Discussions By Condition: I cannot get a diagnosis.

Neurological problems. Seizures? I don't know! Help!

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: mrey1001
  • December 5, 2007
  • 07:12 AM

Hi there! A bit of history to begin with. I'm a 19 year old female. I'm very asthmatic and hypothyridic. I have lost consiousness twice, once due a fall, landing on the back of my head; the second time, due a blow to the forehead by a hammer in a job accident.

And now on to my problems.

About two years ago I began experiences odd spells I couldn't explain. These spells seem to be triggered by a word or a combination of words, I have no idea what these words are. I then experience what can only be explained as deja vu. I always go through the same train of thought and always recognise it, though right now, while not experiencing a spell, I do not know what that train of thought is. I perceive my surroundings as part of this deja vu... example, if I'm watching tv, the person or voice on the tv is saying what I'm thinking. If my father is on the phone, he seems to be saying what I'm thinking. I am aware of it while it is happening. I also seem to have an odd, bitter taste that lingers in the back of my throat during these spells.
Now, I don't fall or collapse. If I'm standing, I will stay standing up. If I'm holding something, I don't drop it. (this happened at work while bringing food to a table, I had a spell and did not put the hot plates down. Five minutes later once the spell was done, I realised my arms were burning, ended up with 2nd degree burns) Though, people around me have said I look dead. My eyes don't focus on anything, I have no expression in my face, and I'm not responsive to anything around me as I'm completely consumed by what's going on in my head.
I was reffered to a neurologist. He is unsure as to what this could be but thinks seizures are the most logical answer. I have had two EEG's, one sleep deprived, one not. Both have come back normal. My MRI also came back normal. I have lost my driver's licence due to this and am really beggining to get frustrated by this. It is also quite scary to me that I'm having these things that even the doctors can't seem to explain. I would just like an answer or an idea.

If anyone could think of anything that this may be, or if anyone is experiencing the same thing, I'd LOVE a response. Thanks!!:confused: :confused:

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13 Replies:

  • Anyone? Even a thought or idea qould be great.
    mrey1001 13 Replies
    • December 7, 2007
    • 06:01 AM
    • 0
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  • have you had any vaccinations before this began??? What about an infection: http://intramural.nimh.nih.gov/pdn/web.htm
    Monsterlove 2921 Replies
    • December 7, 2007
    • 06:55 AM
    • 0
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  • No vaccinations. But, now that I think of it, I began taking synthroid and depo-provera right around the same time as these began... I don't know if there's any association? I'm sure the doctors would have picked up on it, though if this was a possible cause. I'd hope so.
    mrey1001 13 Replies
    • December 7, 2007
    • 06:59 AM
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  • Syncope -- a side effect of depo: http://www.rxlist.com/script/main/art.asp?articlekey=5612
    Monsterlove 2921 Replies
    • December 7, 2007
    • 07:12 AM
    • 0
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  • Thanks, that's great information. Though, the information says syncope is a loss of conciousness. I don't actually lose conciousness. I am aware when it is happening and I seem to be aware of my surroundings though in my mind, my surroundings are different than what they really are. Ex, if I'm watching TV and I have one of these spells and in my mind I'm thinking the words "he has a yellow jacket and green boots" (though, this isn't the thought in my mind, the thought is always the same and I recognise it when it happends but if I'm not experiencing it, I don't remember these words) ....so yes if I'm watching tv and I'm thinking those words, to me, the person on TV is actually saying those words even though they aren't. It's really hard to explain....
    mrey1001 13 Replies
    • December 7, 2007
    • 07:32 AM
    • 0
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  • Sounds like petit mal seizures. I had the same thing, usually brought on by stress, tired, not enough sleep, not enough protein, etc.
    Anonymous 42789 Replies
    • December 7, 2007
    • 08:12 PM
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  • So these can be treated with medications? What about the driver's licence? How long did it take you to be able to get a licence once you started being treated? Thanks for the info!
    mrey1001 13 Replies
    • December 7, 2007
    • 11:21 PM
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  • Syncope: Partial loss, which is what you have. I think you need to investigate further and ask the doctor to consider that. It would appear that you need a cardiac evaluation, according to the web site.I think a doctor would have to okay you for driving before you would get your license.
    Monsterlove 2921 Replies
    • December 8, 2007
    • 02:46 AM
    • 0
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  • How bad did you hit your head/hammer hit? Did you lose consciousness? Did you have a CT? Traumatic Brain Injury TBI has some very unusual symptoms. Have you looked up partial seizures? Often deja vu is considered the beginning of one of these. Also, sometimes an EEG of 20 minutes is not long enough to capture these seizures.
    rad-skw 1605 Replies
    • December 8, 2007
    • 11:36 AM
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  • Doesn't sound like petit mal (due to awareness). Could be temporal lobe epilepsy. If you are aware of the first part (e.g. the deja vu) but then you have a period of no awareness (which you wouldn't know about!) then could be petit mal or TLE with a preceding aura. MRI and EEG being normal do not really help the diagnosis - sometimes they are abnormal and sometimes they're not.Either way sounds like you have some sort of seizure disorder (or you are mad) and anticonvulsants may help.D
    Anonymous 42789 Replies
    • December 8, 2007
    • 01:52 PM
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  • Yes I did lose conciousness both times, both when I fell and got hit by the hammer. No, I didn't have a CT after either. And thank you, I've looked up partial seizures and this is the only thing so far, I've seen with deja vu, which is the primary problem to mine.
    mrey1001 13 Replies
    • December 8, 2007
    • 03:50 PM
    • 0
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  • In response to the driver's license question, I have epilepsy, and once I started on meds for it, I was allowed to drive 3 months later. I live in Arizona. You might check with your state's motor vehicle department, because I think the law differs by state.
    Anonymous 42789 Replies
    • December 9, 2007
    • 03:02 AM
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  • After yet another MRI, still nothing. That's one EEG, one sleep deprived EEG and two MRI's, and an appointment with a seizure specialist and neurologist. After all of this, they still cannot seem to come up with a possible diagnosis. I haven't had a spell since March, yet they still will not authorize me to get my driver's licence back. They can't give me any medications without a diagnosis. I'm at a loss for things to do. I can't hold a job or go back to school without my driver's licence, my life has been on hold for the past two years and doesn't seem to be getting any further. If anyone has any suggestions as to what can be done from here, I'd really appreciate anything!
    mrey1001 13 Replies
    • January 2, 2008
    • 08:05 AM
    • 0
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