist background.....why? I can guarantee you, it is not diet. "people that don't eat red meat". Right.There is a HUGE problem here. There is lots of miseducation within the medical system and a lack of updates in learning.If it doesn't make money.....as in pill form or perhaps surgery.....it doesn't get promoted.That's truly the bottom line, nutritionist. You worked for big pharma.....yet you don't have a clue.
    Anonymous 42789 Replies
    • September 11, 2007
    • 05:10 AM
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  • What kind of imaging have you had. CT's, MRI's etc. Adrenal tests? 24 hour urine tests?
    rad-skw 1605 Replies
    • September 11, 2007
    • 10:52 AM
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  • I had 24 hour urine test; cat scan of the adrenal glandtons of blood tests; mri of the brain and pituitary gland
    sunshine8790 7 Replies
    • September 11, 2007
    • 02:13 PM
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  • and they were all normal, right?..or close to it.If they tell you you are a medical mystery, don't believe them. I was told that too after having every test you had...and others.I found a real doc who diagnosed me with a real disease...of which I had about 70 symptoms.Please look into NAET/Bioset...it will help with your symptoms.Trying to help...mommy cat
    mommy cat 1654 Replies
    • September 11, 2007
    • 02:18 PM
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  • all tests were normal, except for the aldosterone level (high) liver (high)cortisol (low)
    sunshine8790 7 Replies
    • September 11, 2007
    • 02:21 PM
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  • Dear Sunshine...the aldosterone is related to testosterone...mine was high too. This means that your organs and glands that control your hormones is out of balance. My estrogen was low, testosterone was high.Your liver is not functioning properly if those levels are high and your cortisol is low due to adrenal/endocrine imbalance.I had all of this too. I had over 70 symptoms. I was debilitating quickly. The doctors had no answers. I found Bioset. I am grateful. Now I try to help others find it to so that they may be well again.I wish you the best as I have travelled your path...it was no fun.Best regards...mommy cat:)
    mommy cat 1654 Replies
    • September 11, 2007
    • 02:37 PM
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