Discussions By Condition: I cannot get a diagnosis.

No Diagnosis

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: toughcookie1808
  • January 29, 2010
  • 06:06 AM

I have posted a message before, but I really need suggestions. I have had a Brain MRI, Pelvic Ultrasound, numerous blood work, Upper Gi, colonoscopy, liver panel testing, thyroid testing, kidney ultrasound, mono testing. All of which has come back negative, and each time it gets harder to persuade doctors that there is something wrong.

My Symptoms
= Nausea- Mild to severe everyday
= Fatigue: Depends on day, and activity- Went from being able to run to always wanting to rest.
= Weakness
= Headaches
= Excessive Bruising
= Swelling of hands, feet, face
= Slow healing cuts
= Low Blood Sugar- 50/60s many times
= Weight Loss
= Vision loss- Had vision problems, but it has got worse
= Irritability
= Severely low levels of Vitamin D- Primary Doctor I can't see for another week to get medicine for it.
= Low Calcium Levels
= Bleeding Gums

- I have ideas about
Adrenal insuffiency, hormone imbalances, hypoglecemia, Addison's Disease

However, the doctors seem to not care really, and everything I suggest to test for never gets done. My mom is thinking about taking me off base, and going to a children's hospital. I don't know what to do, because what started of with 3 symptoms has gone to more. They last longer now, and are more frequent. I can enjoy being a typical young adult and do things in school I want.

Some people have suggested a type of anemia or cancer. But, my blood work is normal. However, some still say some cancers need more precise testing or blood work.

Please Help

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3 Replies:

  • did you look into Lupus at all? SLE fits some but is hard to diagnose.
    Anonymous 42789 Replies
    • January 29, 2010
    • 03:10 PM
    • 0
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  • did you look into Lupus at all? SLE fits some but is hard to diagnose. Nope. The doctors said it can't be SLE, because I do not fit all the symptoms.
    toughcookie1808 1 Replies
    • January 31, 2010
    • 04:45 PM
    • 0
    Flag this Response
  • I have posted a message before, but I really need suggestions. I have had a Brain MRI, Pelvic Ultrasound, numerous blood work, Upper Gi, colonoscopy, liver panel testing, thyroid testing, kidney ultrasound, mono testing. All of which has come back negative, and each time it gets harder to persuade doctors that there is something wrong. My Symptoms= Nausea- Mild to severe everyday= Fatigue: Depends on day, and activity- Went from being able to run to always wanting to rest. = Weakness= Headaches= Excessive Bruising= Swelling of hands, feet, face= Slow healing cuts= Low Blood Sugar- 50/60s many times= Weight Loss= Vision loss- Had vision problems, but it has got worse= Irritability= Severely low levels of Vitamin D- Primary Doctor I can't see for another week to get medicine for it. = Low Calcium Levels= Bleeding Gums - I have ideas about Adrenal insuffiency, hormone imbalances, hypoglecemia, Addison's Disease However, the doctors seem to not care really, and everything I suggest to test for never gets done. My mom is thinking about taking me off base, and going to a children's hospital. I don't know what to do, because what started of with 3 symptoms has gone to more. They last longer now, and are more frequent. I can enjoy being a typical young adult and do things in school I want. Some people have suggested a type of anemia or cancer. But, my blood work is normal. However, some still say some cancers need more precise testing or blood work. Please Helpfibromyalgia (sp?)
    Anonymous 42789 Replies
    • January 31, 2010
    • 05:11 PM
    • 0
    Flag this Response
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