Discussions By Condition: I cannot get a diagnosis.

Need help with diagnosis for son

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: shlodev
  • July 24, 2013
  • 02:10 PM

My 14 year old son has had daily facial pain, flushing and swelling since January 2011. It started suddenly and has not stopped. He has burning, throbbing and stabbing pains on both sides of his face (cheekbone area to lower jaw). His face has a pinpricked appearance in the afflicted area, which changes to an all over flush with swelling by evening. He also has pain in his ankles, knees and hips accompanied with a feeling of "looseness"in the joints. This is a daily occurrence with no relief. He has taken anithistamines, amitryptoline, neurotin, calcium channel and sodium channel blockers, anti-seizure medicines, oral steroids, aspirin and doxycycline. He is now receiving IVIG treatments every 4 weeks, which fix the joint problems, but does nothing for his face. We have seen countless specialists at Dartmouth Hitchcock and Boston Children's Hospital and no one can figure out what is wrong. The dr.'s cannot even find similar cases.

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