Discussions By Condition: I cannot get a diagnosis.

Need Suggestion Quick!

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • September 17, 2007
  • 04:49 PM

Okay, a few months ago I was diagnosed with Fibromyalgia. My dr had put me on Lyrica and it has been helping quite a bit. However, I've been having a lot of problems with my period that the Lyrica does not help with. Since my first period (when I was 12, I am now 19), I have always been irregular. However, in December when I started my period, I was in excruciating pain. Worse than normal. Since December, my period has been regular and I am in so much pain! It feels as if my spine is going to burst open.

Since I've been having so many problems, I decided that I would go to the ER when I got my next period and have them check to make sure it isn't anything to worry about. Well, I just started it about an hour ago, but the pain isn't as bad because I took some tylenol with codeine that my mother had given to me (I didn't think that I would start today), and so the pain is dulled down a little bit. Normally I can't walk and I am crying, but the codeine has made it so that I'm in a lot of pain, but I'm not crying yet. Should I wait for the medicine to wear off before I go to the hospital, or should I just go now. I'm just not sure because I want them to see the full extent of the pain and take me seriously.

Please help.

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7 Replies:

  • For any pain that severe, it's always good to go to the ER. It REALLY sounds like endometriosis, which means the ER won't turn up anything and you'll be referred to a gynecologist (endo does not show up on CT scans or ultrasounds as it is hard to differentiate from normal tissue). Have you been to a gyno yet about the problem? The next step is that the gyn will most probably Rx birth control pills without doing a laparoscopy to confirm the endo. If the BC pills take care of the pain, your problem will be considered solved by traditional medicine. If the pain persists expect a lap in your future to remove what endo can be seen, and stronger hormones may be prescribed with or without a lap diagnosis. I would highly recommend you do some research on endo online (there is a lot of information) if this is the suspected diagnosis. There are also some great groups on yahoo. Endo can be a persistent problem with debatable treatments. Please update with what happens - thanks!
    Anonymous 42789 Replies
    • September 17, 2007
    • 05:08 PM
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  • Well, I've been on birth control before, and I couldn't take them. The last time I was on birth control, I was on my period for about 1 1/2 months until I got so fed up that I stopped taking them. In the two times that I have taken birth control, that has happened. I was also thinking of uterus fibroids, my mother has them as well as ovarian cysts, so I need to make sure that that is not a problem. I'm just not sure if I should wait until the codeine has worn off....
    Anonymous 42789 Replies
    • September 17, 2007
    • 05:17 PM
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  • You're a little young for cysts and fibroids, and the ER can definitely rule those out with a vag ultrasound, but because you've been having problems since the beginning, endo is probably the culprit. If this is the case, before you start taking any other stronger hormone treatment that the doctor recommends, I strongly urge you to do some research and speak to people who have been dealing with endo for years. I would just go to the ER. I remember once having taken a tylenol with cod when I had a kidney stone before turning up at the Er - so I wasnt REALLY in pain, but they still wanted to give me morphine once they confirmed it - I had to tell them no! And, this was after I told them I had had the codeine! So, tell them you've had the pill....with the wait you'll probably be facing, the pill may very well wear off before you're seen anyway. And, the earlier in the day you go - before people start getting off of work - the shorter the wait you'll face. Just make sure you tell them you had the pill because the pain was so severe and they should take you seriously.
    Anonymous 42789 Replies
    • September 17, 2007
    • 05:41 PM
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  • Okay, a few months ago I was diagnosed with Fibromyalgia. My dr had put me on Lyrica and it has been helping quite a bit. However, I've been having a lot of problems with my period that the Lyrica does not help with. Since my first period (when I was 12, I am now 19), I have always been irregular. However, in December when I started my period, I was in excruciating pain. Worse than normal. Since December, my period has been regular and I am in so much pain! It feels as if my spine is going to burst open. I took some tylenol with codeine that my mother had given to me (I didn't think that I would start today), and so the pain is dulled down a little bit. Normally I can't walk and I am crying, but the codeine has made it so that I'm in a lot of pain, but I'm not crying yet.Please help.I started having excruciating pelvic pain and cramps from age 13/14 and had them all my life until I stopped menstruating in 2003. Boy was I thankful! I took Tylenol with Codeine since I was 13. The dose started was 15 gr but soon I was on 45 gr just to control the pain. The pain was so severe I would faint or pass out. I suffered needlessly because doctors failed to diagnose me with Hashimoto's Thyroiditis for nearly 40 years after my symptoms first began in adolescence. It's a thyroid disease and it's easily treatable with thyroid medication.The symptoms of Fibromyalgia and Hypothyroidism are nearly identical. Except that with hypothyroidism you can have excruciating pain during your period, irregular periods (due to hormones), PCOS, low body temperature, and many others.You can find more information about thyroid disease at:http://thyroid.about.com/ The most comprehensive list of symptoms is at:http://www.stopthethyroidmadness.com/I was first diagnosed with Fibromyalgia in 2000. My doctors now tell me that wasn't what I had. It was undiagnosed Hashimoto's Thyroiditis and sleep apnea (which is a symptom of Hashi's).My suggestion is that you get your thyroid tested. The first website I mentioned describes the tests needed for determining what type of thyroid disease you have.
    Anonymous 42789 Replies
    • September 17, 2007
    • 09:57 PM
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  • I started having excruciating pelvic pain and cramps from age 13/14 and had them all my life until I stopped menstruating in 2003. Boy was I thankful! I took Tylenol with Codeine since I was 13. The dose started was 15 gr but soon I was on 45 gr just to control the pain. The pain was so severe I would faint or pass out. I suffered needlessly because doctors failed to diagnose me with Hashimoto's Thyroiditis for nearly 40 years after my symptoms first began in adolescence. It's a thyroid disease and it's easily treatable with thyroid medication.The symptoms of Fibromyalgia and Hypothyroidism are nearly identical. Except that with hypothyroidism you can have excruciating pain during your period, irregular periods (due to hormones), PCOS, low body temperature, and many others.You can find more information about thyroid disease at:http://thyroid.about.com/ The most comprehensive list of symptoms is at:http://www.stopthethyroidmadness.com/I was first diagnosed with Fibromyalgia in 2000. My doctors now tell me that wasn't what I had. It was undiagnosed Hashimoto's Thyroiditis and sleep apnea (which is a symptom of Hashi's).My suggestion is that you get your thyroid tested. The first website I mentioned describes the tests needed for determining what type of thyroid disease you have.Well, I've only started taking the Tylenol. My doctor won't give me anything stronger than Ibuprohen 800 or Ultram, neither of which do anything, so the Tylenol with Codeine is the only thing that helps.Anyways, as for my thyroid, it has been tested many times, and there were never any problems. I didn't go to the ER, but I'm going to find a good Gynocologist in my area and get checked out. Endometriosis is a big possibility. My aunt had it so bad that she had a hysterectomy (spelling?). Hopefully its nothing to worry about, but I just can't stand dreading my periods....
    Anonymous 42789 Replies
    • September 18, 2007
    • 02:45 AM
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  • Don't wait until your period starts to take ibuprofen. Start a couple days before if you can. Are you having sex? An ectopic pregnancy is excruciating and life threatening.
    rad-skw 1605 Replies
    • September 18, 2007
    • 10:07 AM
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  • Well I started taking the Tylenol with Codeine about 3-4 days before I actually started my period. I also have scoliosis in my back, so I already have back pain. When I get close to starting my period though, the pain gets intolerable. It sort of feels that I have a tennis ball in my spine, and it is pushing my spine and the muscles around it away. In my family, especially with my mother, it's normal to have bad cramps, but no one has been stuck in bed unable to walk and crying because of the pain.And to answer your question, I am having sex (same man for 4 years), but if it was an ectopic pregnancy, I would be in pain all the time (or maybe even dead), even if I wasn't on my period, seeing as this has been going on since December. But when I go to the Gynocologist, I will have that checked out just to be sure.
    Anonymous 42789 Replies
    • September 18, 2007
    • 10:46 AM
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