Discussions By Condition: I cannot get a diagnosis.

Never back to 100%

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: skeezer
  • March 15, 2008
  • 02:49 AM

in the spring of 2003 I noticed after a work out I was flushed red as a beet, a few days later I went for a run and my legs had unusual tingly sensations, soon followed swollen hands and feet, migrating joint pain in knees elbows (but not hips and neck). I had weird sleep issues where I would remember my dreams with amazing clarity and would wake up tired. My muscles felt stiff, heavy tired and sore. My hands and feet became tingly and my legs arms hands and feet swelled. The swelling was mild rings where tight boots didn't zip up but I wasn't a balloon. Eventually my hands woke me up at night feeling like they were on fire. I went to a general practitioner, a rheumatologist and finally the Mayo. I was tested for everything and I tested normal. I only had elevated triglycerides which the doctor at the mayo thought was curious but wasn't concerned. I had carpel tunnel and De Quervain's tenosynovitis and the Mayo doc said it was possibly auto immune related. This lasted for months and slowly resolved..mostly... I never went back to normal. I feel more dragged down than I used to and my hands, never fully recovered, have started to bother me again. I have been waking up with my right hand completly numb. It's a different sensation than before. It's like my hand is completly asleep and I have to shake it a whle to wake it up.

Also, I noticed when swelling went down, near joints (knee, wrists ankles) I have lumps evenly on each side. They aren't like arthritis lumps they are flatter, painless, rubbery, thickened areas. So I still am curious what illness I had that cause such a response. Any clues?

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  • Your symptoms sound like they might almost be from low thyroid levels. I imagine by now, however, that you've been checked for this. One thing you might want to do is make sure your thyroid gland isn't under autoimmune attack, which they likely have NOT checked for. This can be done by testing for thyroid antibodies and perhaps doing an ultrasound of your gland. It took me 8 years to figure out my gland was under autoimmune attack, as my TSH and other thyroid hormones were always okay.Sorry you're having these symptoms. I hope someone can figure it out for you.Best Wishes.
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