I am very concerned about my 18 month old son's health. Let's start at the beginning, I had a repeat Cesarsean with no problems, and my son seemed like a happy healthy baby. Then, at a week old, he started having bloody stools. I was breast feeding and his peditrician suggested we switch him to HypoAllergenic formula, which we did and the bloody stools cleared up after a few days. Around 3 weeks old, he seemed to be having trouble breathing, almost sounded like he was gasping for air. Took him to the ER and they said he was fine. About a week later, the breathing thing happend again, but this time he turned blue aroundthe lips and fingertips. By the time the doctors actually saw him in ER the blueness had faded and he was "fine". Let me also say that I am not a first time mom worried about every little thing, I have a 4 year old also. Anyway.....we took him to a pulmonologist who diagnosed him with Laryngealmalaysia, just by looking at him and listening to him.
When he was 6 weeks old, he had RSV.......then at 6 months old he had RSV again, this time admitted to the hospital for low O2 sats and difficulty breathing. Between 6 months and 15 months, he had recurrent ear infections (10 in total) and at 9 months had pneumonia. Then, at 13 Months, the unthinkable happend. He had a seizure, which lasted approximately 40-45 mins, aspirated, went into respiratory failure and was cyanotic. They HeliVac'd him to the nearest childrens hospital where he was intubated, had a 2nd seizure and in the PICU for 9 days. They said that due to his aspirating during the first seizure, he had pneumonia. While in the PICU, he had fevers anywhere from 100 degrees to104 degrees for 6 or 7 days. He also presented with Petechiae due to very low hemoglobin levels, which they gave him platelets for. He had an abnormal EEG and was later diagnosed with epilepsy by a Neurologist. He was in the hospital for 14 days, 9 of which he spent on the ventilator.
He was later diagnosed with asthma, due to chronic cough and recurrent wheezing although these are always associated with a fever, runny nose and so on. He had tubes put in both his ears at 15 months. He was in the hospital again in December for a lung infection (not RSV or Pneumonia), O2 Sats between 85 and 92 and fever again varying from 100-103. He was discharged once his sats reached 97 and stayed there. I took him back to the doctor last week because of a very severe cough and congestion, but they said his lungs sounded fine and it was just a cold, then on Monday, he came down with Pink Eye, so they put him on Antibiotics, and yesterday at about 3:30am he woke up with a fever of 103.8. His fever had stayed pretty constant all day, between 101 and 103, and his peditrician says it's viral and will clear up on it's own. Needless to say, I am a bit tired and my poor baby has been through so much.....when I asked his pediatrician if she felt there could be something else going on she said "Maybe, I don't know, ask the pulmonologist next time you see him."
So all I'm asking for is a little advice.....I feel like there may be something going on that the doctors haven't caught yet......or maybe I'm just worried about my boy......either way, please help, any suggestions or advice would be greatly appreciated. Thank You
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