Discussions By Condition: I cannot get a diagnosis.

Need serious help, in tears & @ the end of my rope!

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: mainesgem
  • November 6, 2006
  • 01:54 PM

Hi there.
I have been having medical issues that are driving me and my family nuts!!! :eek: I have a husband and 2 small children and I am constantly batteling these medical problems. I am sick of it! My husband is sick of it! My kids don't understand it.

Since the birth of my last child, who is now three, I have been having these problems. Migraines, menorrhagia (heavy periods)-I literally hemmoraged last saturday, major, constant fatigue, tachycardia (I have 2 take cardiazam for it), periods of bracycardia, weight gain (I was always super thin all of my life until three years ago.), rare spells of complete weakness-feeling like I am going to die (My BP goes sky high, my HR goes high, and I shake badly.), I am thirsty all of the time-I probably drink over 2 gallons of water a day!, and really bad gas pains at least 2-3 times a week.

I have been to the ER, I have been to a cardiologist, neurologist, rheumatologist, and my GP. No one can find one central thing wrong-just a jumbled up list of problems that are severly affecting my life.

No one can explain why I am exhuasted all of the time. No one can explain the periods of brachycardia. No one can explain why I have such heavy periods. (had surgery-didn't find much.) No one can explain my weight gain-I eat less than I ever have and I am fat! No one can explain why I get these spells of super high blood pressure, high HR, and I feel like I am gonna die. no one can explain why I am so thirsty.


Please help. I am so done with all these medical problems! I am tired of having a problem at a constant pace.

Thanks.:(

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15 Replies:

  • I'm sorry you're having such a hard time - I hope you get an accurate diagnosis soon.I am NOT a doctor, but I have done some amateur research on various things, and what you're describing sounds a lot like a endocrine (hormone) problem, especially the thirst. Have you had thyroid and/or pituitary testing? Not sure how well you get on with your current GP, but ask him/her if you could have a thyroid or pituitary problem. If your GP is blowing you off, you might try to see an endocrinologist.
    Anonymous 42789 Replies
    • November 6, 2006
    • 07:40 PM
    • 0
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  • I agree with Sophie, the heart problems, fatigue, mysterious weight gain can all be attributed to a thyroid problem. I'm not saying that's what you have but you should definately get your thyroid testing if you haven't already. Thyroid toxicosis can be serious so it's a good thing to get checked out. Good luck
    Anonymous 42789 Replies
    • November 6, 2006
    • 11:42 PM
    • 0
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  • Curb your eating, go excersise, take time off, don't drink, don't smoke, get good nights sleep, spend your time outside, never eat fast food, drink lots of water when you need it.
    Anonymous 42789 Replies
    • November 7, 2006
    • 01:10 AM
    • 0
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  • Gas pain huh? Are there other gastrointestinal symptoms such as chronic diarrhea, nausea, lost appetite?"I eat less than I ever have and I am fat!"Sounds like a classic undiagnosed gluten intolerence/Celiac disease. Check it out, see if it explains what you're going through. It is starting to be recognized as a major cause of thyroid malfunction.
    Anonymous 42789 Replies
    • November 7, 2006
    • 03:38 PM
    • 0
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  • Sorry you are having such a problem. What caught my attention was that you mentioned you used to be slim about 3 years ago and you have a three year old. IFFF... the change in weight came about after the childs birth and if the delivery was traumatic for some reason then this may be a subconsious mind problem. I say this because I am assuming your docs have ruled out pretty much all the endocrine and other possibilites. The mind is really my specialty and in cases where all lab tests are normal I find that it is often the subsconious mind that is causing problems with the body's HPA (hypothalamus,putuitary,adrenal)axis and other responses. Just thought I would throw out a thought from a different direction. Good luck. This would of course NOT be something for a psychologist/psychiatrist to examine...generally speaking. While they can do great work in many areas this area is not really their turf.
    healer4u 4 Replies
    • November 7, 2006
    • 07:50 PM
    • 0
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  • You could have diabetes?
    Anonymous 42789 Replies
    • November 12, 2006
    • 05:35 AM
    • 0
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  • Yes check for diabetes! Are you going to the bathroom a lot?
    taynumber1 2 Replies Flag this Response
  • I too had the fatigue symptoms along with HEAVY periods after having my second child. After my GP did an anemia profile, she found that I had sever anemia. It did not show up in my H&H but only in my Feratin count. It seems that the normal feratin level is between 90-120, mine was 2. After the diagnosis, I went to a hematologist and began recieving IV iron every six weeks for about 3 years before having a hysterectomy. After each treatment of IV iron, I would feel like superwoman for a while until my levels dropped again. Try asking your GP for an Anemia profile to check and make sure you don't have the same thing. Good Luck and I hope you feel better soon!
    momof2sweetboys 3 Replies Flag this Response
  • Do you have fibroids? Have they checked your pituitary gland?Keep a food log. I get weakness shortly after consuming any salty food and have to balance right away with OJ, banana and extra water to get rid of the weakness.You also can't rule out stress...It may help to join a faithbased group or church. I have friends that find this really helps them and gives them time away to reflect and find peace away from the family concerns.You really shouldn't be thirsty w/ High BP... those are signs of Diabetes, but the weight gain isn't. Generally, that is hormonal.You may also have tumors or cysts that are growing adding to your weight.I do want to encourage you though. I know how frustrating it is to keep fighting and there doesn't appear to be any help, but this will just make you stronger and wiser in the end. Keeping a good perspective will also keep stress levels down for your kids. Take care!
    Anonymous 42789 Replies Flag this Response
  • Dear gem...please visit www.ahummingbirdsguide.com hundreds if not thousands are having similar symptoms Please read "Contagious joint pain" even if you don't have it many are responding saying they have "it" too so do I...being tested now Good Luck...mommy cat
    mommy cat 1654 Replies Flag this Response
  • Sorry you are having such a problem. What caught my attention was that you mentioned you used to be slim about 3 years ago and you have a three year old. IFFF... the change in weight came about after the childs birth and if the delivery was traumatic for some reason then this may be a subconsious mind problem. I say this because I am assuming your docs have ruled out pretty much all the endocrine and other possibilites. The mind is really my specialty and in cases where all lab tests are normal I find that it is often the subsconious mind that is causing problems with the body's HPA (hypothalamus,putuitary,adrenal)axis and other responses. Just thought I would throw out a thought from a different direction. Good luck. This would of course NOT be something for a psychologist/psychiatrist to examine...generally speaking. While they can do great work in many areas this area is not really their turf. Hi, Healer4u: id, ego, superego....folie a deux...a few things dealing with the subconscious....one of my favorite subjects. I understand where you are coming from by suggesting this....but, don't leave us hanging! Who exactly would you recommend from this arena help with these problems? How exactly is the subconscious throwing these things, the HPA, off? Would this apply to anyone that has gained say 100 pounds in a short amount of time (and used to be thin)? Are you saying unhealed trauma caused the weight gain or perhps prevents her from losing weight as a "subconscious" protective mechanism by altering the hypothalmus, etc.? Can one achieve such a thing without trauma? I am sincere in asking, because I am curious. I have also seen "folie a deaux" (a delusion shared between two people) happen, so I understand how powerful the mind is. Thank you. Oh, and for anyone out there thinking I am talking about "shared delusions" such as alien abduction....I am not. I mean "normal" delusional thoughts that usually happen in relationships.
    Anonymous 42789 Replies Flag this Response
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  • Hi there.I have been having medical issues that are driving me and my family nuts!!! :eek: I have a husband and 2 small children and I am constantly batteling these medical problems. I am sick of it! My husband is sick of it! My kids don't understand it. Since the birth of my last child, who is now three, I have been having these problems. Migraines, menorrhagia (heavy periods)-I literally hemmoraged last saturday, major, constant fatigue, tachycardia (I have 2 take cardiazam for it), periods of bracycardia, weight gain (I was always super thin all of my life until three years ago.), rare spells of complete weakness-feeling like I am going to die (My BP goes sky high, my HR goes high, and I shake badly.), I am thirsty all of the time-I probably drink over 2 gallons of water a day!, and really bad gas pains at least 2-3 times a week. I have been to the ER, I have been to a cardiologist, neurologist, rheumatologist, and my GP. No one can find one central thing wrong-just a jumbled up list of problems that are severly affecting my life. No one can explain why I am exhuasted all of the time. No one can explain the periods of brachycardia. No one can explain why I have such heavy periods. (had surgery-didn't find much.) No one can explain my weight gain-I eat less than I ever have and I am fat! No one can explain why I get these spells of super high blood pressure, high HR, and I feel like I am gonna die. no one can explain why I am so thirsty. Please help. I am so done with all these medical problems! I am tired of having a problem at a constant pace. Thanks.:(You poor woman. I really feel for you. I am sure you have been tested for diabetes already. That brings on much thirst. Meds? Some meds cause strange effects. Make sure yours don't or the aren't being combined with non compatible meds. I wish you the bestLisa
    Anonymous 42789 Replies
    • January 31, 2010
    • 07:30 PM
    • 0
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  • hi your condition is anxietic . check ur T3.T4 and TSH . TAKE omeparazole +ATENOLOL +daizepam AND plz go to check your vagina might hv any tumour which is causing heavy periods . best of luck .
    Anonymous 42789 Replies Flag this Response
  • You definitely have to be refeared to an Endocrinologist( Hypophysis functions must be checked+blood sugar and Electrolites)
    Anonymous 42789 Replies Flag this Response
  • What is interesting is that similar things happen to many women, during pregnancy or shorlty after birth (1st or 3rd child).Possibly with the thirst, if you sip, rather than drinking by the cupfull and also try different sources of fluid e.g. tea, iso tonic, water, then it may reduce your intake.The good news appears to be that your body is trying to manage it's problems (rather than items failing and you become substantially worse).You may never know the real cause of your problems, because A.F., C.F.S., M.E., F.M., Lupus and many more all have similar start symptoms and since you may by at the start or early stages of a serious illness (forgive the poor wording).This web site might give you ideas (skim read it, rather than tying to understand all the technical) -http://www.drlam.com/articles/adrenal_fatigue.aspThe three things that may help are do not over utilise your body, reduce both your medical and mental stress, the low GI diet.The reason that the diet should help, is if you were training you would probably increase your protien intake, if dieting reduce your sugar and fat intake, "prorata" with the low GI diet.I am not sure it will cure you, but I think it will make you feel better and perhaps help you make a better diagnosis.With the warmest of wishesTerry
    Anonymous 42789 Replies Flag this Response
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