Discussions By Condition: I cannot get a diagnosis.

Need Help With Dx - I want my life back.

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: beautyistruth
  • September 3, 2008
  • 04:15 PM

Up until a couple of years ago, I used to be a very happy and active person. I began to have episodes of sleeplessness and depression corresponding to a worsening menstual cycle (pain & heavy bleeding, avg 21 day cycle). Also worse migraines, but have had menstrual migraines and endometriosis all my life and dealt with it. Tx w/imitrex 4 migraines. Blood tests showed low red count, low calcium, low potassium and low tsh and slightly elevated CA 125. Also, unexplained elevation of cholesterol/triglycerides, though i put it off to the lack of exercise at the time. Also sonagram showed complex cystic mass on L ovary. (R ovary previously removed along with appendix) I had a hysterectomy, L ovary was saved and left in. No evidence of cancer. I expected to be better after an appropriate recovery time. And, while the abdominal pain improved significantly, the general fatigue and pain got worse. Pain is throughout body, not in joints but in the large muscle groups of the legs and arms, with the legs always worse. Sometimes they repeatively twitch, more often legs, but arms too. Pins and needles too, sometimes. I am losing fine motor skills and memory is progressively getting worse. Severe fatigue some days so bad between that and the pain, i cannot even shower. Also, began to have difficulty swallowing and a small throat lump, which sonagram has shown to be a thyroid nodule .5 cm. in size. However, my thyroid and pituitary hormones have, over the past year, gone back to normal levels on their own, without medication. Current meds are loracet for pain, ambien 10mg for sleep, ativan for anxiety, though i have been using it to ease the muscle spasms, and imitrex for migraines. All of these meds I was on before I began to really decline and I have phased out both the ativan and the ambien at varying times to see if I felt better, but i did not. OTC I take tavist, excedrin and/or motrin additionally for pain. I also receive acupunture weekly. I guess i should mention that i have had intense bipolar-like mood swings with no previous hx of such a thing. So, I have gone from an active person, who always worked and helped others, to a shut-in who can barely take care of herself. I have had DNA blood factor tests for common autoimmune - all negative (scleroderma, lupus, etc.) Current dx by neurology p.a. is chronic fatigue syndrome. ANA and Sed rate negative. However endocrine dr says it is thyroiditis. There is some cylical factor, i guess, meaning that on the "good" days, I am able to do some light housework, maybe 1 week out of three on avg. The symptoms, when they get worse, all get worse together - the fatigue, pain, difficulty swallowing, insomnia, muscle pain and spasms, fine motor skill disruption (i drop things a lot more or have trouble manipulating things that require fine movements, like opening a bottle)

Please help, if you have any idea. i have been looking on this site for the possibility of a parathyroid issue rather than thyroid because of the lower calcium, but honestly i have no idea and neither do my treating physician. Thank you for your time.

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6 Replies:

  • Maybe celiac disease. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    aquila 1263 Replies
    • September 4, 2008
    • 04:05 PM
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  • In my opinion your case will probably cause by stress . There are many factor will cause to stress. The most common factor usually caused from stressful life and insufficiency of nutritional especially B complex and calcium which caused by improper diet.Especially vitamin B12 - helps maintain healthy nerve cell and red blood cell.However , I strongly suggested you to take multivitamin and plus additional B complex ( contain B1 to B12, although multivitamin already includes all source of vitamin but the quantity is insufficien for people who have problem.For more detail you can ask the people in health food store they can help you up for your problem.If you want to speed up your treatment result go for foot reflexology treatment and intake vitamin at the same time in one the best natural home remedy you might want to try. Find out the case study at http://www.footreflexology.blogspot.com
    jass33 3 Replies
    • September 4, 2008
    • 05:16 PM
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  • Thanks for taking the time to reply. I have been getting B12 injections from my acupunture physician and, for the moment, we have ruled out stress as the cause, not counting, of course, the stress of feeling crappy :) I do think there are nutritional issues, however, because i have had odd blood tests i.e. calcium and potassium low at same time. My husband and i are very holistic minded and i am lucky enough to be married to a LMT who is also a qi gong instructor. So far meditation and general relaxation techniques have not been helpful in this. Often the pain is so bad I decline a massage from my husband because it hurts too much to be touched, so he does reflexology on my feet. "Hot" spots on the feet seem to be endocrines, pituitary and thyroid and spleen. Thanks again for your input and if anything else comes to mind, pls write :) In my opinion your case will probably cause by stress . There are many factor will cause to stress. The most common factor usually caused from stressful life and insufficiency of nutritional especially B complex and calcium which caused by improper diet. Especially vitamin B12 - helps maintain healthy nerve cell and red blood cell.However , I strongly suggested you to take multivitamin and plus additional B complex ( contain B1 to B12, although multivitamin already includes all source of vitamin but the quantity is insufficien for people who have problem.For more detail you can ask the people in health food store they can help you up for your problem. If you want to speed up your treatment result go for foot reflexology treatment and intake vitamin at the same time in one the best natural home remedy you might want to try. Find out the case study at http://www.footreflexology.blogspot.com
    beautyistruth 3 Replies
    • September 6, 2008
    • 02:07 AM
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  • Wow. There were even some symptoms listed that I didn't list in my narrative that were on the link. Thank you so much for something to at least have my doctor check. Are there any specific tests and such that you think are better than others? Thank you for your time :) Maybe celiac disease. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    beautyistruth 3 Replies
    • September 6, 2008
    • 02:10 AM
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  • Thank you! I will look into Lyme disease and whether or not we have deer ticks in florida. My uncle, in New England, had a very severe case some years ago and nearly died. I hope I do not have this as i have severe allergies to antibiotics. But it is certainly worth checking out. I am really fascinated by the EMF article as this is an area of interest to me and an area i hope to research in when I am feeling better. Thank you for your time and interest.:) Your story is very similar to mine - my periods were moving closer together, and I thought first a diagnostic lap, and later a hysterectomy (uterus and left ovary removed) would give me my life back (I had endometriosis, too). But everything (with the exception of pelvic pain which improved) got worse after my surgery.
    beautyistruth 3 Replies
    • September 6, 2008
    • 02:18 AM
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  • Hi beautyistruth ,First of all , you are so lucky to marry a husband who is a LMT that is a bonus :). Congratulation !! No matter what kind of disease , we should not focus on only one specific vitamin. Because each individual nutrient has its important role in our body. Therefore, I strongly suggest you to take all the basic vitamin such as 1)Vitamin A2)Vitamin B complex (contain B 1 ,B2,B5, B6, and B12)3) calcium and magnesium 4)Vitamin C5)Vitamin E6)Omega 3Or you can replace the individual vitamin with multivitamin. But be careful, if you have constipation problem ,please choose the multivitamin that does not include iron. It does not mean you can't take iron at all, you can buy iron supplement separately so that you can control how often you want to intake the iron. All the vitamin will be less effective or useless without B complex. All the vitamin like the raw ingredients of food. We need fire to cook the food. so as the vitamin it needs B complex to breakdown the nutrient into very small substance (enzyme) which can be absorbed . PS: Make sure you choose the natural supplement which the nutrient is derived plant. Where the synthetic vitamin is laboratory made is far more cheaper then food extract vitamin.For your case , I suggest you to massage the entire reflex point . Begins from Kidney,urethra,bladder,land lymph node, head,pituitary gland, stomach,spleen, thyroid glands,and other reflex area as well.Trust me , if you combine the foot reflexology treatment, intake supplement and watch out your diet it wont take to long you will see the the improvement.For the reflex point you can refer to http://www.footreflexology.blogspot.com. Hope you will get back your healthy life soon.
    jass33 3 Replies
    • September 6, 2008
    • 06:28 PM
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