Discussions By Condition: I cannot get a diagnosis.

Nerve pain /weakness/fatigue

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Lolabaaci
  • May 12, 2009
  • 01:29 AM

I have been burning a hole in my laptop searching online trying to make some sense out of what is going on with me. I finally decided to register and just ask!
Thank you in advance for reading I guess I will just give you the run down...

Oct 07- noticed burning pain in my feet and muscle fatigue in my arms and legs. I also began having carpal tunnel symptoms in my right arm. My feet became unbearable so I went to my PCP. She did blood work which all came back normal. Told her I was having difficulty standing long enough to take a shower so she referred me to a Neurologist.

Nov 07- saw Neurologist. Did a slew of blood work i(ncluding Lymes) and EMG NCS. Came back normal except for Carpal Tunnel. Lumbar MRI normal Cervical MRI showed severe stenosis in C5/6. Symptoms contributed to myelopathy. Referred to surgeon.

Feb 08 - Surgery ACDF. Symptoms went away until Sept.

With symptoms increasing the surgeon referred me to a pain specialist. I was put on Lyrica(75mg x 3) and Hydrocodone (10 mg 2 x's daily).
I was kind of just dealing with it until things became unbearable for the past 8 weeks or so. My feet are screaming with pain and burning. I get zingers of pain to my toes. I have stiffness in my ankles and weak feeling in my legs. My arms tremble with fatigue after simple tasks.
I have also had two short episodes with inner hip pain so severe that I could not put weight on my leg. I was perscribed Celebrex for this.

I have had a repeat of MRIs on my entire spine and a CT myelogram of my neck. The surgeon says that "everyone should have a back as good as you". There is no nerve impingement or cord compression. He feels I should see a rheumetologist or neurologist.

I am so frustrate. I am on day three of no medication and I can hardly bear it. This pain and other symptoms is affecting my life in all aspects and I am barely functioning as a mom or otherwise. I feel like this is systemic because I am also dizzy and fatigued.

Thank you for reading and any thoughts or advice you would like to share.

Lola

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