Discussions By Condition: I cannot get a diagnosis.

Need help with diagnosis for son

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: shlodev
  • July 24, 2013
  • 02:10 PM

My 14 year old son has had daily facial pain, flushing and swelling since January 2011. It started suddenly and has not stopped. He has burning, throbbing and stabbing pains on both sides of his face (cheekbone area to lower jaw). His face has a pinpricked appearance in the afflicted area, which changes to an all over flush with swelling by evening. He also has pain in his ankles, knees and hips accompanied with a feeling of "looseness"in the joints. This is a daily occurrence with no relief. He has taken anithistamines, amitryptoline, neurotin, calcium channel and sodium channel blockers, anti-seizure medicines, oral steroids, aspirin and doxycycline. He is now receiving IVIG treatments every 4 weeks, which fix the joint problems, but does nothing for his face. We have seen countless specialists at Dartmouth Hitchcock and Boston Children's Hospital and no one can figure out what is wrong. The dr.'s cannot even find similar cases.

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.

Signs of a Psoriasis Flare

Know the five types of psoriasis and how to spot flares.

How Diabetes Medications Affect Your Appetite

Newer diabetes treatments can suppress appetite and aid weight loss.

What to Do For Dry Mouth

Try these tips to get your salivary glands back into action.

The Painkiller – Constipation Connection

Constipation is a common side effect of opioid and narcotic pain medicines.

9 Signs of Sensitive Skin

Is it sensitive skin or something else?