Discussions By Condition: I cannot get a diagnosis.

neurological disorder?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: czoltak
  • April 28, 2010
  • 02:35 AM

My 38 year old (active) wife had a severe migraine 4 weeks ago. Since then we have been through two hospitals, many tests, and no answers. She had a lumbar puncture, blood patch, CT scan with and without contrast, MRI, EKG, MRA, 24 hour EEG, multiple blood work, all negative. She had an onset of severe seizures 2 days after the blood patch (three weeks ago) that lasted for 4 days, decreasing in severity as the days progressed. Since then we are left with her learning how to walk again and constant tremoring, now the headaches have returned. We have learned that benadryl is the only thing that touches her headaches (can even make them go away at times) and her blood pressure increases drastically when she goes from laying flat, to sitting up, to standing. We are desperate and scared, if anyone has heard of these symptoms or has any suggestions, please help.

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  • My 38 year old (active) wife had a severe migraine 4 weeks ago. Since then we have been through two hospitals, many tests, and no answers. She had a lumbar puncture, blood patch, CT scan with and without contrast, MRI, EKG, MRA, 24 hour EEG, multiple blood work, all negative. She had an onset of severe seizures 2 days after the blood patch (three weeks ago) that lasted for 4 days, decreasing in severity as the days progressed. Since then we are left with her learning how to walk again and constant tremoring, now the headaches have returned. We have learned that benadryl is the only thing that touches her headaches (can even make them go away at times) and her blood pressure increases drastically when she goes from laying flat, to sitting up, to standing. We are desperate and scared, if anyone has heard of these symptoms or has any suggestions, please help.Hmmmmmm, does she have orthostatic hypotension?
    sinmarazul 1 Replies Flag this Response
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