Discussions By Condition: I cannot get a diagnosis.

Neurological problem or chronic sinusitis?

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • September 5, 2008
  • 04:58 PM

Hi.
I am an 18-yr old male and I have recently been experiencing some unusual symptoms. I went to my primary care physician about a week and a half ago because of headache, dizziness, lightheadedness, and eye-twitching. I had never had such a combo of symptoms, so I assumed the worst, of course, something neurological maybe (especially because my mother passed away from brain cancer two years ago). However, all tests appeared fine: EKG, normal; blood work, normal (aside from slightly high potassium, but was retested in another lab and everything was perfectly fine); and MRI without contrast, normal EXCEPT for inflamed sinuses. Doctor diagnosed sinusitis and put me on 10-day regimen of Augmentin (I am due to finish this weekend). The lightheadedness has improved and is almost completely gone, but I still do not feel right and other symptoms remain.

My biggest problem right now is extreme fatigue. I seem always to be tired, and I have been getting plenty of rest, usually at least nine hours a night. The other day I had a 10-hr night of sleep, woke up, and three hours later, was extremely drowsy again. Took a three hour nap and still felt so lethargic. Oddly it seems to improve at night, but I have hypothesized it might be because that’s when I’m “supposed” to feel tired so I don’t notice it as much. I mention this because I have read many articles about how chronic fatigue and sinusitis have recently been linked, and that it is believed by many physicians now that fatigue may be one of the best indicators of a sinus issue. I have no problem believing this, and all my symptoms seem to fit sinusitis: headache (always on the right side of my head), dizziness, even the eye twitching because of nerves which run through/near the sinuses and which, if irritated, can cause muscle spasms. The headaches haven’t been too bad lately, but when I have them, I almost feel like they may be originating from the right side of my neck and radiating towards my right temple near my ear (I had an ear infection a couple of months ago, put on z-pac, don’t know if it ever went away). I find myself cracking my neck a lot, and also cracking/popping my jaw to alleviate some pain (which is more annoying than excruciating). Also, and this has been happening for a long time so I don’t know if it’s connected, I have been having lots of random muscle twitching in basically any and every part of my body. I’m actually not too concerned about this because I understand benign muscle twitching is quite common, and plus it seems to get worse or become more noticeable if I think about it deliberately (may be related to anxiety?) However, it’s hard to put my finger on it, but I still don’t feel right. Sometimes it feels that my whole body is vibrating, though I am not visibly trembling. Often my brain feels like it’s shaking inside my skull, odd as it sounds, and I feel like my head is pounding, as if I am suddenly VERY aware of the blood pumping through my head. This is usually the worst when I am relaxing or about to sleep. Sometimes I wake up suddenly and feel like my body is trembling but it’s not. It’s quite scary, not painful, just disconcerting. In addition, and I don’t know if this has any relation, but for the past 2 weeks I have been having very loose stool, sometimes diarrhea, 4-5 times a day. My appetite is maybe a little less than usual, but still pretty good, and I have been staying very hydrated. (Could the loose stool be in response to antibiotics/ anxiety over my symptoms?)

Oh, and about two weeks ago, I noticed I kept smelling this sort of grape scent, but it seems to have gone away oddly, and now my nose trouble is a constant stuffed feeling, almost like extremely narrow nasal passages and difficulty smelling things.

Basically, it seems that my symptoms could very easily be due to CHRONIC sinusitis, especially considering my past (allergies since I was very young, always have had a kind of “clogged” nose but never thought it was abnormal). However, if this is true, I fear that the antiobiotics may be doing nothing because of the scarce blood supply to the sinuses, AND because it may be fungal or viral. I am strongly considering seeing an ENT, but I also still have fears that it may be neurological, and all sorts of crazy thoughts have gone through my mind: MS, fibromyalgia, chronic fatigue syndrome, brain infection (can that spread from sinuses?), a missed growth?? Could it even be Chiari malformation? (nothing said after MRI examination but could they have missed it?) I just am very stressed about this, slightly paranoid, especially because I move into college in a couple days and do not want to deal with all these symptoms (in fact my doctor suggested a lot of my symptoms may be in response to the difficult transition and anxiety about college, but I don’t know, these symptoms are very real to me). Is this all psychological, partially, or completely physiological? I would appreciate ANY advice you can give. I just want to feel like me again! Thanks!

(just a random thought, can a growth spurt cause one to feel out of whack like this? Because I just recently grew more, as in while I have been feeling this way, and I haven’t grown in over a year)

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7 Replies:

  • From personal experience:Tension in the rib muscles can lead to eye twitching. Tension can come up the neck and into the jaw, and then into the head and ears and stimulate various symptoms, often via triggerpoints. If biting a pencil makes change, then the tension is pulling the jaw into a nerve. Hip/shoulder/neck posture may be pulled toward the front with the tension, making it hard to stand up straight. Add on to these sinus infection, and I empathize with your complaints. I put salt water into a sport water bottle and squirt it into my nose. I'm getting massage to straighten my posture. I'm changing my diet with considerations for food sensitivities.Hi.I am an 18-yr old male and I have recently been experiencing some unusual symptoms. I went to my primary care physician about a week and a half ago because of headache, dizziness, lightheadedness, and eye-twitching. I had never had such a combo of symptoms, so I assumed the worst, of course, something neurological maybe (especially because my mother passed away from brain cancer two years ago). However, all tests appeared fine: EKG, normal; blood work, normal (aside from slightly high potassium, but was retested in another lab and everything was perfectly fine); and MRI without contrast, normal EXCEPT for inflamed sinuses. Doctor diagnosed sinusitis and put me on 10-day regimen of Augmentin (I am due to finish this weekend). The lightheadedness has improved and is almost completely gone, but I still do not feel right and other symptoms remain. My biggest problem right now is extreme fatigue. I seem always to be tired, and I have been getting plenty of rest, usually at least nine hours a night. The other day I had a 10-hr night of sleep, woke up, and three hours later, was extremely drowsy again. Took a three hour nap and still felt so lethargic. Oddly it seems to improve at night, but I have hypothesized it might be because that’s when I’m “supposed” to feel tired so I don’t notice it as much. I mention this because I have read many articles about how chronic fatigue and sinusitis have recently been linked, and that it is believed by many physicians now that fatigue may be one of the best indicators of a sinus issue. I have no problem believing this, and all my symptoms seem to fit sinusitis: headache (always on the right side of my head), dizziness, even the eye twitching because of nerves which run through/near the sinuses and which, if irritated, can cause muscle spasms. The headaches haven’t been too bad lately, but when I have them, I almost feel like they may be originating from the right side of my neck and radiating towards my right temple near my ear (I had an ear infection a couple of months ago, put on z-pac, don’t know if it ever went away). I find myself cracking my neck a lot, and also cracking/popping my jaw to alleviate some pain (which is more annoying than excruciating). Also, and this has been happening for a long time so I don’t know if it’s connected, I have been having lots of random muscle twitching in basically any and every part of my body. I’m actually not too concerned about this because I understand benign muscle twitching is quite common, and plus it seems to get worse or become more noticeable if I think about it deliberately (may be related to anxiety?) However, it’s hard to put my finger on it, but I still don’t feel right. Sometimes it feels that my whole body is vibrating, though I am not visibly trembling. Often my brain feels like it’s shaking inside my skull, odd as it sounds, and I feel like my head is pounding, as if I am suddenly VERY aware of the blood pumping through my head. This is usually the worst when I am relaxing or about to sleep. Sometimes I wake up suddenly and feel like my body is trembling but it’s not. It’s quite scary, not painful, just disconcerting. In addition, and I don’t know if this has any relation, but for the past 2 weeks I have been having very loose stool, sometimes diarrhea, 4-5 times a day. My appetite is maybe a little less than usual, but still pretty good, and I have been staying very hydrated. (Could the loose stool be in response to antibiotics/ anxiety over my symptoms?)Oh, and about two weeks ago, I noticed I kept smelling this sort of grape scent, but it seems to have gone away oddly, and now my nose trouble is a constant stuffed feeling, almost like extremely narrow nasal passages and difficulty smelling things. Basically, it seems that my symptoms could very easily be due to CHRONIC sinusitis, especially considering my past (allergies since I was very young, always have had a kind of “clogged” nose but never thought it was abnormal). However, if this is true, I fear that the antiobiotics may be doing nothing because of the scarce blood supply to the sinuses, AND because it may be fungal or viral. I am strongly considering seeing an ENT, but I also still have fears that it may be neurological, and all sorts of crazy thoughts have gone through my mind: MS, fibromyalgia, chronic fatigue syndrome, brain infection (can that spread from sinuses?), a missed growth?? Could it even be Chiari malformation? (nothing said after MRI examination but could they have missed it?) I just am very stressed about this, slightly paranoid, especially because I move into college in a couple days and do not want to deal with all these symptoms (in fact my doctor suggested a lot of my symptoms may be in response to the difficult transition and anxiety about college, but I don’t know, these symptoms are very real to me). Is this all psychological, partially, or completely physiological? I would appreciate ANY advice you can give. I just want to feel like me again! Thanks!(just a random thought, can a growth spurt cause one to feel out of whack like this? Because I just recently grew more, as in while I have been feeling this way, and I haven’t grown in over a year)
    Anonymous 42789 Replies Flag this Response
  • Your symptoms are the closest that I've read to my own. I've had something similar and very severe for three years now with little progress in comming up with a reasonable treatment. It took me a year before I could even begin to get out of the house again because of fatigue. When this first happened I didnt even have the mental focus to read a sentence without breaking down. From eye to brain there was no energy to carry it through without almost causeing me to fall out. I also had this constant tension in my head and neck. I thought I had multiple sclerosis and have been diagnosed with Chronic Fatigue Syndrome and another condition. Antibiotics have suprisingly helped on certain occassions when taking them for normal reasons such as influenza. I've noticed this three times over the last three years but symptoms soon return again... like within a few days. I think the antibiotics may have supressed the ammune system a little which may be over active. The only thing that gave me almost complete relief of symptoms was a tranquilizer medication in a high dose but that wasnt an option to be continued with. I have experienced visual and migraine activity, eye twitching, vertigo, dizziness, tinitis, light sensitivity, numbness in different areas, diarrhea. I always had extreme fatigue after normal exercise but mostly in the beginning. Where a normal person would recover easily it would take me a week on average just to get over the fatigue where I could do anything again. Some days I'd wake up and my arms or whatever else would feel so heavy like lead or to say that my arms felt 30-40 pounds each. Also, I've had an irregular heartbeat and mostly everything that people with CFS or MS complain about. Its been difficult to deal with emotional stress of any kind and would always make my symptoms worse. My sinusitis has become terrible in recent months and is the only thing that has become worse instead of a little better. Somehow there is an emotional, psychological, and immune response tied in with a persons reaction to stress which seems to really be at the root of this kind of condition. In the beginning certain foods also caused me to feel very weak which had never given me any problems before. I can eat or drink what I want to now (minus alcohol) but at first I had to stick to mostly vegetables and a caffine free diet. Even one cup of coffee was enough to send my heart racing. I know what its like to be shaking and to be in shock from this as well. The initial onset was after a series of traumatic emotional events - the same as it is in the case of MS patients. Now that I'm thinking about it again (without reading what I wrote three years ago) I also remember being able to smell everything and there was a metallic sort of taste when I would drink water that went away after the first month. I could taste every chemical in the bottled drinking water. I often wonder if this condition will ever become life threatening or also if this is more or less related to the term Myalgic Encephalomyelitis in a more severe sense. I really wish I could explain to the doctors why all my blood tests and MRI's were normal and still this horrible condition . It makes no obvious sense to most of them and they have little sympathy for something they havent been through theirselves or are unable to understand it seems. Yet, after knowing me for three years they know I'm not faking any of it and so have calmed down a bit. Recently some of my symptoms were more telling of acutual organs involved in an evaluation process which was conducted by a neurologist that was more recognizable to her normal experince. This also gave me further insight. Mostly all Ive heard is the term 'psychosomatic' or 'reactive depression'. One doctor told me that it might have somehting to do with the amygdala in the brain not functioning properly after emotional trauma. I've purchased a few programs online and have been to several doctors and neurologists. As I continue in the process the best thing Ive found to do is just avoid stress of any kind when possible and to get normal sleep when possible. This condition has a lot to do with the sleep and wake cycle. I'm onto several different theories at the moment . My sinusitis becomes better after sleep which gives me the hint that the body has stopped sending out whatever it is for such a reaction as far as sinusitis is concerned but also other muscle tensions. Also, any change in sleep patterns has often made my symptoms much more severe. There have even been small siezures when I would try to fall asleep inbetween the moment of being conscious to being unconscious or asleep. It has often been difficult to fall asleep because of this and his has also effected my vision. If I have a full day its hard to bring my nerves and condition to normal without first going through a lot of muscle tensions and sinusitis type of symptoms. All in all I put my faith in *****t and look for another day and that at least takes care of the spiritual aspect of this to the point that I can understand it and which is the most important part I think. This thing has been a pain if ever there was one. I've also had many panic attacks and just go for a walk when this happens if I can manage to do so. Many times I have gone to the hospital. Its easy to panic when your system is so out of order. It may be completely true that an illness is first based on the spiritual and psychologial state of a person before it becomes a physical illness and could even be a generational mishaps along the same lines. I think its because of being unsettled about something in a persons own life that ultimately causes such problems as these. I almost died from whatever it is in my case and I dont think that is in any way exaggerating. It definitely has something to do with trauma. It may just be normal stress in others. I have struggled to understand how much of this was psychological and how much of it was phsiological. As far as emotional or physical growth is concerned -I believe it to have a lot to do with childhood experiences and neurological connections that were formed and wanting to find a way to remedy any disappointment in this outcome. It seems that after so much trauma in my life that my system has become unsettled and has reached a point of do or die. I cant explain how it all feels exactly here in this short amount of words but its just as much a physical response as a psychological one at the moment. The two places have met together. Ive also been to the chiropractor to set the nerves in the spine in working order after reading about this and the chiropractor did say that because of stress the muscles in my back had begun to cause twisting in the spine and perhaps pinching of the nerves making it difficult for my body to get a healthy signal. Theres a lot to say and a lot Im remembering but finding solid truth in the medical world is something either for the future or just the individual I think.
    Anonymous 42789 Replies Flag this Response
  • Your symptoms are the closest that I've read to my own. I've had something similar and very severe for three years now with little progress in comming up with a reasonable treatment. It took me a year before I could even begin to get out of the house again because of fatigue. When this first happened I didnt even have the mental focus to read a sentence without breaking down. From eye to brain there was no energy to carry it through without almost causeing me to fall out. I also had this constant tension in my head and neck. I thought I had multiple sclerosis and have been diagnosed with Chronic Fatigue Syndrome and another condition. Antibiotics have suprisingly helped on certain occassions when taking them for normal reasons such as influenza. I've noticed this three times over the last three years but symptoms soon return again... like within a few days. I think the antibiotics may have supressed the ammune system a little which may be over active. The only thing that gave me almost complete relief of symptoms was a tranquilizer medication in a high dose but that wasnt an option to be continued with. I have experienced visual and migraine activity, eye twitching, vertigo, dizziness, tinitis, light sensitivity, numbness in different areas, diarrhea. I always had extreme fatigue after normal exercise but mostly in the beginning. Where a normal person would recover easily it would take me a week on average just to get over the fatigue where I could do anything again. Some days I'd wake up and my arms or whatever else would feel so heavy like lead or to say that my arms felt 30-40 pounds each. Also, I've had an irregular heartbeat and mostly everything that people with CFS or MS complain about. Its been difficult to deal with emotional stress of any kind and would always make my symptoms worse. My sinusitis has become terrible in recent months and is the only thing that has become worse instead of a little better. Somehow there is an emotional, psychological, and immune response tied in with a persons reaction to stress which seems to really be at the root of this kind of condition. In the beginning certain foods also caused me to feel very weak which had never given me any problems before. I can eat or drink what I want to now (minus alcohol) but at first I had to stick to mostly vegetables and a caffine free diet. Even one cup of coffee was enough to send my heart racing. I know what its like to be shaking and to be in shock from this as well. The initial onset was after a series of traumatic emotional events - the same as it is in the case of MS patients. Now that I'm thinking about it again (without reading what I wrote three years ago) I also remember being able to smell everything and there was a metallic sort of taste when I would drink water that went away after the first month. I could taste every chemical in the bottled drinking water. I often wonder if this condition will ever become life threatening or also if this is more or less related to the term Myalgic Encephalomyelitis in a more severe sense. I really wish I could explain to the doctors why all my blood tests and MRI's were normal and still this horrible condition . It makes no obvious sense to most of them and they have little sympathy for something they havent been through theirselves or are unable to understand it seems. Yet, after knowing me for three years they know I'm not faking any of it and so have calmed down a bit. Recently some of my symptoms were more telling of acutual organs involved in an evaluation process which was conducted by a neurologist that was more recognizable to her normal experince. This also gave me further insight. Mostly all Ive heard is the term 'psychosomatic' or 'reactive depression'. One doctor told me that it might have somehting to do with the amygdala in the brain not functioning properly after emotional trauma. I've purchased a few programs online and have been to several doctors and neurologists. As I continue in the process the best thing Ive found to do is just avoid stress of any kind when possible and to get normal sleep when possible. This condition has a lot to do with the sleep and wake cycle. I'm onto several different theories at the moment . My sinusitis becomes better after sleep which gives me the hint that the body has stopped sending out whatever it is for such a reaction as far as sinusitis is concerned but also other muscle tensions. Also, any change in sleep patterns has often made my symptoms much more severe. There have even been small siezures when I would try to fall asleep inbetween the moment of being conscious to being unconscious or asleep. It has often been difficult to fall asleep because of this and his has also effected my vision. If I have a full day its hard to bring my nerves and condition to normal without first going through a lot of muscle tensions and sinusitis type of symptoms. All in all I put my faith in *****t and look for another day and that at least takes care of the spiritual aspect of this to the point that I can understand it and which is the most important part I think. This thing has been a pain if ever there was one. I've also had many panic attacks and just go for a walk when this happens if I can manage to do so. Many times I have gone to the hospital. Its easy to panic when your system is so out of order. It may be completely true that an illness is first based on the spiritual and psychologial state of a person before it becomes a physical illness and could even be a generational mishaps along the same lines. I think its because of being unsettled about something in a persons own life that ultimately causes such problems as these. I almost died from whatever it is in my case and I dont think that is in any way exaggerating. It definitely has something to do with trauma. It may just be normal stress in others. I have struggled to understand how much of this was psychological and how much of it was phsiological. As far as emotional or physical growth is concerned -I believe it to have a lot to do with childhood experiences and neurological connections that were formed and wanting to find a way to remedy any disappointment in this outcome. It seems that after so much trauma in my life that my system has become unsettled and has reached a point of do or die. I cant explain how it all feels exactly here in this short amount of words but its just as much a physical response as a psychological one at the moment. The two places have met together.Ive also been to the chiropractor to set the nerves in the spine in working order after reading about this and the chiropractor did say that because of stress the muscles in my back had begun to cause twisting in the spine and perhaps pinching of the nerves making it difficult for my body to get a healthy signal. Theres a lot to say and a lot Im remembering but finding solid truth in the medical world is something either for the future or just the individual I think. How did all this start for you? How did you almost die? Another thing that I find that makes me think that I do not have this kind of problem is that I am sensitive to any kind of nartic,drug,tranquilizers and some vitamins it seems also. Was youre nose stuffed alot? cause mine doesnt seem to be. My head just feels like there is something wrong and it is teied in with my sesitivities to the drugs. Have you ever had that problem? How do I get checked for this? Sorry for all the quwstions but I would really like to know. Really hope to hear back from you.
    ecko23 51 Replies Flag this Response
  • am so sorry for what you're going through. I hope you see a Neurologist. Your symptoms are very similiar to mine and I have been diagnosed with Paroxysmal Hemicrania along with Trigeminal and Occipital Neuralgia. These three things attack healthy people and can be treated with a drug called Indomethacin. You can take it orally or by a suppository which I know sounds bad but it is the best way. No side effects to the suppository. A custom medicine or a compound lab can make it for you and it's usually covered by insurance. I use The Johnson Compounding Lab in Waltham, MA. They can ship to you, anywhere. It can go away at any time and you will feel great relief with the Indomethacin. It seems by your symptoms that we both have the same thing. Please, see a Neurologist. Many people have undergone unnecessary surgeries and dental work when the whole time it was a Neurological disorder that can be treated and it doesn't mean anything else is going on, it effects HEALTHY people. PLEASE, see a Neurologist. I did, and he gave me my life back. Good Luck to you, always. JohannaHi. I am an 18-yr old male and I have recently been experiencing some unusual symptoms. I went to my primary care physician about a week and a half ago because of headache, dizziness, lightheadedness, and eye-twitching. I had never had such a combo of symptoms, so I assumed the worst, of course, something neurological maybe (especially because my mother passed away from brain cancer two years ago). However, all tests appeared fine: EKG, normal; blood work, normal (aside from slightly high potassium, but was retested in another lab and everything was perfectly fine); and MRI without contrast, normal EXCEPT for inflamed sinuses. Doctor diagnosed sinusitis and put me on 10-day regimen of Augmentin (I am due to finish this weekend). The lightheadedness has improved and is almost completely gone, but I still do not feel right and other symptoms remain. My biggest problem right now is extreme fatigue. I seem always to be tired, and I have been getting plenty of rest, usually at least nine hours a night. The other day I had a 10-hr night of sleep, woke up, and three hours later, was extremely drowsy again. Took a three hour nap and still felt so lethargic. Oddly it seems to improve at night, but I have hypothesized it might be because that’s when I’m “supposed” to feel tired so I don’t notice it as much. I mention this because I have read many articles about how chronic fatigue and sinusitis have recently been linked, and that it is believed by many physicians now that fatigue may be one of the best indicators of a sinus issue. I have no problem believing this, and all my symptoms seem to fit sinusitis: headache (always on the right side of my head), dizziness, even the eye twitching because of nerves which run through/near the sinuses and which, if irritated, can cause muscle spasms. The headaches haven’t been too bad lately, but when I have them, I almost feel like they may be originating from the right side of my neck and radiating towards my right temple near my ear (I had an ear infection a couple of months ago, put on z-pac, don’t know if it ever went away). I find myself cracking my neck a lot, and also cracking/popping my jaw to alleviate some pain (which is more annoying than excruciating). Also, and this has been happening for a long time so I don’t know if it’s connected, I have been having lots of random muscle twitching in basically any and every part of my body. I’m actually not too concerned about this because I understand benign muscle twitching is quite common, and plus it seems to get worse or become more noticeable if I think about it deliberately (may be related to anxiety?) However, it’s hard to put my finger on it, but I still don’t feel right. Sometimes it feels that my whole body is vibrating, though I am not visibly trembling. Often my brain feels like it’s shaking inside my skull, odd as it sounds, and I feel like my head is pounding, as if I am suddenly VERY aware of the blood pumping through my head. This is usually the worst when I am relaxing or about to sleep. Sometimes I wake up suddenly and feel like my body is trembling but it’s not. It’s quite scary, not painful, just disconcerting. In addition, and I don’t know if this has any relation, but for the past 2 weeks I have been having very loose stool, sometimes diarrhea, 4-5 times a day. My appetite is maybe a little less than usual, but still pretty good, and I have been staying very hydrated. (Could the loose stool be in response to antibiotics/ anxiety over my symptoms?) Oh, and about two weeks ago, I noticed I kept smelling this sort of grape scent, but it seems to have gone away oddly, and now my nose trouble is a constant stuffed feeling, almost like extremely narrow nasal passages and difficulty smelling things. Basically, it seems that my symptoms could very easily be due to CHRONIC sinusitis, especially considering my past (allergies since I was very young, always have had a kind of “clogged” nose but never thought it was abnormal). However, if this is true, I fear that the antiobiotics may be doing nothing because of the scarce blood supply to the sinuses, AND because it may be fungal or viral. I am strongly considering seeing an ENT, but I also still have fears that it may be neurological, and all sorts of crazy thoughts have gone through my mind: MS, fibromyalgia, chronic fatigue syndrome, brain infection (can that spread from sinuses?), a missed growth?? Could it even be Chiari malformation? (nothing said after MRI examination but could they have missed it?) I just am very stressed about this, slightly paranoid, especially because I move into college in a couple days and do not want to deal with all these symptoms (in fact my doctor suggested a lot of my symptoms may be in response to the difficult transition and anxiety about college, but I don’t know, these symptoms are very real to me). Is this all psychological, partially, or completely physiological? I would appreciate ANY advice you can give. I just want to feel like me again! Thanks! (just a random thought, can a growth spurt cause one to feel out of whack like this? Because I just recently grew more, as in while I have been feeling this way, and I haven’t grown in over a year)
    Johanna51660 1 Replies
    • November 23, 2010
    • 06:56 AM
    • 0
    Flag this Response
  • Hi.I am an 18-yr old male and I have recently been experiencing some unusual symptoms. I went to my primary care physician about a week and a half ago because of headache, dizziness, lightheadedness, and eye-twitching. I had never had such a combo of symptoms, so I assumed the worst, of course, something neurological maybe (especially because my mother passed away from brain cancer two years ago). However, all tests appeared fine: EKG, normal; blood work, normal (aside from slightly high potassium, but was retested in another lab and everything was perfectly fine); and MRI without contrast, normal EXCEPT for inflamed sinuses. Doctor diagnosed sinusitis and put me on 10-day regimen of Augmentin (I am due to finish this weekend). The lightheadedness has improved and is almost completely gone, but I still do not feel right and other symptoms remain. My biggest problem right now is extreme fatigue. I seem always to be tired, and I have been getting plenty of rest, usually at least nine hours a night. The other day I had a 10-hr night of sleep, woke up, and three hours later, was extremely drowsy again. Took a three hour nap and still felt so lethargic. Oddly it seems to improve at night, but I have hypothesized it might be because that’s when I’m “supposed” to feel tired so I don’t notice it as much. I mention this because I have read many articles about how chronic fatigue and sinusitis have recently been linked, and that it is believed by many physicians now that fatigue may be one of the best indicators of a sinus issue. I have no problem believing this, and all my symptoms seem to fit sinusitis: headache (always on the right side of my head), dizziness, even the eye twitching because of nerves which run through/near the sinuses and which, if irritated, can cause muscle spasms. The headaches haven’t been too bad lately, but when I have them, I almost feel like they may be originating from the right side of my neck and radiating towards my right temple near my ear (I had an ear infection a couple of months ago, put on z-pac, don’t know if it ever went away). I find myself cracking my neck a lot, and also cracking/popping my jaw to alleviate some pain (which is more annoying than excruciating). Also, and this has been happening for a long time so I don’t know if it’s connected, I have been having lots of random muscle twitching in basically any and every part of my body. I’m actually not too concerned about this because I understand benign muscle twitching is quite common, and plus it seems to get worse or become more noticeable if I think about it deliberately (may be related to anxiety?) However, it’s hard to put my finger on it, but I still don’t feel right. Sometimes it feels that my whole body is vibrating, though I am not visibly trembling. Often my brain feels like it’s shaking inside my skull, odd as it sounds, and I feel like my head is pounding, as if I am suddenly VERY aware of the blood pumping through my head. This is usually the worst when I am relaxing or about to sleep. Sometimes I wake up suddenly and feel like my body is trembling but it’s not. It’s quite scary, not painful, just disconcerting. In addition, and I don’t know if this has any relation, but for the past 2 weeks I have been having very loose stool, sometimes diarrhea, 4-5 times a day. My appetite is maybe a little less than usual, but still pretty good, and I have been staying very hydrated. (Could the loose stool be in response to antibiotics/ anxiety over my symptoms?)Oh, and about two weeks ago, I noticed I kept smelling this sort of grape scent, but it seems to have gone away oddly, and now my nose trouble is a constant stuffed feeling, almost like extremely narrow nasal passages and difficulty smelling things. Basically, it seems that my symptoms could very easily be due to CHRONIC sinusitis, especially considering my past (allergies since I was very young, always have had a kind of “clogged” nose but never thought it was abnormal). However, if this is true, I fear that the antiobiotics may be doing nothing because of the scarce blood supply to the sinuses, AND because it may be fungal or viral. I am strongly considering seeing an ENT, but I also still have fears that it may be neurological, and all sorts of crazy thoughts have gone through my mind: MS, fibromyalgia, chronic fatigue syndrome, brain infection (can that spread from sinuses?), a missed growth?? Could it even be Chiari malformation? (nothing said after MRI examination but could they have missed it?) I just am very stressed about this, slightly paranoid, especially because I move into college in a couple days and do not want to deal with all these symptoms (in fact my doctor suggested a lot of my symptoms may be in response to the difficult transition and anxiety about college, but I don’t know, these symptoms are very real to me). Is this all psychological, partially, or completely physiological? I would appreciate ANY advice you can give. I just want to feel like me again! Thanks!(just a random thought, can a growth spurt cause one to feel out of whack like this? Because I just recently grew more, as in while I have been feeling this way, and I haven’t grown in over a year)Hello,My husband also has chronic severe sinusitus. We went to an ENT and he has been on the same antibiotic, (and many more) as you! The ENT has said that because of the severity of the infection, you need at least three weeks of antibiotics to see improvement. Also, he was prescribed Nasonex. It is a corticosteriod for the nose and helps in conjuction of a good antibiotic. I would suggest going to an ENT when you can because I know how crummy sinus infections can make you feel and it just is not worth it! They will be able to tell you where your infection is located specifically, (they might have to do another MRI at the ENT for this) and they will be able to prescibe a good round of antibiotics. If they don't work and you still have an infection (like my husband who happens to have an intolerance to antibiotics now, yikes!) you might even have to have surgery. But definitly go to the ENT. As for the ticks, my husband has experienced that too, he can stop them if he focuses hard. They come and go, some medications can and have made them worse, maybe a side effect of the antibiotic for you? Nerves play a huge role though as well so it is hard to say for sure without getting it checked. Good Luck with college!
    ALovingWife 6 Replies
    • December 1, 2010
    • 00:02 AM
    • 0
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  • Hi.I am an 18-yr old male and I have recently been experiencing some unusual symptoms. I went to my primary care physician about a week and a half ago because of headache, dizziness, lightheadedness, and eye-twitching. I had never had such a combo of symptoms, so I assumed the worst, of course, something neurological maybe (especially because my mother passed away from brain cancer two years ago). However, all tests appeared fine: EKG, normal; blood work, normal (aside from slightly high potassium, but was retested in another lab and everything was perfectly fine); and MRI without contrast, normal EXCEPT for inflamed sinuses. Doctor diagnosed sinusitis and put me on 10-day regimen of Augmentin (I am due to finish this weekend). The lightheadedness has improved and is almost completely gone, but I still do not feel right and other symptoms remain. My biggest problem right now is extreme fatigue. I seem always to be tired, and I have been getting plenty of rest, usually at least nine hours a night. The other day I had a 10-hr night of sleep, woke up, and three hours later, was extremely drowsy again. Took a three hour nap and still felt so lethargic. Oddly it seems to improve at night, but I have hypothesized it might be because that’s when I’m “supposed” to feel tired so I don’t notice it as much. I mention this because I have read many articles about how chronic fatigue and sinusitis have recently been linked, and that it is believed by many physicians now that fatigue may be one of the best indicators of a sinus issue. I have no problem believing this, and all my symptoms seem to fit sinusitis: headache (always on the right side of my head), dizziness, even the eye twitching because of nerves which run through/near the sinuses and which, if irritated, can cause muscle spasms. The headaches haven’t been too bad lately, but when I have them, I almost feel like they may be originating from the right side of my neck and radiating towards my right temple near my ear (I had an ear infection a couple of months ago, put on z-pac, don’t know if it ever went away). I find myself cracking my neck a lot, and also cracking/popping my jaw to alleviate some pain (which is more annoying than excruciating). Also, and this has been happening for a long time so I don’t know if it’s connected, I have been having lots of random muscle twitching in basically any and every part of my body. I’m actually not too concerned about this because I understand benign muscle twitching is quite common, and plus it seems to get worse or become more noticeable if I think about it deliberately (may be related to anxiety?) However, it’s hard to put my finger on it, but I still don’t feel right. Sometimes it feels that my whole body is vibrating, though I am not visibly trembling. Often my brain feels like it’s shaking inside my skull, odd as it sounds, and I feel like my head is pounding, as if I am suddenly VERY aware of the blood pumping through my head. This is usually the worst when I am relaxing or about to sleep. Sometimes I wake up suddenly and feel like my body is trembling but it’s not. It’s quite scary, not painful, just disconcerting. In addition, and I don’t know if this has any relation, but for the past 2 weeks I have been having very loose stool, sometimes diarrhea, 4-5 times a day. My appetite is maybe a little less than usual, but still pretty good, and I have been staying very hydrated. (Could the loose stool be in response to antibiotics/ anxiety over my symptoms?)Oh, and about two weeks ago, I noticed I kept smelling this sort of grape scent, but it seems to have gone away oddly, and now my nose trouble is a constant stuffed feeling, almost like extremely narrow nasal passages and difficulty smelling things. Basically, it seems that my symptoms could very easily be due to CHRONIC sinusitis, especially considering my past (allergies since I was very young, always have had a kind of “clogged” nose but never thought it was abnormal). However, if this is true, I fear that the antiobiotics may be doing nothing because of the scarce blood supply to the sinuses, AND because it may be fungal or viral. I am strongly considering seeing an ENT, but I also still have fears that it may be neurological, and all sorts of crazy thoughts have gone through my mind: MS, fibromyalgia, chronic fatigue syndrome, brain infection (can that spread from sinuses?), a missed growth?? Could it even be Chiari malformation? (nothing said after MRI examination but could they have missed it?) I just am very stressed about this, slightly paranoid, especially because I move into college in a couple days and do not want to deal with all these symptoms (in fact my doctor suggested a lot of my symptoms may be in response to the difficult transition and anxiety about college, but I don’t know, these symptoms are very real to me). Is this all psychological, partially, or completely physiological? I would appreciate ANY advice you can give. I just want to feel like me again! Thanks!(just a random thought, can a growth spurt cause one to feel out of whack like this? Because I just recently grew more, as in while I have been feeling this way, and I haven’t grown in over a year)Hello, I had most of the same symptoms and was given two different medications to try to solve a simple sinus infection is what they called it. When that didnt work and I could no longer take it anymore they took the time and looked at everything I was telling them and how they now saw that my eye was swollen (probably the size of a small baseball)they sent me off to the emergency room and i had to see a neurologist. He then told me it started from a cold and turned it to sinusitis which then cause the muscus not to drain out but instead form on the top layer of my skull. which was causing the swelling and the horrible migranes and all the other issues. Long story short I had to get emergency surgery (because he said if i would have waited other day I probably wouldnt have been alive) i was on an iv for a year.So if possible i would maybe see another dr if you needed to or make sure they check everything possible.
    Anonymous 42789 Replies
    • January 12, 2011
    • 07:34 PM
    • 0
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  • Hello, I have had some similar symptoms.....it started with eyelid twitch and extreme pressure and "crawling" sensation in my forehead and/or frontal sinuses, as well as a strange burning like sensation across my right leg, similar to what lymph inflammation might feel like I am guessing. I've seen a ENT, infectious disease and hemotologist. Had an CT an MRI brain without contrast, blood tests, all normal. Then I noticed psychological symptoms such as highly active dreams, trouble falling asleep, moments where I feel like I am about to have a panic attack, trouble concentrating, irritability. They put me on Augmentin which did nothing. It has been 7 months now and no doctor has been able to help me, they all say it is psychological just because they cannot find an infection. I have extreme anxiety that this will progress and cause mental deteriotion over time since it is being left untreated. That my cognitive functions will decline. I know in my heart that this is not psychological although I have no proof and that my symptoms are being caused by a microbe or bug or something like a virus or bacteria. I am 40 years old and all this started in Jan. of 2012, nothing like this before. I think I need to see a neurologist or have blood cultures done or a spinal tap or another MRI with contrast. I also have lots of dizziness. I do have that pressure feeling in my forehead where my frontal sinuses are but have never had any congestion with this. I start to panic when I think I will have to live with this forever or die young when it gets worse.....
    mikedant 1 Replies Flag this Response
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